Center of Precision Medicine

Every child and family deserves personalized care.

Phone: 305-663-8592

The Center for Precision Medicine (CPM) at Nicklaus Children's Hospital is proud to one of the nation's first programs to focus on precision and personalized medicine to support children's medical care, health and wellness. It offers the latest precision medical offerings to support the assessment and treatment of children with rare conditions, and is part of Nicklaus Children's commitment to offering the most innovative, personalized care to the children and families we are privileged to serve.

Who We Are

The Center for Precision Medicine is a collaborative multidisciplinary program enhancing translational research, providing access to the best molecular diagnostics, and implementing precision-medicine-based clinical treatment in the fabric of routine care. The center also provides education and advocacy in precision medicine and connects the diverse South Florida community to providers and researchers.

This program brings together clinicians and scientists to perform innovative, clinically relevant research in rare and undiagnosed diseases, pediatric cancers, and pharmacogenetics. This is a continuation of the multi-year Personalized Medicine Initiative at Nicklaus Children's Health System, which started in 2017. As of 2023, CPM includes the Undiagnosed Diseases Clinic, Nicklaus Children's Biobank, Pharmacogenomics Program, and Precision Medicine Analytics.

What is Precision Medicine?

The idea of precision medicine is not new. Clinicians have long recognized that different patients respond differently to medical interventions.

What's new? Transformational developments in science and technology offer promise for developing targeted diagnostics and tools for predicting who will respond to a medical therapy and who will experience side effects.

Illnesses may be rooted not only in a child's genes, but also within environmental, genetic, social and cultural influences. This combination of factors underscores the need for a comprehensive approach to personalized medicine that includes assessment at the molecular, cellular, tissue and organ, and community levels.

Research Projects Open for Enrollment

Goals

The overarching goal of the center is to promote integrated precision care across the Nicklaus Children's Hospital and use the personalized profile of each child to guide value-based therapeutics management strategies with enhanced efficacy and safety. The integration of precision medicine in patient care includes the following key programmatic elements.

Bridging the gap by bringing precision medicine to underserved populations to address health disparities in diverse and predominantly Hispanic South Florida populations.
Building infrastructure to maximize synergies. Implementation of precision medicine requires a transdisciplinary framework that cuts across organizational silos and fosters strong collaborations between clinicians, researchers, information technology, administrators, community organizations, and government agencies.
Advanced molecular diagnostics as a front door for rare undiagnosed disorders at the Undiagnosed Disease Clinic, led by clinical geneticists. Early diagnoses of monogenic diseases in critically ill infants and children on diagnostic odyssey can help improve care and lessen suffering and mortality.
Development of pharmacogenomic and other precision medicine tools to identify critical biomarkers for disease progression and drug responses. The Pharmacogenomics Program tailors gene-specific drug treatments to increase efficacy and mitigate the risk of adverse reactions. CPM conducts discovery and translational research to help patients who do not respond well to traditional therapies.
Outreach and education of healthcare professionals, researchers, patients, and the public on precision medicine, pharmacogenomics, rare diseases, and preconception screening.
Facilitating research opportunities to access high-quality biospecimens through Nicklaus Children's Biobank and research data through Precision Analytics.
Promoting research and industry collaborations, access to clinical trials, gene therapy, enzyme replacement, and other new therapy options. This approach is especially valuable to health disparity populations, who may not respond to standard diagnostic or treatment strategies developed from clinical trials lacking representative study participants.

Cultural Competency

Patients and families do best in a care environment sensitive to cultural needs. Nicklaus Children's is developing a curriculum for staff and trainees to support cultural competency to enhance support South Florida's diverse patient population as well as the many international patients who receive care at the hospital.

Integrated into every Service Line

Pediatric EKG's for Kids and Teens

Protect young athletes with a Pediatric EKG screening!

Phone: 1-855-624-EKGS

The leading cause of death among young athletes is sudden cardiac arrest (SCA). Usually there are no advance signs or symptoms.

Nicklaus Children's Hospital, is reaching out to the region’s young athletes by offering free pediatric electrocardiograms (ECG or EKG) testing to children ages 5 - 21.

Truly a gift to your family, a patient’s ability to receive a free EKG test is not conditioned on his or her ordering any other item or service from Nicklaus Children's Hospital, or its Medical Staff.

Why is an EKG screening important?

There are relatively rare but serious conditions that can cause electrical or mechanical problems of the heart. In their early stages, these conditions may go undetected. Some of these conditions can be detected through an EKG screening.

How do I schedule an EKG screening for my young athlete?

EKG screenings can be scheduled at one of our 15 locations by calling 1-855-624-EKGS (3547)

What to expect during an EKG screening?

During an EKG screening, the patient will be asked to lay on an exam table. An EKG technician will attach ten electrodes to the patient’s chest, arms and legs. The test itself only takes a few seconds and is completely painless. Once the technician completes the EKG screen (measuring the electrical activity of the heart), the technician will print out the report and attach it to the consent forms signed by the patient’s parent/guardian. The EKG report will be reviewed by a cardiologist.

How will I receive results?

Once the cardiologist has reviewed the EKG screening result, and if the EKG does not show any abnormalities, the patient will receive a letter via the email provided on the consent form (if provided) or via mail in 7-10 business days.

If the EKG screening resulted in an abnormal finding, the patient will be contacted by the Nicklaus Children’s Heart Institute.

What if my child’s screening is abnormal?

A member of the Nicklaus Children’s Heart Institute will contact the patient family to discuss the results and next steps.

Depending on the finding of the screening, the cardiologist might recommend:

A follow up visit with a pediatric cardiologist to discuss results of the screening
An Echocardiogram, an ultrasound of the heart that checks how the heart functions.
A Holter monitor, a type of portable EKG that is worn by the patient for an extended period of time. This monitor records the electrical activity of the heart continuously over 24 hours or as needed. The Holter monitor can be taken home to measure the heart’s rhythm as the patient goes about their regular day-to-day routine.
A stress test, which involves running on a treadmill while the patient’s heart rhythm, blood pressure and breathing are monitored.

Interested in hosting a community EKG screening event?

To host a free EKG screening event with Nicklaus Children’s Hospital at your school, park, or sport facility, please contact:

Jennifer Ayala, SCDP Program Coordinator
(786) 624-2527
scdpprogram@nicklaushealth.org

Some Facts about the Free EKG Program

The program was founded in 2011 by Dr. Anthony Rossi
A total of 27,388 EKGs have been performed since the beginning of the program
Of all the EKGs performed 925 have resulted in abnormal EKG readings
20 interventions have been performed due to abnormal readings
13 locations offer FREE EKG screenings

**Based on data collected through June 14, 2018.

Adolescent Medicine

Helping teens navigate adolescence, while providing preventive care and treating various illnesses.

Phone: 1-888-624-2778

Adolescence is a developmental period marked by physical, psychological and social changes that include achieving adult stature and sexual maturity, increase in intellectual capacity, a search for identity and a place in one's society, separation from the family and development of relationships with significant others.

While most adolescents make this transition without major problems, they need a significant amount of reassurance, guidance and support to make the right decisions. The practice of teen medicine was created to address the age specific issues that arise during the second decade of life.

In the process of making these changes adolescents are experimenting and testing limits. In the dependence-independence struggles, the choices adolescents make can affect their health for the rest of their life. Medical problems may occur as a result of risk-taking behaviors common among teens. Such issues can best be addressed in a teen-oriented office setting that recognizes the uniqueness of teens.

Adolescence is also the time when a number of adult illnesses may be diagnosed for the first time, and disabled teens may need special support in confronting their unique challenges. Adolescent medicine specialists are specially trained to help teens with issues related to their growth, provide preventive care, help with the management of acute and chronic illness from physical ones.

Why Choose Nicklaus Children's Hospital?

Adolescent Medicine at Nicklaus Children's Hospital provides an environment in which teens can feel comfortable talking about their changing bodies. This helps ensure that hesitancy to discuss such issues does not interfere with a teen's ability to obtain reliable health information.

The program is committed to providing high quality, comprehensive and confidential care to teens.

Pediatric Allergy & Immunology

Our Allergy Division treats respiratory, cutaneous, and gastrointestinal allergies.

Phone: 1-888-624-2778

The Allergy Division of Nicklaus Children's Hospital is devoted to the comprehensive evaluation and management of children with allergies and conditions that pertain to the respiratory, cutaneous and/or gastrointestinal system.

Allergy Tests and Treatments

Pediatric Anesthesiology

Our anesthesiologists are experts in treating pediatric surgical patients.

Phone: 786-624-3415

Pediatric anesthesia is one of three recognized postgraduate subspecialties of anesthesia. It requires an additional year of special training beyond that required for board certification in anesthesiology. Why is this an important consideration? The risks of anesthesia are greater in children than in adults. This is especially true for newborns, infants, and toddlers because they are more likely to develop complications during surgery. Children are at greater risk of having serious breathing problems and are less tolerant of blood loss. In addition, shock can be more difficult to recognize in children.

The pediatric anesthesiologist has the specific expertise and knowledge to take appropriate measures if complications arise from pediatric anesthesia, surgery, or in recovery. Nicklaus Children's Hospital is one of only a select few hospitals nationwide to offer dedicated pediatric cardiac anesthesia.

Why is Nicklaus Children's the best hospital for my child?

Nicklaus Children's is the only hospital in South Florida dedicated entirely to the care of children, and is home to the only free-standing pediatric trauma center in Florida. No facility in the region performs more pediatric surgical procedures per year than Nicklaus Children's Hospital.

Nicklaus Children's uses the latest technology and the most sophisticated equipment designed to meet the specific needs of children, from premature babies to high school quarterbacks. While many hospitals in South Florida claim to be “children’s hospitals,” these facilities in reality are general hospitals that offer limited children’s services. This could mean that they lack the facilities and experienced personnel necessary to provide the best possible treatment for a child. Children are not little adults. They have different needs and a different physiology. Even room temperature and surgical instrumentation must be adjusted according to the needs and size of each child.

Why choose Nicklaus Children's Hospital?

No surgery is ever “routine.” Even a tonsillectomy can involve complications. And when you’re dealing with children, surgery performed at hospitals that do not make pediatrics the exclusive focus can put your child at risk. The fact is, no general surgeon, anesthesiologist, or hospital in South Florida can treat your child as effectively as Nicklaus Children's team. Insist on it!

Pediatric Craniofacial Center & Clinic

When a child has a facial difference, finding the right care to meet their needs is a top priority.

Phone: 305-662-8237

When a child has a facial difference, the family often worries about the youngster's future and the challenges that lie ahead. A major source of concern for the family is how to identify the many care specialists needed to meet their child's individual needs.

The Craniofacial Center at Nicklaus Children's Hospital is committed to providing the best multidisciplinary care for children and families with craniofacial differences. The center provides treatment for many conditions including cleft lip and palate repair, repair of ear deformities, facial tumors, congenital defects, and Beckwith-Wiedemann syndrome. The treatment complexity for these congenital and acquired anomalies requires a team of specialists. Our comprehensive team includes reconstructive and craniofacial surgeons, otolaryngologists (ENT), geneticists, audiologists, pathologists, orthodontists, and psychologists. These specialists work together to provide patients with comprehensive evaluations to treat and manage conditions while supporting the patient's family throughout their child's developmental stages.

The center's goal is to advance knowledge through education, community service and physician commitment. Through these efforts a family-centered environment and a Center of Excellence for the care of individuals with craniofacial difference is created.

Children's Dental Services

Our pediatric dental services will guide your child toward a lifetime of optimal oral health.

Phone: 786-624-3368

The Pediatric Dental Program at Nicklaus Children’s Hospital offers comprehensive dental services for children of all ages from infants up to age 21. Our pediatric dentistry facilities are designed to meet the unique needs of healthy infants, children and adolescents and to address the special needs of patients with complex medical and dental issues.

Our pediatric dentists are specially trained to be sensitive to the developmental, behavioral and treatment needs of children. Whether those needs include basic preventative dentistry or the integrated management of complex medical, developmental, behavioral and restorative need, the pediatric dental specialists at Nicklaus Children’s are well prepared to guide your child toward a lifetime of optimal oral health.

Pediatric Dental Programs and Clinical Services Offered

Pediatric dental programs and services designed to treat infants, children and adolescents.

Adolescent dentistry
Cavity repairs
Dental checkups
Dental cleanings
Dental care for special needs patients
Dental sealants
Mobile Dental Unit
Toddler dental program

Craniofacial Center

Pediatric dentistry at Nicklaus Children's Hospital, is also part of the Craniofacial Center, which treats children with dental-facial conditions such as jaw deformities, cleft lip/palate and other facial conditions.

Providing Support Across Specialties

Our dentists often serve as coordinators of complex dental services and are responsible for early diagnosis and seeking other specialty consultation when the need arises. Based upon a child's clinical and radiographic evaluation, the pediatric dentist may recommend further evaluation by specialists who concentrate on the health of the gums and supporting bony structures, the alignment of teeth, or other areas. Locally, Nicklaus Children's Hospital, is also the only hospital whose Emergency Room is staffed 24 hours a day with a pediatric dentist.

