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Neuromuscular Disorders Patient Stories

Read inspiring stories of hope from patients and families treated at Nicklaus Children's Hospital.

Have your own inspiring patient story to share? If you’d like to share your Nicklaus Children's story to inspire hope, and help other families find answers to questions they’re seeking for their child, please contact us at: info@nicklaushealth.org.

Santi Beats the Odds: A Story of Perseverance

Santi brings joy to everyone around him, despite his medical limitations. At only age 7, Santi has memorized the telephone numbers of all his favorite people, including some of his nurses at Nicklaus Children’s Hospital. Read this story.

Sofia's Inspiring Journey with SMA

Sofia was born with spinal muscular atrophy (SMA) type 2, a genetic condition that affects the spinal cord’s ability to control the muscles, decreasing and limiting mobility. In Sofia’s 6 years of life, she has already overcome more medical challenges than most adults. Read this story.

Patient of the Month: Gianna

After noticing that her daughter was unable to crawl, stand, or do the things her friend's children were doing at six months of age, Idalmis decided that it was time to seek help. Sure enough, after some consultations and genetic testing, Idalmis' gut feeling was right. Read this story.

Patient of the Month: Astry

After Astry was born, her parents noticed that she wasn't progressing as babies typically do. She wasn't able to lift her head and she showed a lot of muscle weakness. Her pediatrician recommended they take her to see a neurologist, and so Astry's parents brought her to Nicklaus Children's Hospital. Read this story.