Paciente del mes: Gianna


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Caring for Matthew: Managing a Very Rare Disease

abril 03, 2025 – Matthew was diagnosed with Phelan-McDermid Syndrome (PMS), a rare genetic disorder that affects development, speech, and cognitive ability, and requires extensive medical care and round-the-clock support. Despite his challenges, Matthew radiates love and joy, and his family is advocating for increased awareness of PMS while seeking potential treatments for the condition.

Luigi's Journey Toward a Better Tomorrow

marzo 31, 2025 – Luigi's parents faced fear and uncertainty when their son was diagnosed with Lennox-Gastaut syndrome and severe seizures at six months old. Thanks to the compassionate care and innovative treatments at Nicklaus Children’s Hospital, Luigi has made remarkable progress, and his family has opened a PPEC facility to support other families navigating similar challenges.

Optimal Care, Improved Life for Children With Spasticity

marzo 11, 2025 – Spasticity, which is often caused by brain or spinal cord injuries, is common in children with cerebral palsy and can result in muscle tightness, spasms, and problems like chronic constipation. The Nicklaus Children's Cerebral Palsy and Spasticity Program uses a team approach, offering both nonsurgical and surgical treatments to enhance the quality of life for kids, while providing personalized care and family support along the way.

Leading Pediatric Epilepsy Care for 40 Years

febrero 26, 2025 – For 40 years, Nicklaus Children's Hospital has been a leader in pediatric epilepsy. Learn more about the comprehensive care we offer for the most complex chronic cases.