The Latest in Dental 3D Imaging Technology

The Pediatric Dental Program at Nicklaus Children's Hospital has recently acquired the Planmeca ProMax® 3D, a state-of-the-art imaging system that provides clinical teams with 3D images capable of revealing the smallest details of a patient's teeth as well as the entire maxillofacial structure, while minimizing radiation exposure.

The unit captures 3D cone beam computed tomography (CBCT) images that offer clinicians – including plastic surgeons, oral and maxillofacial surgeons, otolaryngologists, endodontists, orthodontists and periodontists – optimal images for evaluating:

Teeth
Underlying bone structure
Nerve pathways
Surrounding soft tissue

Pediatric Emergency Room

When the unexpected happens, we provide 24-hour pediatric emergency care when you need it most.

Phone: 305-668-5522

The Nicklaus Children’s Hospital Emergency Room entrance has moved back to its previous location across from the yellow garage. Please follow the directional signage once you arrive at 3100 SW 62^nd Avenue.

campus map detailing drop-off area.

Open map as PDF

When emergencies arise, families can take comfort in knowing that Nicklaus Children's Hospital is here around-the-clock to take care of your child's immediate healthcare needs. With a caring team of nurses and doctors, combined with the most technologically advanced equipment, Nicklaus Children's Hospital Emergency Room provides the immediate quality care that your child needs.

In 2023, the Nicklaus Children's Emergency Department had 98,065 ER visits.

At Nicklaus Children's, we know that a child's needs are different from adults. To ensure that your child is seen by a pediatric specialist when it is most needed, the Emergency Department has a team of board-certified, fellowship trained, and board-eligible attending pediatric specialists and subspecialties on call, 24 hours a day. Should your child require advanced care, Nicklaus Children's Hospital has a full spectrum of pediatric subspeciality physicians to collaborate in your child's care.

The Nicklaus Children's Hospital Emergency Department is proud to be home to the Miguel "Mike" B. Fernandez Family Pediatric Trauma Center, is one of only two freestanding Level III pediatric trauma centers in Florida and the only freestanding pediatric trauma center in South Florida. An adjoining helipad enhances the facility’s ability to handle incoming traumas, as well as transfers from other hospitals.

To continue to be a leader in ensuring patient satisfaction, the entire Emergency Department staff devised and implemented strategies to reduce patient waiting time, enhance the atmosphere in the waiting room, and improve the delivery of patient care for our patients and families.

Our Collaboration with Baptist Health

Baptist Health and Nicklaus Children's Health System are working together to ensure that the children in our community continue to receive the highest quality emergency care. The pediatric emergency physicians at Baptist Health Baptist Hospital ER and Baptist Health Homestead Hospital ER are now part of Nicklaus Children's Pediatric Specialists, the medical group practice of Nicklaus Children's Health System. Our physicians will continue to provide the same high-quality, compassionate care you have come to expect.

Through this collaboration, they will also have access to the extensive array of pediatric subspecialists on Nicklaus' medical staff to support your child's specialized care needs. Pediatric patients treated in a Baptist Health Baptist Hospital Emergency Department and Baptist Health Homestead Hospital Emergency Department and requiring hospital admission will be transferred to Nicklaus Children’s Hospital to receive ongoing care.

Valet Parking Services for the ER

As a convenience to patient families and visitors, Nicklaus Children's Hospital offers complimentary valet parking in the front of its Central Building, near the Devonshire Boulevard entrance to the campus.

Hours: 24 hours a day, seven days a week
The valet is operated by US Parking
For any assistance you may call 786-578-3069.

Pediatric Endocrinology and Diabetes

A multidisciplinary approach to pediatric endocrinology that has helped children worldwide.

Phone: 1-888-624-2778

The Division of Pediatric Endocrinology at Nicklaus Children's Hospital, offers a complete array of diagnostic, treatment and consulting services for infants, children and adolescents with endocrine disorders. The division is committed to meeting the needs of the children and their families through a multidisciplinary medical approach to pediatric endocrinology that has helped children from around the world.

Evaluation and treatment for the following pediatric conditions:

Endocrine Disorders
Diabetes
Growth disorders
Abnormal pituitary
Sexual Development (Puberty) Disorders
Thyroid Disorders

Diagnostics and Treatments

Diagnosis of Achondroplasia

Fetal Care Services

Offering hope to families of infants with congenital differences

Phone: 786-624-3222

Learning your unborn baby will be born with a medical condition can be devastating. Families are faced with uncertainty and an endless list of questions about the future of the unborn baby.

Our Fetal Care navigators at Nicklaus Children’s are devoted to the care of infants pre-diagnosed with medical needs in utero that will require intervention at birth.

The team well understands the concerns of families anticipating an infant with a complex diagnosis. The Nicklaus Children's network of pediatric subspecialists collaborate with prenatal care providers in the community and beyond to provide families comprehensive, coordinated care and support from prenatal testing to the transition to infant care.

Initial Consultation and Scheduling

Our Fetal Care nurse navigators are committed to optimizing care access and convenience for expectant families. The navigator is the first contact for families to discuss issues and concerns. The navigator arranges the appointments for all diagnostic tests and specialty consultations with the family. The goal is to support families in obtaining a definitive plan of care, definitive diagnosis and counseling plan during a single visit, when possible. The appointment may include:

Diagnostic tests
Prenatal counseling
Genetic consultation
Diagnosis-specific subspecialty consultations

Clinical Genetics

Certain pediatric health conditions have a root cause in genetics

Phone: 1-888-624-2778

The Division of Clinical Genetics at Nicklaus Children's Hospital, provides expert diagnosis, counseling, and treatment for a wide range of genetic disorders in children. A clinical geneticist and genetic counselor evaluate infants and children with developmental delays, unusual facial features, metabolic disorders, seizures, craniofacial anomalies, and failure to thrive. These are some of the reasons for which children are referred for evaluation by clinical geneticists. Prenatal patients are also seen for genetic counseling in advance of a planned pregnancy as well as for potential genetic problems in an ongoing pregnancy.

Genetic Testing and Screenings

Genetic Counseling Programs

Patients with a variety of genetic conditions are seen by a board-certified genetic counselor and clinical geneticist for counseling. Genetic counseling programs involve gathering detailed information regarding medical and family history, assessing risk for offspring and family members, discussing the origin and natural history of the issue, and describing genetic testing options.

Indications for referral include family history of a genetic condition, previous pregnancy with an abnormality/genetic condition, recurrent pregnancy loss, teratogen exposure, increased risk for genetic condition based on ethnicity, advanced maternal age, abnormal prenatal testing (screening or diagnostic), and ultrasound anomalies.

The Heart Institute: Pediatric Cardiology and Cardiovascular Surgery

Giving Young Hearts Another Chance to Beat

Phone: 305-662-8301

Offering Same and Next-Day Appointments
And
Second Opinion Consultations

With Pediatric Cardiologists in locations throughout Miami-Dade, Broward, Palm Beach, and Martin counties.
*Subject to insurance approval and authorization.
Request an Appointment

Or call 305-662-8301 for more information.

Congenital heart disorders occur in approximately eight out of every 1,000 newborns. These disorders can range from mild to severe, with two to three babies in 1,000 displaying signs of a heart defect requiring medical intervention.

Our children's heart centers and clinics offer the most innovative, least invasive approaches in pediatric cardiology and cardiovascular surgery to the treatment of congenital heart disease, including many first-in-the-world procedures that were pioneered right here by the Heart Institute’s own internationally renowned pediatric cardiologists and cardiovascular surgeons.

The Heart Institute:

Performs 200+ heart operations each year and more than 11,000 operations since 1995.
10 locations throughout Miami-Dade, Broward, and Palm Beach.
More than 65,000 free EKG screenings to help prevent sudden cardiac death in the young. 52 patients have undergone a procedure to correct an abnormality detected through the free EKG screening program.
Trained more than 300 schools in Miami-Dade County on how to respond to a sudden cardiac arrest event.

A Team Approach to Care Makes a Difference

As the largest and most experienced cardiac team in South Florida, The Heart Institute is comprised of:

Pediatric Cardiovascular Surgeons
Pediatric Cardiologists
Pediatric Cardiac Anesthesiologists
Cardiac Intensivists
Advanced Practice Providers
Non-Invasive Cardiac Imaging Physicians
Electrophysiologists

Recognition and Outcomes Tell the Story

Our pediatric cardiology and cardiovascular surgery services are ranked among the nation’s best for pediatric cardiology and heart surgery by U.S.News & World Report.

A Distinguished History of Saving Little Hearts

During the 1960s, Nicklaus Children's Hospital became the first facility in Florida to perform pediatric open-heart surgery. Over the years, the hospital has continued to build on this tradition of leadership and excellence in children's cardiology.

In 1995, Nicklaus Children's Hospital, recruited top cardiac physicians and surgeons in pediatric cardiology to oversee new services that included Florida’s first dedicated Cardiac Intensive Care Unit, a state-of-the-art Interventional Cardiac Catheterization Program, and, later, a Clinical Research Program and Electrophysiology Program.

Infectious Diseases

An unexpected or chronic infectious disease in children needs expert treatment.

Phone: 1-888-624-2778

The Division of Infectious Diseases at Nicklaus Children’s uses state-of-the-art diagnostic tools to identify acute or chronic viral and bacterial diseases, so that effective treatment can be instituted as quickly as possible.

The care team also works closely with the hospital’s Cancer & Blood Disorders Center to assist immunocompromised children and teens who suffer from multiple episodes of infection.

enzyme immunoassays
immunofluorescence
polymerase chain reaction (PCR)
cell culture systems

NICU: Neonatal Intensive Care Unit

The highest acuity care for premature newborns in South Florida.

Phone: 305-669-5817

The Neonatal Intensive Care Unit (NICU) at Nicklaus Children’s Hospital is honored to be designated a Level IV – highest acuity care – neonatal unit, reflecting its capability in caring for the region’s most critically ill newborns. Nicklaus Children’s NICU is a regional and international resource, receiving newborns referred by other neonatal units throughout South Florida, Latin America and the Caribbean. It is dedicated to providing advanced care and hope for families of newborns with complex medical needs.

The 40-bed Level IV unit has earned the confidence of families and referring hospitals near and far. In addition, Nicklaus Children's Hospital also features a state-of-the-art 14-bed private room Level II NICU.

Care for Premature and Critically Ill Children

Nicklaus Children's neonatal intensive care unit provides care for more than 800 critically ill newborns each year. In the past 20 years the NICU, which was the first of its kind in South Florida, has received more than 10,000 premature and critically ill babies from throughout Florida and Central and South America. Most of these neonates were born at community hospitals after a premature or high-risk delivery. Approximately 60 percent of the babies admitted to the neonatal intensive care unit weigh less than three pounds.

Newborns with these and other serious diagnoses are also referred to the NICU:

Respiratory Distress Syndrome
Sepsis (serious infections)
Congenital anomalies
Respiratory failure
Trauma
Seizures

A Team Approach

Neonatology services at Nicklaus Children's are provided by a team of highly experienced neonatologists who are committed to excellence in neonatal healthcare. The team consists of:

Neonatologists
Respiratory therapists
Physical and occupational therapists
Social workers
Lactation consultants
Nutritionists
Psychologists
Child life specialists

In addition, the division has expedient access to multiple specialists, both medical and surgical, who assist us in managing patients with a broad range of complex disorders. The team provides medical care using evidence-based tools, a proficient level of training and education, clinical research and state-of-the-art medical technology. The goal is to provide excellent care and to ensure that each infant achieves his or her full potential.

LifeFlight^®: Neonatal Transport Services

Newborns being transferred from other hospitals to the Nicklaus Children's NICU are transported by the hospital's LifeFlight® Critical Care Transport Services. Nicklaus Children's Hospital LifeFlight® neonatal transport team provides transport of critically ill children from referring hospitals to Nicklaus Children's Hospital pediatric care units. In addition to ground ambulance transports, the LifeFlight program offers neonatal transport via helicopters operated by PHI, Inc., one of the world’s most experienced aircraft operators, and through contracted fixed-wing aircraft charters.

Gold-Level Patient Care

Advanced Neonatal Care

To ensure that patients benefit from all the latest advances in neonatal care, the NICU offers the most current monitoring systems, ventilator support and incubators, including Nature's Cradle, a system that replicates the sound and motion of the mother's womb.

The unit provides both invasive and non-invasive monitoring of the newborn's cardiorespiratory system, oxygen, suction and age-appropriate thermoregulation. In addition, each neonate's heart rate, respiratory rate, blood pressure and oxygen saturation are monitored continuously.

Premature Baby Development

Babies born prematurely may be predisposed to developmental delays in the early years of their lives. That's why Nicklaus Children's Hospital created the Sequential Tracking Evaluation Program (STEP). This special program offers step-by-step interdisciplinary evaluation of the ongoing developmental needs of infants during and after their stay in the NICU. The STEP team carefully evaluates each premature baby's development during the first critical years using an innovative approach of simultaneous evaluations and parent questionnaires.

Featuring the following advancements in Neonatal Care:

Intravascular arterial and venous monitoring
Pulmonary artery catheterization
Subdural and intravascular pressure monitoring with 24 hours/day EEG telemetry
High frequency ventilation
Apheresis blood treatment (the only one available 24 hours a day)
Nitric oxide
Access to the latest Neonatal Research Protocols
Continuous Video EEG monitoring and recording.

The division is a member of the Vermont Oxford Hospital Trials Group, and participates in research on the developmental outcome of newborns with birth weights less than 1,500 grams.

Total Family Care

Nicklaus Children's Hospital embraces a family centered approach to care. Parents and siblings are welcome 24 hours a day and are encouraged to stay overnight in the unit to form bonds with the newborn and learn care techniques, procedures and adjust to their infant's schedule.

The NICU team fully understands the importance of providing support and care not only for the patient, but also for the entire family. This is accomplished through a multidisciplinary team effort that includes our highly trained and experienced critical care physicians and nurses, as well as full-time psychiatrists, psychologists, social workers, child life specialists, patient representatives and clergy.

Nicklaus Children's Hospital NICU staff assesses and provides for each family's special needs in ways that go beyond the ordinary. From the time of admission continuously through to discharge, the team involves families in care decisions and works to ensure that all members of the family understand the care plan and receive the support they need to get through the crisis. The goal is to promote the rapid recovery of critically ill children and neonates, and to help families cope with the challenge and stress of a child's critical illness.

Pediatric Gastroenterology

Specializing in the treatment of gastrointestinal disorders for infants, children and adolescents.

Phone: 1-888-624-2778

The Division of Pediatric Gastroenterology at Nicklaus Children’s Hospital is dedicated to the treatment of a wide variety of gastrointestinal problems in children and adolescents. The team employs a multidisciplinary approach that brings together an array of specialists to deliver personalized care to the patient and family.

The Inflammatory Bowel Disease (IBD) Center provides comprehensive support and management for children and young adults with Crohn’s disease and ulcerative colitis, while the Gastrointestinal (GI) Center offers nutritional assessment and counseling for overweight children, as well as those with dietary restrictions. Consultations with the division’s board-certified pediatric gastroenterologists are offered in both English and Spanish at the hospital’s main campus near Coral Gables and Nicklaus Children’s outpatient centers located from southern Miami-Dade to northern Palm Beach Counties.

Gastroenterology Tests and Procedures

Management of chronic liver disease
Liaison of liver transplantation

Baby Formula Recall

Some powdered baby formulas, including Similac, Alimentum, and EleCare, produced by Abbott Nutrition's manufacturing facility, have been recalled. The FDA is advising parents and caregivers to not feed the recalled baby formulas to children in their care.

New Main Campus Office!

The Section of Pediatric Gastroenterology at Nicklaus Children's is growing to better meet the needs of our community. The new office, located directly off the main lobby of our state-of-the-art Advanced Pediatric Care Pavilion offers: seven exam rooms, an on-site nutritionist, close proximity to the IBD Center and other pediatric specialty services, access to the on-campus Publix pharmacy, as well as access to the hospital's Emergency Department.

Nephrology

Our pediatric nephrologists treat a variety of kidney diseases.

Phone: 1-888-624-2778

Comprehensive evaluation of renal functions, including kidney biopsies, are provided by the Division of Nephrology. The division's physicians treat kidney disorders in children including:

Congenital anomalies of the urinary tract including vesicoureteral reflux and obstructive uropathy
Electrolyte imbalance
Renal parenchyma diseases including glomerulonephritis
Tubular diseases
Collagen vascular diseases, including systemic lupus erythematosus.

Dialysis for patients suffering from acute renal failure is also performed through the pediatric nephrology program. The dialysis program includes hemodialysis, acute and chronic peritoneal dialysis and continuous arteriovenous hemofiltration.

Pediatric Neurology

Advanced treatment and compassionate care for a variety of pediatric neurological conditions.

Phone: 786-624-3131

Part of the nationally recognized Nicklaus Children's Brain Institute, the Division of Pediatric Neurology and the team of pediatric neurology specialists provides comprehensive diagnosis, evaluation and treatment of a wide range of neurological disorders in children at the hospital's main campus and selected outpatient facilities throughout South Florida.

Pediatric Neurosurgery

Florida's Top-Ranked Hospital for Pediatric Neurology and Neurosurgery

Phone: 305-662-8386

The Division of Pediatric Neurosurgery, part of the Nicklaus Children's Brain Institute, is the largest pediatric neurosurgical service in Florida and one of the most recognized programs in the country.

The Division of Neurosurgery is one of the busiest referral centers for treating children and adolescents with complex nervous system disorders such as pediatric brain tumors, intractable epilepsy, complex cases of hydrocephalus, craniosynostosis/craniofacial syndromes, as well as peripheral nerve and brachial plexus injury, spasticity and movement disorders.

Our team collaborates with clinicians from across more than 40 pediatric subspecialties within Nicklaus Children’s Hospital’s network of care. In addition, the neurosurgery team is supported by a comprehensive list of programs, clinics and services dedicated to children and adolescents with acute and complex neurological differences.

Neural-Tube Defect Clinic (Spina Bifida)

Pediatric Neurosurgery Treatments and Procedures

Minimally invasive removal of brain tumors
Surgical treatment of epilepsy
Inflammatory/Infectious processes of the brain and spine (e.g. brain abscess)
Surgical treatment of spasticity (selective dorsal rhizotomy/baclofen pumps)
Surgical treatment of vascular malformations of the brain and spinal cord
Minimally invasive endoscopic techniques
Frameless stereotactic guidance
Intraoperative mapping to preserve normal brain function

At the Forefront of Research

The surgical team is pushing forward the frontiers of pediatric neurosurgery through its active clinical and translational research programs to develop novel treatment approaches for pediatric brain tumors and head trauma and new non-invasive surgical approaches for the treatment of epilepsy.

Most recently, Nicklaus Children’s became only the third site in North America involved in a Phase I clinical trial studying the role of a new technology called low-frequency focused ultrasound (LoFU) in the care of children with DIPG, a lethal type of brain tumor that forms within the brainstem.

To learn more about the Phase I clinical study click here.

Our Team of Experts

The Division of Pediatric Neurosurgery is led by a team of renowned pediatric neurosurgeons who are recognized for excellence among their peers based upon their surgical expertise, their numerous publications in textbooks and peer-reviewed journals, and their lectures both nationally and internationally.

Next-Generation Neurosurgical Suite

Neurosurgeries are conducted in a state-of-the-art neurosurgical suite equipped with advanced neuro-navigation systems.This leading-edge suite provides enhanced efficiency and safety for neurosurgical services and offers a venue for expanded neurosurgical procedures, including functional surgery for epilepsy and movement disorders, and a platform for advanced neuroimaging research. Technologies include:

ROSA ONE^® Robotic system
Intraoperative MRI
Stealth Navigation

Pediatric Ophthalmology

Ophthalmologic care for even the youngest patients.

Phone: 1-888-624-2778

The Division of Ophthalmology at Nicklaus Children's Hospital offers a full range of ophthalmic and optical services for children and young adults to the age of 21 years as well as adult strabismus (deviation of the eyes).

In addition, the care team provides treatment for a full range of pediatric ophthalmic conditions, including:

Evaluation for vision problems (refractive errors)
Medical and surgical problems of infantile and childhood strabismus
Nasolacrimal duct obstructions
Ptosis (droopiness of the lids)
Retinopathy of prematurity
Severe facial injuries

Specialized services include:

Ultrasonography of the eye
Visual field testing in kinetic and static modalities
Fundus photography
Surgical interventions when indicated
Provision of special lenses to support children with eye anomalies

Pediatric Orthopedic, Sports Medicine & Spine Institute

South Florida's Top-Ranked Hospital for Pediatric Orthopedic Care

Phone: 305-662-8366

Children have different orthopedic needs than adults. They often require specialized care and recover best in facilities designed specially for them. That’s why Nicklaus Children’s Hospital is comprised of surgeons, advanced practice professionals, radiologists, and anesthesiologists who specialize exclusively in the care of children. The Orthopedic, Sports Health and Spine Institute focuses on the treatment and management of musculoskeletal conditions in children. No matter what service your child needs, we strive to create an environment that is comfortable and safe for them.

Pediatric Orthopedic Programs and Services

Orthopedics for Kids: Treatments and Procedures

Bridge Enhanced ACL Restoration

The Orthopedics, Sports Medicine and Spine Institute at Nicklaus Children’s now offers bridge enhanced ACL restoration (BEAR implant) for patients in need of ACL reconstruction surgery. This procedure, for those who qualify, involves the placement of an implant that enables the ACL to heal itself over time, rather than traditional surgery that involves replacing the ACL.

A Leader in Children’s Orthopedics

Our institute is nationally recognized by U.S. News & World Report as one of the best children’s orthopedic programs available. Our pediatric orthopedics department was one of six initial sectors established during our founding in 1950. In fact, it was an orthopedic surgeon who was responsible for the hospital’s creation.

Today, our team consists of highly trained and bilingual orthopedic technicians, physician assistants, nurse practitioners and nurse coordinators, support personnel, residents, and fellows. Our physicians perform over 1,400 surgical procedures each year while the pediatric orthopedic surgery department facilitates an additional 34,000 outpatient visits annually.

When You Need Us: Orthopedic Treatment Offered in Locations Throughout South Florida

The Orthopedic, Sports Medicine and Spine Institute is comprised of a dedicated team of orthopedic surgeons, specialists and advanced practice professionals specialized in pediatric orthopedic care, fracture care, sports injury management, and other pediatric needs. The team offers timely appointments for acute sports injuries and fracture care in over 6 locations throughout Miami-Dade, Broward, and Palm Beach counties.

For after-hours care when are the orthopedic clinics are closed, Nicklaus Children’s pediatric urgent care facilities, South Florida’s only pediatric urgent care centers exclusively for kids, are open from 11 a.m. to 10 p.m., and to evaluate, diagnose and treat children and adolescents under age 21 with minor injuries and fractures. Follow up care is then offered within the week with an orthopedic specialist at one of our 6 community-based locations throughout Miami-Dade, Broward, and Palm Beach counties.

The Miguel "Mike" B. Fernandez Family Pediatric Trauma Center at Nicklaus Children's Hospital Emergency Department, home of only two freestanding pediatric trauma centers in the state of Florida and the only freestanding pediatric trauma center in South Florida, also offers emergency orthopedic care open 24 hours.

At Nicklaus Children’s, families can count on the peace of mind that their child receives expert pediatric orthopedic care, wherever they are, whenever they need it, because here is where children matter most.

To schedule an appointment with a pediatric orthopedic specialist, please call 305-662-8366.

Pediatric Hospital Medicine (Hospitalist)

Personalized care from our team of attending hospitalists.

Phone: 305-668-5500

While your child is at Nicklaus Children's Hospital, he or she will be in the care of a member of the Hospital Medicine (Hospitalist) Team . All members of the hospitalist team are certified by the American Board of Pediatrics and hold faculty appointments as clinical assistant professors at the Florida International University, Herbert Wertheim College of Medicine.

During your stay, the attending pediatric hospitalist will coordinate a group of subspecialties, nurses, social workers and other healthcare providers. He or she will be in contact with your child's primary pediatrician to review and update your child’s medical plan of care. After your child is discharged, the pediatric hospitalist will report to your child's primary pediatrician and a discharge summary will be sent to assure a seamless transition of care to the outpatient setting.

Collaborating and partnering with your pediatrician

Pediatric hospitalists are board certified pediatricians who specialize in the care of hospitalized children. They support the referring Primary Care Physicians (PCP) in delivering optimal and quality care to children admitted to the hospital.

What can I expect from the hospitalists?

During admission: During the first few hours in the hospital, a pediatric hospitalist will meet with the family, examine your child and set the plan of care.

During the hospitalization: The hospitalist will visit your child daily to assess his/her progress and adjust the plan of care as needed. With the family’s consent, daily Patient and Family Centered Care Rounds will be performed. The attending hospitalist supervises medical students and pediatric residents who are members of our healthcare team.

At discharge: The hospitalist will direct the process of providing the care givers clear and understandable discharge instructions. It is important that all written and verbal instructions provided at the time of discharge are well understood. A discharge summary will be submitted to your child’s Primary Physician to be kept as part of the child's medical record.

Please contact your hospitalist should you have any questions relative to the discharge instructions.

To reach the on-call hospitalist 24 hours a day, seven days a week:

Just call 305-668-5500, Option 1.
Tell the operator you wish to reach the on-call hospitalist.
If the doctor cannot speak with you at that moment, he or she will return your call at the first opportunity.

Children's Plastic Surgery

Dedicated to making a profound impact in the life of a child.

Phone: 1-888-624-2778

When a child is has a deformity, either from birth or as a result of an accident or other medical condition, parents worry about the quality of life their child will have. Concerns about their future are to be expected, as is the desire for comprehensive treatment to remedy the condition.

Pediatric plastic surgery offers a chance to correct anomalies and allow the child to have a normal life. The pediatric plastic surgeons of Nicklaus Children's Hospital have extensive experience with children who have anomalies. They have special training in children's plastic surgery and are all certified by the Board of Pediatrics.

Congenital hand malformations surgery
Orbital and ocular surgery

Craniofacial Center

The Nicklaus Children's Craniofacial Center is committed to providing the best multidisciplinary care for children and families with craniofacial differences. The center will provide comprehensive evaluation and management of all congenital and acquired craniofacial anomalies.

Why Choose Us?

Besides routine types of pediatric plastic surgery, including the treatment of trauma, members of the Plastic Surgery Division have particular expertise in microsurgery, hand surgery, and repair of brachial plexus lesions.

Psychiatry for Children

Compassionate and comprehensive pediatric psychiatric healthcare.

Phone: 305-663-8439

Most children and adolescents pass through their different developmental stages without significant problems. However, for some young people, one or more phases of the transition to adulthood can be difficult, even painful. When this occurs, it can lead to behaviors that may disrupt or threaten the child’s and family’s stability, thus requiring the support of professionals. At times such as these, isn’t it good to know that the experts are close to home at Nicklaus Children's Hospital.

Nicklaus Children's Hospital offers comprehensive pediatric psychiatry services through collaborative care. Our unique therapeutic program reflects this philosophy by utilizing the team approach, involving professionals, child and family to resolve issues.

A confidential consultation with our professional staff of pediatric psychiatrists may be helpful if your child has experienced any of the following problems:

Divorce in the family
Depression
A sudden change in friends or activities
Family conflict and arguments
Childhood fears and anxiety
Low self-esteem or withdrawal from family and friends
Non-conforming gender
Sudden gain or loss in weight
Self-harm
Irritability and anger
Poor school performance or a sudden drop in grades

Your child may be admitted voluntarily requiring parent and child consent or involuntarily at the request of a healthcare professional or law enforcement officer (Baker Act). If admitted involuntarily the admission evaluation can take up to 72 hours by law. During this time you may be asked to sign voluntary admission forms.

Evaluations and Treatments

Admission and Visiting Hours

On admission you will meet the assigned nurse and behavioral health technician who will provide you with in-patient information, including guidelines and policies for the Hagerty Family Behavioral Health Unit.. You will be asked to provide information regarding your child and sign consent forms. A family therapy session will also be scheduled on admission.

Within 24 hours of admission the attending psychiatrist, psychiatric fellow/resident, nurse practitioner, and a therapist will evaluate your child and contact you.

Hagerty Family Behavioral Health Unit Visitation Hours

Daily: 5 p.m. – 7 p.m.

If you have special needs due to your work schedule, please inform your case coordinator or charge nurse so we may best accommodate your request. Visitors are limited to two at a time. Visiting minors need to be escorted by an adult while in the Hagerty Family Behavioral Health Unit. All visits are supervised by staff members.

Adolescent Intensive Outpatient Program

The Intensive Outpatient Program (IOP) at Nicklaus Children’s Hospital is designed to provide intensive treatment for adolescents and their families in a least-restrictive environment. This program is ideal for adolescents transitioning from an inpatient unit or a partial hospitalization program (PHP). IOP is also recommended when traditional outpatient treatment alone is insufficient to improve the patient’s emotional status.

Pediatric Psychology

Compassionate and comprehensive pediatric psychology healthcare.

Phone: 305-669-6503

Nicklaus Children's Hospital is a nationally recognized pediatric specialty hospital that has been treating children for 60 years. Through our experience we have found that the best care is collaborative care. Our unique therapeutic program reflects this philosophy by utilizing the team approach, involving professionals, child and family to resolve issues.

A confidential consultation with our professional staff of Pediatric Psychologists and Psychiatrist may be helpful if your child has experienced any of the following problems:

Divorce in the family
Depression
A sudden change in friends or activities
Family Conflict and arguments
Childhood fears and anxiety
Low self-esteem or withdrawal from family and friends
Sudden gain or loss in weight
Irritability and anger
Poor school performance or a sudden drop in grades

Treatments and Therapies

Outpatient Services

The outpatient program offers a full array of diagnostic and treatment services for children and adolescents ages 6 to18 with behavioral, social and/or emotional problems. These services may be extended to parents when appropriate. Services include psychiatric medication management, psychological and psychoeducational assessments, individual psychotherapy, family therapy, parent therapy and topic-specific group psychotherapy.

Referrals may be initiated by mental health professionals, physicians, community agencies, clergy, schools or family members. Pre-admission information about the services, verification of insurance benefits and an intake interview are offered without charge.

Pediatric Pulmonology

Dedicated to the treatment and care of pediatric respiratory conditions.

Phone:

Nicklaus Children's Pulmonology Division evaluates and treats all kinds of respiratory diseases in children, including asthma, chronic lung diseases, cystic fibrosis, pneumonia and tuberculosis. The Division is strongly committed to a multidisciplinary approach to pediatric pulmonary medicine. Staff members systematically consult with hospital specialists in gastroenterology, radiology, dietetics, speech pathology and occupational therapy to treat respiratory diseases in children.

Ventilation-Assisted Children's Center (VACC)

The pediatric pulmonology program's Ventilation-Assisted Childrens Center (VACC) applies a similar multidisciplinary approach to the management of its tracheostomy-dependent, oxygen dependent and ventilator-dependent patients. Ventilation-assisted children rely on the developments of biomedical technology to sustain their lives: all have tracheostomies, some require oxygen and others must be fed by gastrostomy tube.

As life-support technology becomes more portable and research data clearly show that these children thrive best in a supportive home environment, more and more are discharged from the hospital into the care of their families. The resulting stress on family members is often severe. Even with the help of professional home care resources, parents must maintain sophisticated equipment and function as nurses and respiratory therapists for the child, providing round-the-clock medical attention.

Recognizing this family-debilitating stress, Dr. Moises Simpser established a VACC Camp to alleviate the problem. Unlike other summer camps, the VACC Camp is for entire families. VACC Camp strives to expand both the child's and family's perception of the possibilities for social, educational and physical growth within a technology-dependent lifestyle.

Children's Radiology

Experts in pediatric radiology for over six decades.

Phone: 786-624-3283

The Department of Radiology at Nicklaus Children's Hospital is an exclusive pediatric radiology facility. We have been imaging children since 1950; constantly providing state-of-the art equipment and staff that is trained and dedicated to the care of infants and children. The department is staffed by specialists in all radiology fields. These experts work together with clinical sub-specialists and attending physicians to support the care of children.

The department's commitment to excellence has led to its establishment as a regional leader for pediatric radiology, serving children throughout Florida as well as the Caribbean, Central America and South America.

Our children's imaging center performed in excess of 140,000 cases last year.

The department offers the latest equipment to support imaging of children, enabling the team to acquire the best quality images with minimal patient exposure to radiation.

Faster Imaging, Less Sedation

In 2020, the hospital became the first pediatric facility in the Southeast to acquire a Siemens Healthineers Biograph Vision™ PET/CT system. This state-of-the art system makes it possible to obtain the highest quality medical images in children in a fraction of the time required from other PET/CT systems. Due to the speed of the imaging process of this system, young patients undergoing studies may require less sedation and in some cases may not need sedation at all.

Pediatric Diagnostic Services

Fast, High-Quality Radiology Imaging Results

At Nicklaus Children's Hospital, all radiological images are acquired, stored and distributed digitally. The department has integrated systems that make it possible for physicians to access images through a secure website; ensuring that results are available to referring doctors with optimal efficiency to support medical care.

A Diagnostic Center of Excellence Accredited by the American College of Radiology

Nicklaus Children’s Hospital is proud to be designated as a Diagnostic Imaging Center of Excellence^® (DICOE) by the American College of Radiology (ACR).

The DICOE program, which represents the pinnacle of medical imaging care, is an achievement that goes beyond accreditation to recognize best-quality imaging practices and diagnostic care. This includes a comprehensive assessment of the entire medical imaging enterprise, including structure and outcomes. The DICOE designation recognizes excellence at multiple levels — including the professional staff, the technology and the policies and procedures the organization follows — and superior patient care.

Pediatric Rehabilitation Services

The best rehab choice for the children in your care

Phone: 1-877-255-8437

When a young child has a developmental delay, early intervention is key to the best possible outcome. A "wait and see" response to observed delays can lead to missed opportunities that adversely affect a child's growth, development and potential.

Rehab Designed for the Unique Needs of Children

At Nicklaus Children's Hospital we offer a full range of bilingual diagnostic and therapeutic services to meet the needs of infants, children and adolescents. All pediatric rehabilitation services are provided by a team of professionals who focus on the medical, therapeutic and educational needs of the child and family.

Nicklaus Children's Hospital rehabilitative program includes both inpatient services offered to patients in the hospital’s neonatal, pediatric and cardiac intensive care units as well as outpatient care available at the hospital’s main campus and other South Florida locations.

A Select Team of Rehab Specialists

The first step in rehabilitating a child is to provide a team of pediatric rehabilitation specialists who understand the physical, emotional and psychological needs of children and their families at varying stages of life. The entire team has advanced training in meeting children's specialized needs, as well as how best to engage them in the rehabilitative process. The specialists include:

After a comprehensive evaluation, a treatment plan is developed with the child’s family to enable patients to achieve maximum functional levels as quickly as possible. Our team is dedicated to provide children with the best opportunity to improve their daily function, level of independence and quality of life.

Therapeutical Treatments and Services

Auditory Processing Disorders Evaluations
Aquatic Therapy
Bone Anchored Hearing Aids
Brain Injury/Concussion Evaluation
Brachial-Plexus Evaluation and Treatment
Cognitive Behavioral Intervention for Tics (CBIT)
Constraint Induced Movement Therapy
Feeding and Swallowing Therapy
Feeding and Swallowing Therapy with Vital Stimulation
Fiberoptic Endoscopic Evaluation of Swallowing (FEES)
Fluency Evaluation and Treatment
Gait Lab
Hand Therapy
Interactive Metronome
Nasopharyngoscopy with Endoscope Evaluations
Orthopedic/Sports Medicine
Serial Casting
Simi Motion Analysis
Voice Evaluation and Therapy
Voice Therapy with Instrumentation
Videofluoroscopy Study of Velopharyngeal Function During Speech
Wheelchair/ Seating Assesments (Wheelchair Clinic)
Wound Care Evaluation and Treatment

Scheduling Rehab Services

In order to begin rehabilitation services at NCH, each child requires a current, comprehensive evaluation, based on the children's individual needs, diagnosis, and age. To begin this process and to schedule an initial evaluation please use the link below.

What to expect before your rehab evaluation is scheduled:

Prior to your child’s evaluation, please complete the mobile pre-registration and clinical documentation, which you will receive via text message.

Please ensure that you have provided the best mobile phone number, for all future communications (scheduling updates, appointment confirmations).
o It is important to complete all documents within the mobile registration prior to the appointment to avoid delays. Anything not completed may delay your appointment.

Please upload the following documentation, using the mobile registration, necessary for your appointment:

A valid rehab prescription, dated within 60 days from your appointment date.
Audiology prescription is valid for 1 year.
Photo ID
Insurance card

Any additional documentation related to your child’s condition will be helpful for this rehab evaluation, i.e. school IEP, Early Steps documents, prior rehab evaluations as applicable, post-surgical protocols/restrictions.

• Please be mindful of your evaluation time and arrive 30 minutes prior to the appointment for parking and registration.

What to expect at your rehab evaluation:

An evaluation can last up to two hours, depending on the specialty service.
Please have your child wear comfortable clothing, as they may be asked to perform physical activities, depending on specialty service.
Please note, a parent/legal guardian MUST be present if the child is under 18 years old. If the parent/legal guardian is unable to bring the child to the evaluation, a signed authorization to accompany minor patient in absence of parent/guardian is required.

What to expect after your rehab evaluation:

The completion of the written evaluation and plan of care (POC) documentation can take up to 7 business days.
Our team sends the POC to the referring physician for signature.
Once signed POC is received, the authorization team will verify and share financial responsibility.
If therapy is recommended, a staff member will call to coordinate therapy sessions.

Tracking Rehabilitative Advancement through Accountable Care (TRAAC)

Nicklaus Children's therapists use an episodic service delivery model known as TRAAC to create an individual plan of care to meet each child'sunique needs. TRAAC provides guidelines for determining duration, type and frequency of treatment based on age, diagnosis and historic information (medical, previous treatments and history). All members of the team –parents, caregivers, teachers and therapists– work together to identify therapy goals and assess progress.

Accepted by Most Commercial Insurance Plans

Nicklaus Children's rehabilitative services are covered by most commercial insurance plans, including:

Aetna (commercial)
Ambetter
AVMED – Non-par with Jackson Select (JHS/JRP), first choice, LFP Premier, Entrust (Avmed Federal Marketplace Plan)
BCBS Florida and Out of State – Non-par W/ Blue Select (can be seen with out of network benefits ONLY)
Cigna – Non-par with Federal Exchange & EPO CONNECT
Golden Rule
Humana HMO
Medicaid of Florida
Oxford
Amerihealth Caritas Medicaid
Sunshine Medicaid
Tricare
United Medicaid (only accepted depending on diagnosis)
United Healthcare Commercial
United Bind
United Healthcare (Neighborhood Health Plan)
UMR
Vivida Health Plan

Medicaid Plans that Cover Treatment at Palm Beach Gardens Location Only:

Community Care Plan Medicaid
Simply Medicaid & Healthy Kids
Humana Medicaid

Pediatric Rheumatology

Rheumatology experts dedicated to infants, children and adolescents.

Phone: 1-888-624-2778

Founded in 1989, the Division of Pediatric Rheumatology is the largest pediatric program in South Florida providing comprehensive, multidisciplinary diagnosis, treatment and support for families whose children suffer from the following types of disorders:

We also offer treatment for the following:

Fibromyalgia

Because many of these conditions are difficult to diagnose, the Division of Pediatric Rheumatology can draw on the expertise of the many specialists at Nicklaus Children's Hospital. More than 5,000 patients visit the division each year, and our specialists work closely with referring physicians from the community.

A Team Approach

The division's interdisciplinary team includes:

The team also helps to teach the child and family about controlling these chronic diseases and achieving a high quality of life.

Through the hospital's Research Institute, the division of pediatric rheumatology is involved in ongoing studies on juvenile rheumatoid arthritis, dermatomyositis and other conditions, including clinical trials of medications. The division's faculty also teach medical residents and students through rotations and conferences.

Program Highlights

A typical program for children suffering from juvenile arthritis or related disorders includes:

Joint protection. Children learn the importance of good posture, energy conservation and use of assistive devices to minimize stress on joints.
Exercise. The center's team develops an individualized exercise programs and physical activity guide for the child.
Pain management. Both the child and family members learn new ways to control pain and deal with the associated stresses of daily living.
Nutrition. A balanced diet is developed with recommendations for supplements if indicated. Parents receive advice on coping with other dietary problems, such as a child who is a finicky eater.
School issues. Parents are assisted in educating teachers about childhood arthritis and developing a plan that allows the child to flexibility in learning and adaptation for his or her needs.
Medications. Extensive orientation is given to the parents and children about the proper use and side effects of the drugs and treatment of the rheumatic conditions.
Networking. For parents, the Division of Pediatric Rheumatology also provides numerous support services, including opportunities to meet and network with other families.

Camp Funrise

Camp Funrise was a weeklong annual sleepover camp for patients with rheumatologic conditions. Camp Funrise provided a week of joy to children for 26 years, from 1991 until 2017, thanks to the support of the Division of Rheumatology at Nicklaus Children’s Hospital, the Florida Chapter of the Arthritis Foundation and the Lions Club of South Florida. Under the supervision of nurses and medical staff of the Division of Rheumatology, the campers were able to participate in typical camp activities within a safe and caring environment. Activities included swimming with the Dolphins, kick boxing, yoga and a night out to the baseball park.

School Health Programs

Bringing pediatric healthcare to children in our community.

Phone: 786-624-3296

Medical Outreach to Serve Those in Need

Nicklaus Children’s Hospital provides medical outreach through a variety of programs to bring healthcare to children in need.

School-Based Programs

Together with The Children's Trust, Miami-Dade County Health Department and MDCPS, Nicklaus Children's provides nursing services in 75 M-DCPS campus locations, where the school population is underserved.

This program brings registered nurses, licensed practical nurses, nurse practitioners, licensed social workers and mental health therapists to more than 55,401 students, with the goal to decrease absenteeism and improve health outcomes for the students in our community. The program also ensures children without a pediatrician are assigned one.

Schools Serviced

The map below highlights the 13 schools that have partnered with the The Children's Trust (green icons) and the 62 schools which are partnered with the Department of Health and the school district (yellow icons).

Services include:

Basic List:

Health Screenings
Health promotion
School Physicals
Vaccinations
Chronic Disease Management
Mental Health Support
Health Education
First Aid and Emergency Care
Telehealth Services

Expanded List:

EXPAND TO SEE ALL AVAILABLE HEALTH SERVICES

Health Screenings

Vision and hearing tests
Growth and development assessments
Scoliosis screenings
Dental Screenings and fluoride varnish application
Immunization checks
Blood pressure checks

School Physicals

Comprehensive physical exams for sports and school requirements

Vaccinations
Administration of required and recommended immunizations including:

DTaP (Diphtheria, Tetanus, and Pertussis)
MMR (Measles, Mumps, and Rubella)
Polio (IPV) (Inactivated Poliovirus Vaccine)
Hepatitis B
Varicella (Chickenpox)
Tdap (Tetanus, Diphtheria, and Pertussis booster)
HPV (Human Papillomavirus) – recommended for certain grades
Influenza (annually recommended)

Chronic Disease Management

Asthma management and education
Diabetes care and monitoring
Allergy management and anaphylaxis response
Seizure management and support
Medication administration and management
Development of Individualized Health Plans (IHPs)
Coordination with healthcare providers and families
Health education for students and staff on chronic conditions
Emergency response planning for chronic illnesses

Mental Health Support

Counseling services
Crisis intervention
Social-emotional learning programs

Health Education

Nutrition and wellness education
Substance abuse prevention
Sexual health education
Stress management and coping strategies workshops
Mental health awareness campaigns
Personal hygiene and sanitation
Understanding and managing chronic conditions (e.g., asthma, diabetes)
First aid and emergency response
Sun safety and skin protection
Water safety and drowning prevention

· First Aid and Emergency Care

Certify school staff in CPR and first aid
Immediate care for injuries and illnesses
Emergency response planning

· Telehealth Services

Virtual consultations with healthcare professionals
Remote monitoring and support for chronic conditions
Access to mental health services via telecommunication

Vaccine Request Form

Below is a list of vaccine-preventable diseases:

Community Immunizations

Pediatric Otolaryngology (ENT)

The number one ENT center in South Florida for pediatric surgery to remove adenoids and tonsils.

Phone: 1-888-624-2778

The Division of Otolaryngology at Nicklaus Children's Hospital, provides far more than routine health care for children with minor ear, nose and throat (ENT) problems. The physicians of the Otolaryngology division perform comprehensive services in a wide range of areas.

Ear, nose, throat, head and neck problems are a common occurrence in children of all ages. Besides the treatment of various disorders, the Division of Otolaryngology provides ongoing medical supervision, education and support that continues even after treatment. Medical and surgical interventions are available when necessary.

Our highly-skilled and experienced surgeons not only treat the typical or recurring pediatric otolaryngology problems, they also evaluate and treat facial trauma, provide assistance in overcoming the numerous otolaryngologic manifestations of cystic fibrosis, evaluate and treat head and neck tumors and evaluate and treat complex airway problems.

Airway Disorders Program
Craniofacial Otolaryngology
Otology
Disorders of the Facial Nerve and Skull Base Surgery
Speech and Voice Evaluation

Why Choose Nicklaus Children's ENT?

You want the best and most experienced team when your child requires medical care or surgery. Here’s why you should choose Nicklaus Children’s:

We are the number one center in South Florida for surgery to remove adenoids (adenoidectomy) and tonsils (tonsillectomy).
We have four of the Top 10 pediatric otolaryngology/ENT surgeons in South Florida.*
Our team performed 52% of all the pediatric (0-21 years of age) adenoidectomy and tonsillectomy surgeries in South Florida (Broward, Collier, Lee, Miami-Dade, Monroe and Palm Beach counties) last year.*
Adenoidectomies and tonsillectomies comprise 54% of all the otolaryngology/ENT surgeries conducted at a Nicklaus Children’s facility.**

*Agency for Health Care Administration (AHCA) data Q1-Q3 2017; this data has been annualized for analysis purposes. **As defined by the total number of surgeries performed at Nicklaus Children’s Hospital in 2017.

Make Appointment

Pediatric Critical Care Medicine

Life-saving care for our most critical ill and injured patients.

Phone: (305) 669-5818

Pediatric Critical Care Medicine (PCCM) practices a collaborative multidisciplinary care model. Care is provided by the intensivist, the critical care team, the primary medical or surgical specialty attending, and our expert consultants. The PCCM service provides primary care to most non-surgical patients and conjoint care to all trauma and surgical patients.

The Division of Pediatric Critical Care Medicine strives to offer:

Life-saving monitoring and treatment for critically ill children, utilizing the most advanced therapies and technologies
The best possible care in a multidisciplinary, family-centered environment that is respectful of individual family needs
Education of current and future generations of clinicians and researchers in the field of Pediatric Critical Care Medicine
Basic and clinical translational research in order to evaluate new methods of monitoring and therapy for patients

Pediatric Critical Care Therapies

Nitric oxide
Continuous video-EEG recording

PICU Team

The Pediatric Intensive Care Unit is staffed by highly experienced board-certified pediatric intensivists from the Division of Pediatric Critical Care Medicine. The PICU team also includes critical care nurses, pediatric critical care fellows, pediatric residents, respiratory therapists, pharmacologists, nutritionists, occupational and physical therapists, biomedical engineers and other allied health personnel. In addition, experienced social workers, chaplains, ethicists, child life specialists and family representatives provide support to critically ill children and their families, in our family centered care environment.

Pediatric Rapid Response Team

The Pediatric Rapid Response Team at Nicklaus Children's Hospital is aimed at improving patient outcomes in children in critical conditions before a child goes into cardiac arrest. This experienced rapid response clinical team works with the goal of identifying when a patient is at risk for cardiac arrest, and taking steps to prevent cardiac arrest in children from occurring.

Pediatric Sports Medicine Program

Florida's Top-Ranked Hospital for Pediatric Orthopedic Care

Phone: 1-855-624-7778

Part of the Nicklaus Children’s Hospital Orthopedic, Sports Medicine & Spine Institute, the Sports Health Program is fast becoming one of the premier programs of its kind in the nation, combining state-of-the-art diagnostics and screening with a multidisciplinary team of pediatric sports medicine doctors for elite, intermediate, beginner and special needs athletes.

Bringing together the region’s top pediatric orthopedists, neurologists, cardiologists, nutritionists, physical therapists, and athletic trainers – our comprehensive program is dedicated to enhancing young athletes’ sports performance through a focus on injury prevention, performance optimization and individualized injury management. Whether your child is competing as an elite athlete at a national level or just loves to run in the park, our holistic, specialized program will help them achieve their personal health and fitness goals.

Performance Programs

Youth Athletic Development

Our youth athletic development program is not only a path for the aspiring elite athletes; it’s an approach to physical activity and development for every child. Emphasis is placed on a safe progression of exercises that will improve the participants: strength, physical literacy and motor skills.

Bridge Enhanced ACL Restoration

Sports Health App

Download the Nicklaus Children’s Hospital Sports Health App today to plan and schedule your injury prevention, performance training and fitness classes.
From this mobile App you can view class schedules, sign-up for classes, view ongoing promotions, as well as view the locations and contact information. You can also click through to our social pages. Optimize your time and maximize the convenience of signing up for classes from your device!

A Team Approach to Children's Sports Healthcare

Our Pediatric Sports Medicine Team brings together some of the region’s top specialists to focus on enhancing young athletes’ sports performance through a focus on injury prevention, performance optimization, post-injury rehabilitation and return to safe play participation.

Orthopedists and orthopedic surgeons specializing in sports medicine for the growing athlete, including both surgical and nonsurgical treatments.
Cardiac care experts to assess heart function and metabolics.
Concussion care experts to evaluate, treat and monitor head injuries.
Occupational and physical therapists at numerous South Florida locations to ensure optimal recovery, and optimize movement mechanics to prevent injury and reduce the risk of re-injury.
Athletic Trainers to support individual athletes and sports teams in injury prevention and performance optimization.
Nutritional experts to help maximize performance through nutritional evaluation, education and guidance.

Sports we Specialize in

Baseball/Softball
Basketball
Dance
Football/Lacrosse
Gymnastics
Running
Soccer
Swimming
Tennis
Volleyball

Pediatric General Surgery & Surgeons

Expert surgical care for infants, children and adolescents.

Phone:

Parents want the very best for their children and work hard to make good choices on a young one's behalf. When choosing a pediatric surgeon, look no further than the pediatric surgery specialists at Nicklaus Children's Hospital, the region's only licensed specialty hospital exclusively for children.

As a representation of Nicklaus Children's unwavering commitment to prioritizing pediatric healthcare, the Kenneth C. Griffin Surgical Tower has been built to replace the existing operating rooms. The Griffin Surgical Tower is named for philanthropist Ken Griffin, Founder and CEO of Citadel and Founder of Griffin Catalyst, who made a transformational $25 million gift to support the tower. The new five-story, 131,000-square-foot tower elevates the hospital's surgical care offerings in an environment that caters to the patient experience combined with leading-edge technology to ensure children and adolescents don’t have to leave South Florida for expert pediatric surgical care.

The Nicklaus Children's Hospital pediatric surgery team is among the most experienced in Florida, performing thousands of major and minor procedures annually. The team also provides consultation and care of pediatric surgical patients presenting in the hospital's Emergency Department and pediatric trauma center. The practice also works together with the Department of Pediatric Critical Care Medicine to provide pre- and post-operative medical attention for patients in need of intensive care.

In addition, the hospital's pediatric surgeons provide training for pediatric surgical fellows, medical students and medical residents.

All members of our team understand pain issues in children and are available to assist with pain management appropriately and as quickly as possible.

Up-To-Date Pediatric Surgical Techniques

The department offers the most up-to-date techniques for all types of surgery on newborns, children and adolescents. They provide care for a variety of conditions including but not limited to:

Complex neonatal congenital anomalies, including:

esophageal and intestinal atresias
pulmonary and diaphragmatic anomalies
abdominal wall defects (onphalocele and gastroschisis)
intestinal malrotation
genitourinary anomalies

General pediatric surgery, including:

pediatric inguinal hernias
hydroceles
umbilical hernias
undescended testicles (cryptochidism)
lumps and bumps
circumcision
laparoscopic cholecystectomy.

Thoracic surgery (conditions affecting the chest), including:

resection of pulmonary anomalies
repair of pectus excavatum and carinatum
thoracoscopy for empyema
lung biopsies
wedge lung resections
resection of mediastinal tumors

Surgical oncology, including:

diagnosis and surgical management of solid cancerous tumors and vascular access for chemotherapy of these patients.
Emergency surgical procedures, including: appendicitis, testicular torsion and trauma.
Minimally invasive surgical procedures, including: laparoscopy, thoracoscopy, esophageal endoscopy and bronchial endoscopy.

Surgical Medical Breakthroughs

The Department of Pediatric Surgery at Nicklaus Children's Hospital has been involved in numerous regional medical breakthroughs.

The surgeons participated in the separation of conjoined twins in 2000, the first procedure of this type at Nicklaus Children's Hospital and the only successful separation in the state of Florida. Our pediatric surgical team pioneered an innovative surgical treatment for pectus excavatum (sunken chest), becoming the lead team for this procedure in South Florida.

The surgeons have also been instrumental in new surgical procedures for the treatment of appendicitis which leaves no visible scar. The practice was recently ranked number one in the nation by Children’s Health Corporation of America (CHCA) in the care of appendicitis (the most common childhood emergency) among 40 participating children’s hospitals. The results from the study included both patient outcomes and hospital length of stay.

Preparing the Patient and Family

In order to ensure that the child and family are well prepared for the surgical procedure, the pediatric surgery team recommends that all surgical patients participate in a presurgical orientation.

Family-Centered Care

Nicklaus Children's Hospital's approach to pediatric care involves the patient and the patient’s family, the entire medical and nursing team, and an extensive support system including Child Life specialists, social workers, volunteers, "doctor" clowns, dog therapy volunteers, magicians, and more. These invaluable team members help to make the experience as pleasant as possible for all surgical patients and their families.

Pediatric Urology

Dedicated to the latest innovations in pediatric urology.

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The Nicklaus Children's Hospital Division of Urology and Urologic Surgery provides consultation and surgery to pediatric and adolescent patients with disorders of the genital tract and urinary system.

Nicklaus Children's Division of Urology and Urologic Surgery, established in 1998, has become a reference center for Latin America and the Caribbean for complex reconstructive conditions.

We offer treatment for the following:

Pediatric Oncology and Hematology

Where groundbreaking pediatric cancer research meets world-class compassionate care.

Phone: 786-624-5430

The Helen & Jacob Shaham Cancer & Blood Disorders Institute at Nicklaus Children's Hospital is transforming pediatric cancer care to make sure no child has to leave Florida for leading-edge cancer treatment.

Our specialists provide state-of-the-art medical and surgical care for more pediatric cancer patients than any other facility in South Florida, leading the way through investments in groundbreaking research focused on new cures, treatments and diagnostic procedures.

We are recognized for our holistic treatment approach that places the child and family at the center of a highly coordinated network. Our pediatric oncology and hematology specialists work together to anticipate and meet the needs of the child and family throughout the treatment and follow-up process.

Pediatric Cancer Comprehensive Programs and Services

Support Services for Patients and Families

Cancer Treatments and Procedures

Helen and Jacob Shaham Donor Profile: Dedicated to Fighting Pediatric Cancer

Cancer is a devastating diagnosis, but it is particularly challenging for children and their families. Each year, almost 16,000 children and adolescents are diagnosed with cancer in the U.S., hundreds of them here in Florida, according to the American Childhood Cancer Organization.

South Florida philanthropists Helen and Jacob Shaham made a generous gift to Nicklaus Children's Hopsital with the hope of advancing the treatment of cancer and hematologic diseases in kids across the region. In their honor, the Helen & Jacob Shaham Cancer & Blood Disorders Institute at Nicklaus Children's Hospital now bears their name.

Driving Breakthroughs in Cancer Research

Research is the backbone of the Shaham Cancer & Blood Disorders Institute at Nicklaus Children's Hospital, making us the region's leader for the diagnosis and treatment of pediatric cancer and blood disorders. The Shaham Cancer & Blood Disorders Institute offers a variety of clinical trials, and we have access to the latest national and international research data, treatment protocols, and drug therapies.

We are engaged in more than 40 clinical studies in the fight against pediatric cancer and have been recognized as a full member of the prestigious Children's Oncology Group (COG), a nationally funded consortium of pioneering physicians and institutions.

Blood & Marrow Transplantation Program

33 Years of Excellence Our hallmark Blood and Marrow Transplantation Program at Nicklaus Children's Hospital is celebrating its 33th anniversary this year as South Florida's first and most experienced children's cancer center. Since the program was founded in 1991, we have performed over 400+ transplants with the best outcomes in the region.

For International Patients

Nicklaus Children's Global Health Department coordinates care for international patients. Connect with a member of our multilingual concierge staff today. Call us at 1-888-797-6010 or click below to learn more about our services.

Michael's Story with Pediatric Cancer

Children's Dermatology

Specialized treatment of all skin diseases and disorders in infants, children, and adolescents.

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The Division of Dermatology at Nicklaus Children's Hospital, focuses on the latest medications and technology available for the specialized treatment of all skin diseases and disorders in infants, children, adolescents and young adults.

Multidisciplinary Programs

The International Birthmark Institute

Dermatologic Treatments and Procedures

Acne surgery, acne glycolic acid peels
Cryosurgery for the destruction of warts, actinic keratoses, seborrheic keratoses
Curretage of molluscum contagiosum
Electrodessication for the destruction of warts, irritated seborrheic keratoses, pyogenic granuloma
Excision of acne scars, irritated cysts and nevus sebacei, localized epidermal nevi and skin cancers
Excisions of atypical and irritated nevi and congenital nevi
Incision and drainage of abcesses
Intralesional corticosteroid treatment of acne cysts, alopecia areata, keloids
Medical management with propranolol, oral/intralesional corticosteroids
Patch testing for allergic contact dermatitis
Phototherapy (UVB) for psoriasis, and severe eczema
Skin punch and shave biopsies
Smart Peel (micro demabrasion), blue light treatments
Topical treatment with Aldara
Cosmetic Procedures (Botox, Restylan, Sculptra, Fraxel Laser)

As a service to the community, the Division of Dermatology is pleased to offer an annual skin cancer-screening program each May. Participants are offered a complete skin examination for the early detection of squamous cell carcinomas as well as basal cell carcinomas and melanomas. This screening is free of charge and is open to members of the community.

Laser Surgery Center

The Laser Center sees an ever-increasing number of patients who seek treatment of their port-wine stains, angiomas, superficial hemangiomas, hypertrophic scars, and warts with the vascular dye laser. Using the ultra-pulsed CO2 laser for the treatment of epidermal nevi, angiofibromas, nevus sebacei which are extensive can be accomplished with minimal scars. Patients with Nevus of Ito and Ota, as well as tattoo patients, are treated with the Q-switched yag laser with the expected excellent results.

Vascular dye laser for port wine stains, ulcerated cavernous hemangiomas, pyogenic granulomas, telangiectasias, cherry angiomas, capillary hemangiomas, keloids, hypertrophic scars, and warts.
Laser hair removal
Laser tattoo removal
Ultrapulse CO2 Laser for removal of epidermal nevi
Topical PUVA for treatment of vitiligo

Lasers offered:

Candela Vbeam Perfecta (pulsed dye laser)
Candela Gentlelase (Alexandrite laser for recalcitrant lesions)
FRAXEL (for residual scarring)

Cosmetic Procedures Offered

Botox
Restylane
Sculptra
Fraxel Laser

Inpatient Dermatology Services

Treatment of more severe skin conditions including severe atopic dermatitis, psoriasis, curtaneous infection, TEN, SJS, SSSS, etc.; specialized dermatologic nursing care on 3 South; and whirlpool therapy for severe skin infections, eczema, psoriasis, leg ulcers.

Operating Room services for larger surgical cases, including excision of congenital nevi, cysts, and the treatment of extensive port wine stains and particularly those involving the periorbital area.

Consultation Service covering the emergency room, wards, PICU, NICU, OPC.

Department of Pediatric Food and Nutrition

Our certified pediatric nutrition specialists provide top-notch nutrition assessments for every patient.

Phone: 1-877-624-8413

The Nicklaus Children's Hospital Food and Nutrition Department provides meals, special formulas, and clinical nutrition services to inpatients. The meals prepared and served by the department meet the nutritional requirements of the patients based on the medical and cultural needs and at the same time are appealing to their taste. In addition, the department offers outpatient follow-ups by referral of the medical staff.

Our pediatric nutrition specialists provide top-notch nutrition assessments for every patient. Daily screenings, nutrition counseling, calorie intake assessment and instructions on formula preparation are conducted according to the patient's diagnosis and medical plan.

Every patient at Nicklaus Children's Hospital, both inpatient and outpatient, has access to a pediatric nutrition specialist to address his or her individual needs. All of Nicklaus Children's Dietitians are registered with the Academy of Nutrition and Dietetics (AND), having completed education requirements from the AND, and are licensed in the state of Florida.

Comprehensive Programs and Clinics

Our pediatric nutrition specialists are an integral part of the team in several of our subspecialty programs and clinics. They design special diets unique to each child's condition that support their treatment and recovery process.

Nutritional Treatments

Adequate nutrition for picky eaters
Sports nutrition counseling
Weight management
Vegetarian/vegan diet

Food Services for Patients, Families and Guests

We offer a broad range of food services to meet your every need during your stay. You can choose from our extensive room service menu, various cafés or vending machines that are located throughout the facility. Our friendly staff is here to provide customer service so that your visit with us is more pleasurable. Our "Excellence in Dining" service is an extension of our commitment to providing high quality patient care.

Follow us on Pinterest!

We post delicious, nutritious and simple recipes to share with your kids.

3D Printing and Imaging Laboratory

Pioneering 3D Printing and Imaging in South Florida

Phone: (786) 624-3540

The 3D Printing and Imaging Laboratory (3DPI) at Nicklaus Children’s Hospital was one of the first in its region to bring three-dimensional printing technology to support pre-surgical planning, particularly for patients with complex heart problems.

The 3DPI is able to create 3D models and prints based on special x-rays (for example a CT or CAT scan or MRI) that provide 3-dimensional information. The 3D printer is able to produce an exact replica (model) of a patient’s anatomy from these photos using resins, thermoplastics, photopolymers, or other materials.

Nicklaus was one of the first hospitals to acquire the Stratasys J750, one of the most advanced polymer printers on the market. The J750 has allowed our interdisciplinary team of biomedical engineer and physicians to deliver anatomical models in an array of materials, textures, and colors at a microscopic level resolution. 3D printing has become a valuable resource for the Nicklaus Children’s Hospital Heart Institute where it became standard of care for pre-planning in complex congenital surgical repairs.

In addition to surgical planning, goals of the program are to:

Improve patient and family experience (understanding and confidence) around surgeries
Support education and training in simulation laboratories at Nicklaus and across the region
Demonstrate efficacy of this technology to payors (health insurance providers)
Become a leader in innovation in the 3D modeling space in the region and across the country

Over 2018, the 3DPI program produced over 400 models for surgical planning and education.

Brain Institute

Florida's Top-Ranked Hospital for Pediatric Neurology and Neurosurgery

Phone: 786-624-2381

The brain of a child is not only special, it is unique. It is not simply a small version of the adult brain. During infancy and childhood, more than a billion brain cells develop into highly specialized integrated networks, a critical process that shapes learning and acquisition of skills. This process is complex, making the developing brain particularly vulnerable to neurological disorders. Unfortunately, brain disorders in children are very common and the number of children affected is on the rise nationwide

The Nicklaus Children's Brain Institute was created in 2001, to meet this growing challenge. Our world-renowned team offers families the expert and compassionate care required to help children with brain disorders. Together, these specialists balance safety and efficacy, along with a caring environment, to achieve the best possible outcomes and quality of life for children with neurological conditions.

Contact Us
833-55BRAIN

Nicklaus Children's Hospital is studying the safety and feasibility of magnetic resonance (MR) guided focused ultrasound technology - an incision-free technique- to treat centrally located brain tumors in children and young adults. MR guided focused ultrasound is an approved therapy for adults with essential tremor and Parkinson’s disease. The Nicklaus Children’s Brain Institute project is an investigational device exemption (IDE) study of the use of focused ultrasound for the treatment of benign intracranial tumors in patients between 8 and 22 years of age.

Pediatric Specialty Centers

Pediatric Neurology

The Division of Pediatric Neurology provides comprehensive diagnosis, evaluation and treatment of a wide range of neurological disorders in children at the hospital's main campus and selected outpatient facilities throughout South Florida.

Pediatric Neurosurgery

The Division of Pediatric Neurosurgery at Nicklaus Children's Hospital is the largest pediatric neurosurgical service in Florida and one of the most recognized programs in the country.

At the Forefront of Research

The Brain Institute team is pushing forward the frontiers of pediatric neurosurgery through its active clinical and translational research programs to develop novel treatment approaches for pediatric brain tumors and head trauma and new non-invasive surgical approaches for the treatment of epilepsy.

Accredited by the National Association of Epilepsy Centers

NAEC Level 4 Epilepsy Center

Nicklaus Children's Hospital Comprehensive Epilepsy Center is accredited by the NAEC as a Level 4 epilepsy center. Level 4 epilepsy centers have the professional expertise and facilities to provide the highest-level medical and surgical evaluation and treatment for patients with complex epilepsy.

Expertise and experience second to none

Founded in 2001, Nicklaus Children’s Hospital’s Brain Institute is the nation’s first comprehensive medical program dedicated solely to the care of the developing brain. It brings together world-renowned specialists in numerous pediatric neuroscience subspecialties with cumulative clinical experience unparalleled in the United States. The team fosters integrated research and offers the latest in assessment and treatment for children with disorders of the brain, spinal cord and peripheral nerves.

This leadership and commitment to developing new treatments draws children and families from around the world in search of answers to complex medical questions. Many of the program’s greatest successes are children who could not be helped at other centers.

Since 2008, the program has been ranked among the nation’s top-tier programs for pediatric neurology and neurosurgery by U.S. News & World Report. The clinical and research leadership of the program serves as a beacon to families confronting the uncertainty of a child with a brain disorder, offering the latest treatments and assessment techniques, many of which were developed by the Brain Institute team.

Florida residents enjoy the benefits of world-class care without having to venture beyond the borders of their home state. And children worldwide are facing brighter futures thanks to the Brain Institute’s commitment to advancing frontiers of scientific research and innovative treatment, saving young lives, and improving quality of life and productivity for a lifetime.

Nicklaus Children's Biobank

Offering Hope for Healthier Futures

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The Future of Medicine Begins with You

The Nicklaus Children’s Hospital Biobank offers a unique opportunity for you and others in our community to participate in advancing medical research to benefit the health and well-being of future generations. By contributing a small amount of blood, saliva or other sample, you can join together with Nicklaus Children’s to enhance understanding of the causes of disease and discover more effective treatments and diagnostic methods that can benefit children everywhere, leading to healthier, happier futures.

Join the Nicklaus Children's Biobank

With minimal effort, you and your child will contribute to scientific knowledge that can lead to improvements in healthcare management and treatment for children and lead to brighter tomorrows for young people everywhere. The study of biospecimens can help scientists learn:

How the body works
How disease develops and affects the body
How to treat diseases and conditions

If you are interested in contributing, you will be asked to review and sign an informed consent form allowing the Nicklaus Children’s Biobank to collect an extra sample during the next clinical visit, and/or store samples that are no longer needed for clinical care, along with information in your medical record.

What is a biobank?

A biobank is similar to a library. It holds samples, known as “biospecimens,” that are provided voluntarily by hundreds, sometimes thousands, of individuals. These samples, which can include blood, saliva, tissue, stool or urine, are important to scientists, who study them to learn about elements that affect children’s health.

The Nicklaus Children's Biobank is an essential resource for personalized medicine research efforts, enabling the study of both health and disease over time. Our Biobank collects samples and health information from volunteers, regardless of health history. Once a participant becomes part of the Biobank, he or she contributes to ongoing health research.

Rare and Undiagnosed Diseases

Utilizing advanced genomics to end diagnostic delays and improve the quality of care for children with rare diseases.

Phone: (786) 624-3540

How are we using Advanced Genomics?

Nicklaus Children’s Hospital is one of the first hospitals in the country to pilot whole genome sequencing (WGS) as a new standard of care. Nicklaus Children’s is proud to partner with Rady Children’s Institute of Genomic Medicine to offer WGS to children where traditional genetic testing may not yield an answer. Many families have benefitted from the diagnostic power of WGS, which can often yield answers for some of our most medically complex cases.

How is WGS performed?

The human genome contains approximately 30,000 genes. WGS analyzes the entire genome and identifies variants that are more likely to be associated with a child’s condition. Scientists at Rady Children’s then interpret this data, comparing variants to those that have been identified in scientific literature that may explain the child’s illness. Our multi-disciplinary clinical team is able to use these clinical results to determine potential changes in medical treatment, offering a tailored care approach for each patient.

Who can benefit from WGS?

WGS is being used in two settings at Nicklaus Children’s. We are one of the few hospitals in the country to offer rapid WGS (rWGS). rWGS is an accelerated test, yielding clinical results in as little as 72 hours, depending on the case. This select test is offered in our three intensive care units (neonatal, pediatric, and cardiac) for critically ill children, a population for a fast answer may be crucial for medical management.

WGS is also offered in our outpatient genetics clinic for children that have received previous genetic testing, without definitive answers that may explain their condition. These are often described as being on a diagnostic odyssey. For these patients, WGS can provide long sought answers for a child and their family. Our videos below describe more how WGS is being used in different patient care settings at Nicklaus Children’s.

Research Projects Open for Enrollment

Rapid Genomic Sequencing for Acutely Ill Patients and the Collection, Storage, Analysis, and Distribution of Biological Samples, Genomic and Clinical Data

Rapid Whole Genome Sequencing (rWGS) has proven to provide much faster diagnoses than traditional clinical testing, including clinical Whole Exome Sequencing (WES) and standard Whole Genome Sequencing (WGS). This collaborative study seeks to provide rWGS as a research test to additional pediatric hospitals nationwide to assist in the rapid diagnosis of acutely ill children suspected of a genetic condition. The study will examine diagnosis rates, changes in clinical care as a result of a genetic diagnosis, and health economics including potential cost-effectiveness of rWGS. This study will also serve as a biorepository for future research on samples and data generated from genomic sequencing.

Ending the Diagnostic Odyssey:

Whole Genome Sequencing (WGS) to Identify Genetic Determinants of Previously Undiagnosed Disease in Children

The goal of this collaborative research is to study human genomes in children with suspected congenital disease, multiple-congenital anomalies and/or multi-organ disease of unknown etiology by understanding the potential value of Whole Genome Sequencing (WGS) in establishing genetic diagnosis. The study will examine diagnosis rates, changes in clinical care as a result of a genetic diagnosis, health economics including potential cost-effectiveness of WGS and patient and provider experience with genomic medicine.

Project Baby Manatee Demonstrates Value of Rapid Whole Genome Sequencing

Project Baby Manatee is a pilot initiative made possible through Florida State Appropriation funds to assess the impact of providing rapid whole genome sequencing (rWGS) for critically ill infants and children with unknown illnesses, who are receiving care in a neonatal or pediatric intensive care unit. The Nicklaus Children’s team successfully enrolled and sequenced 50 patients. Thanks to this important funding, low-income families gained access to genomic testing traditionally only available to those of exceptional means. The pilot program resulted in estimated savings of more than $3.76 million, yielding an estimated $2.88 million return on investment, by enabling care teams to quickly address each child’s specific care needs, minimizing expenditures on additional testing and unproductive treatments. A summary and analysis, which serve as the final report to the Florida Department of Health, are available by clicking here.

This report documents clinical outcomes for children in Project Baby Manatee and estimates the effects of providing rWGS on healthcare expenditures. Rapid whole genome sequencing is now ready to be the standard of care for critically ill children. It is no longer experimental. The Personalized Medicine team is working with insurance companies on making this available to children at no cost. Rapid precision medicine with rWGS improves lives and it should be accessible to all of Florida’s critically ill children as soon as possible.

Child Life

Advocating and empowering hospitalized children

Phone: (786) 624-4875

Our Mission

Child Life specialists will assess children’s psychosocial and developmental needs in order to create an individualized plan of care through advocacy, education, and empowerment; thereby normalizing the hospital environment and promoting best possible outcomes with a focus on family-centered care.

Our Values

The Child Life specialists supports the Nicklaus Children's Hospital values and guiding behaviors of being passionate in serving the child and family, respecting and supporting each other, fostering a safe, caring and healthy environment, being accountable, acting with integrity, and collaborating. In addition to these values, we embrace the cultural diversity of families by advocating and communicating their uniqueness with the healthcare team and enhancing the growth and development of children through the use of play.

Child Life specialists strive to normalize the hospital environment by providing psychosocial therapeutic support through a family centered care approach.Their goal is to enrich the experience for our patients and their families.

A Certified Child Life Specialist helps support your child through:

Education on diagnoses, procedures, and treatment plans through the use of medical play
Preparation for tests, procedures, and/or surgeries for patients, siblings, and family
Support during invasive procedures through the use of distraction and coping skills
Engaging patients in therapeutic and expressive activities to help them cope with fears and anxiety
Advocating for the unique needs of patients and families during and after hospitalization
Promoting family centered care through psychosocial support and emotional support for families
Normalize the hospital environment in an effort to promote optimal growth and development

Chest Wall Deformity Center

Florida’s leader in the assessment and treatment of chest wall deformities in children and teens

Phone: 1-888-624-2778

The Chest Wall Deformity Center of Excellence at Nicklaus Children's Hospital is Florida’s leader in the assessment and treatment of chest wall deformities, and is the only center in the state offering comprehensive treatment for the more rare pectus carinatum.

The Center offers both traditional surgeries as well as minimally-invasive operations for chest wall deformities. Treatment options are reviewed and a course of treatment is selected with imput from the family, based onthe severity and asymmetry of the defect. Operative repairs are customized to best correct the specific condition noted in each patient.

Our Center's Commitment

The team at Nicklaus Children's Hospital strives to give each child or young adult with a chest wall abnormality the best treatment possible, using all the newest technology.

We commit to customizing a path to normalizing the chest contour as quickly and as efficiently regardless of the specific anomaly. For operative repair, the pediatric surgeons work with the physical therapists, nurses and other physicians, including anesthesiologists and other pain team members, radiologists, geneticists and orthopedic surgeons, to make recovery as painless and efficient as possible. For non-operative treatments, our therapists and orthotist work with the surgeon for expeditious correction without the risks and discomfort of surgery. We recognize the trust you put in us as we care for your children.

Nonsurgical treatment for children with protruding chest

The Chest Wall Deformity Center of Excellence at Nicklaus Children's Hospital is the only facility in Florida to offer an FDA-approved bracing treatment for pectus carinatum in addition to comprehensive surgical options for children and teens.

Chest bracing therapy is a nonsurgical method to treat pectus carinatum that utilizes a customized chest-wall brace, custom built for the specifics of each patient, to reduce the chest protrusion over time. The brace is worn under clothing and, in combination with an exercise program, may completely correct the problem. The duration of bracing depends on the type and severity of the protrusion, but most defects typically respond well with six to eight months of treatment.

Before and after pectus carinatum chest bracing treatmet

Innovative surgery for patients with sunken chest

Approximately one in 1,000 children suffers from pectus excavatum, a congenital deformity of the chest in which the sternum or breastbone faces inward, applying pressure to the heart and lungs. This disorder can restrict the growth of the vital chest organs, becoming more serious as a child grows up. Symptoms of this disorder may include chest pain, mitral valve prolapse, heart palpitations, respiratory disease and exercise intolerance.

Our pediatric surgical team has applied an innovative surgical treatment to correct this condition, with numerous benefits to young patients. Using minimally invasive surgical procedures, a stainless steel bar is implanted to reshape the patient's sunken chest. This bar supports the chest until the child's body has molded to a more normal position, a process that takes approximately two years in most cases.

Pectus excavatum surgery requires only a few incisions, reducing scarring, and requires approximately 40 minutes, compared to the four to six hours required for chest reconstruction. Blood loss is also minimal compared with other procedures. Children usually can return to their normal activities in about a month.

Pectus excavatum surgery provides excellent long-term functional and cosmetic results, making it easier for the child to breathe, while restoring normal chest expansion and proper lung and heart growth.

Before and after pectus excavatum surgical treatment

Chest Wall Deformity Center

Florida’s leader in the assessment and treatment of chest wall deformities in children and teens

Phone: 1-888-624-2778

Our Center's Commitment

The team at Nicklaus Children's Hospital strives to give each child or young adult with a chest wall abnormality the best treatment possible, using all the newest technology.

Nonsurgical treatment for children with protruding chest

Before and after pectus carinatum chest bracing treatmet

Innovative surgery for patients with sunken chest

Before and after pectus excavatum surgical treatment

NeuroMuscular Center

Florida's Top-Ranked Hospital for Pediatric Neurology and Neurosurgery

Phone: (786) 624-2154

The NeuroMuscular Center at Nicklaus Children’s Hospital offers multidisciplinary evaluation, treatment and support for children with neuromuscular disorders, including muscular dystrophies, neuropathies, spinal muscular atrophy and congenital myopathies.

A Multidisciplinary Team of Specialists

The center brings together an entire team of pediatric specialists to consult in the diagnosis and management of each child during monthly collaborative clinics. This team approach simplifies the care journey for families, enabling them to consult with all needed specialists during a single clinic visit and benefit from the collective assessment of the entire team. The specialty team includes physicians in the following pediatric specialties:

Neurology
Orthopedics
Genetics
Cardiology
Pulmonology
Psychology
Physiatry
Rehabilitation

The Care Experience

During the monthly clinics, patients have the opportunity to meet individually with each member of the clinical team to discuss the patient’s care status and specific needs. During the clinic, physicians and the patients also consult collectively to ensure that all aspects of care are addressed from a multidisciplinary perspective. Between visits, the clinical care coordinator is available to address questions and concerns.

Wheelchair/Seating and Mobility Clinic

The Wheelchair and DME (Durable Medical Equipment) Clinic held once a week, serves children with a variety of musculoskeletal conditions ranging from muscular dystrophy, spina bifida and cerebral palsy. Patients can be evaluated and fitted for wheelchairs, specialized walkers, chairs and bath equipment. There is a multi-specialty group of providers including a physical therapist, orthotist and wheel chair vendors who evaluate the each patient’s abilities and needs.

NeuroMuscular Center

Florida's Top-Ranked Hospital for Pediatric Neurology and Neurosurgery

Phone: (786) 624-2154

A Multidisciplinary Team of Specialists

Neurology
Orthopedics
Genetics
Cardiology
Pulmonology
Psychology
Physiatry
Rehabilitation

The Care Experience

Wheelchair/Seating and Mobility Clinic

NeuroMuscular Center

Florida's Top-Ranked Hospital for Pediatric Neurology and Neurosurgery

Phone: (786) 624-2154

A Multidisciplinary Team of Specialists

Neurology
Orthopedics
Genetics
Cardiology
Pulmonology
Psychology
Physiatry
Rehabilitation

The Care Experience

Wheelchair/Seating and Mobility Clinic

NeuroMuscular Center

Florida's Top-Ranked Hospital for Pediatric Neurology and Neurosurgery

Phone: (786) 624-2154

A Multidisciplinary Team of Specialists

Neurology
Orthopedics
Genetics
Cardiology
Pulmonology
Psychology
Physiatry
Rehabilitation

The Care Experience

Wheelchair/Seating and Mobility Clinic

NeuroMuscular Center

Florida's Top-Ranked Hospital for Pediatric Neurology and Neurosurgery

Phone: (786) 624-2154

A Multidisciplinary Team of Specialists

Neurology
Orthopedics
Genetics
Cardiology
Pulmonology
Psychology
Physiatry
Rehabilitation

The Care Experience

Wheelchair/Seating and Mobility Clinic

Athletic Training Services

Partnering with local communities to provide sports care

Phone: 1-855-624-7778

Nicklaus Children’s licensed athletic trainers are contracted with local schools for sports coverage, sports physicals, club teams, athletic events, orthopedic physician extenders, organizations, & partnerships. Athletic Trainers (ATC’s) provide injury prevention and performace optimization, emergency care, clinical diagnosis, therapeutic intervention and rehabilitation of injury.

What is an Athletic Trainer (ATC)?

An Athletic Trainer (ATC) is a licensed healthcare provider responsible for injury prevention, emergency care, clinical diagnosis, therapeutic intervention and rehabilitation of injuries as well as medical conditions. ATC’s within the Nicklaus Children’s Hospital Sports Health Program provide injury prevention assessments and return to sports activities to keep young athletes healthy and on the field.

Our team of athletic trainers not only assist our orthopedic physicians in a clinical setting, but also provide outreach services within the community. Our outreach services include providing sports medicine coverage for games, practices, sports leagues and special events. Athletic trainers also provide education seminars to the sports community and schools on injury prevention and proper techniques and drills.

Goals and Benefits of Contracting an ATC

To reduce the risk of injury in the pediatric, pre-adolescent and adolescent athlete.
To identify and improve sub-optimal biomechanical alignment.
To facilitate neuromuscular education in the growing athlete to support performance
To improve athletic performance by ensuring optimal function of all body systems; cardiac, neurological, musculoskeletal, nutrition and physiology.
To educate the athlete and sports community on the specific needs of the pediatric, pre-adolescent and adolescent athlete.

Additional Services our Athletic Trainers Provide

Sports-specific team training
Proper nutritional planning and guidance
Exercise program development and implementation
Proper lifting techniques
ImPACT Baseline pre-concussion testing
Expedited referrals of injured athletes

Our ATC Staff

Nicklaus Children's athletic training services also includes a vast per diem staff to meet all coverage needs in Miami-Dade and Broward counties.

Christian Gerstenkorn LAT, ATC
Aziza Chambers MS, ATC
Katherine DeLuque, ATC/L
Isabella Ancheta ATC/L
Mitzy Perez MS, ATC/L
Mark Perez MS, ATC/L
Cedia Dallas ATC/L
Zoe Greim ATC/L
Jason Saez ATC/L
Kayli Rudd MS, ATC/L
Kevin Viecco MS, ATC/L

&nbs;

Athletic Training Services

Partnering with local communities to provide sports care

Phone: 1-855-624-7778

What is an Athletic Trainer (ATC)?

Goals and Benefits of Contracting an ATC

To reduce the risk of injury in the pediatric, pre-adolescent and adolescent athlete.
To identify and improve sub-optimal biomechanical alignment.
To facilitate neuromuscular education in the growing athlete to support performance
To improve athletic performance by ensuring optimal function of all body systems; cardiac, neurological, musculoskeletal, nutrition and physiology.
To educate the athlete and sports community on the specific needs of the pediatric, pre-adolescent and adolescent athlete.

Additional Services our Athletic Trainers Provide

Sports-specific team training
Proper nutritional planning and guidance
Exercise program development and implementation
Proper lifting techniques
ImPACT Baseline pre-concussion testing
Expedited referrals of injured athletes

Our ATC Staff

Nicklaus Children's athletic training services also includes a vast per diem staff to meet all coverage needs in Miami-Dade and Broward counties.

Christian Gerstenkorn LAT, ATC
Aziza Chambers MS, ATC
Katherine DeLuque, ATC/L
Isabella Ancheta ATC/L
Mitzy Perez MS, ATC/L
Mark Perez MS, ATC/L
Cedia Dallas ATC/L
Zoe Greim ATC/L
Jason Saez ATC/L
Kayli Rudd MS, ATC/L
Kevin Viecco MS, ATC/L

&nbs;

ACL Injury Prevention Program

Decrease the risk of ACL injury by 50-70%

Phone: 1-855-624-7778

The Nicklaus Children’s Hospital Sports Health ACL Injury Prevention Program is designed to identify and correct for biomechanical movement errors that result in an increased risk of an ACL injury. Our program has the potential to decrease the risk of an ACL injury by 50-70%.

How do ACL Injuries Happen?

In the United States there are a reported 250,000 anterior cruciate ligament tears annually. Athletes involved in sports requiring cutting, pivoting and jumping are at the highest risk. Female athletes are of significant concern as they have 4-6 times higher risk than male athletes.

Consequences of an ACL Tear

Surgical reconstruction resulting in 6-10 months of rehabilitation and time off from sports.
50% risk or arthritis 10 years after surgical reconstruction
25% chance of suffering a second ACL injury

ACL Injury Prevention Screening

With ACL prevention screening a biomechanical motion analysis test is performed to identify level of risk for an ACL or other lower extremity injury.

Off- Site Team ACL Screening: Includes video analysis with an individual injury risk profile, provided at school or club.
Individual ACL Screening: Includes a comprehensive 60-minute video analysis with individual results summary and training recommendation package. Provided at Nicklaus Children's Outpatient Centers.

Please contact 786-624-5110 for information on pricing.

ACL Return to Sports Testing

Return to Sports Testing is ideal for athletes who have suffered an ACL injury preparing to return to activiely participate in sports. Provided at one of Nicklaus Children’s Outpatient Centers.

Because ACL tear patients face a 25% chance of suffering a second ACL injury, we take return to sports assessments seriously. Even after surgical reconstruction, patients with prior ACL tears have a 50% risk of arthritis ten years following treatment. To minimize the future risk for your young athlete, our trained Sports Health professionals perform a comprehensive biomechanical motion analysis that assesses your child’s strength, power, symmetry, and re-injury risk. Your child must have a prescription to receive an ACL return to sports test, and we encourage you to ask about any insurance benefits that may be available.

ACL Injury Prevention Training

A training program designed to improve strength, power, and agility and reduce the risk of ACL injury.

Team Training Workshops

During the team training workshops, our sports health professionals will guide your athletes through a dynamic warm up with a focus on sport specific mobility then progress through a functional strength, agility, and plyometric training session to enhance performance and decrease injury risk.

60-minute training sessions, provided at school or club (minimum of six athletes)

Small group (up to 12 athletes)
Large group (up to 30 athletes)

90-minute training sessions, provided at school or club (minimum of six athletes)

Small group (up to 12 athletes)
Large group (up to 30 athletes)

120-minute training sessions, provided at school or club (minimum of six athletes)

Small group (up to 12 athletes)
Large group (up to 30 athletes)

Please contact 786-624-5110 for information on pricing.

Performance Training

Provided at Nicklaus Children’s Outpatient Centers. Our sports health professional will guide your athlete through dynamic and sport specific warmups following by individualized coaching to promote increased strength and improve plyometric efficiency.

30-min training session
45-min training session
60-min training session

Please contact 786-624-5110 for information on pricing.

ACL Injury Prevention Program

Decrease the risk of ACL injury by 50-70%

Phone: 1-855-624-7778

How do ACL Injuries Happen?

Consequences of an ACL Tear

Surgical reconstruction resulting in 6-10 months of rehabilitation and time off from sports.
50% risk or arthritis 10 years after surgical reconstruction
25% chance of suffering a second ACL injury

ACL Injury Prevention Screening

With ACL prevention screening a biomechanical motion analysis test is performed to identify level of risk for an ACL or other lower extremity injury.

Off- Site Team ACL Screening: Includes video analysis with an individual injury risk profile, provided at school or club.
Individual ACL Screening: Includes a comprehensive 60-minute video analysis with individual results summary and training recommendation package. Provided at Nicklaus Children's Outpatient Centers.

Please contact 786-624-5110 for information on pricing.

ACL Return to Sports Testing

Return to Sports Testing is ideal for athletes who have suffered an ACL injury preparing to return to activiely participate in sports. Provided at one of Nicklaus Children’s Outpatient Centers.

ACL Injury Prevention Training

A training program designed to improve strength, power, and agility and reduce the risk of ACL injury.

Team Training Workshops

Small group (up to 12 athletes)
Large group (up to 30 athletes)

90-minute training sessions, provided at school or club (minimum of six athletes)

Small group (up to 12 athletes)
Large group (up to 30 athletes)

120-minute training sessions, provided at school or club (minimum of six athletes)

Small group (up to 12 athletes)
Large group (up to 30 athletes)

Please contact 786-624-5110 for information on pricing.

Performance Training

30-min training session
45-min training session
60-min training session

Please contact 786-624-5110 for information on pricing.

Hemophilia Program

A federally designated Hemophilia Treatment Center (HTC)

Phone:

The Hemophilia Program at Nicklaus Children’s Hospital is a comprehensive pediatric program for patients with hemophilia, von Willebrand disease (VWD) and rare bleeding disorders. The clinic is a state and federally designated Hemophilia Treatment Center providing a full range of services including, diagnosis, treatment, counseling and education.

Our multidisciplinary team of specialists work together to promote health and medical management of the condition as well as the transition into adult care.

A Team Approach to Care

Families in the care of the Hemophilia Program benefit from collaborative clinics in which they have an opportunity to consult with the entire team of specialists, eliminating the need for multiple separate specialty appointments. The team participating in these clinics includes:

The hemophilia specialists at Nicklaus Children’s are trained to provide emotional and psychological support for children and their families. We use a multidisciplinary team approach that includes physicians, nurses, therapists, nutritionists and other health care professionals dedicated to helping patients live healthy lives.

Hemophilia Program

A federally designated Hemophilia Treatment Center (HTC)

Phone:

Our multidisciplinary team of specialists work together to promote health and medical management of the condition as well as the transition into adult care.

A Team Approach to Care

Dance Medicine Program

Devoted to providing comprehensive medical and performance based care to young dancers

Phone: 1-855-624-7778

The Nicklaus Children’s Hospital Dance Medicine Program is devoted to providing comprehensive medical and performance based care to dancers.

Our team consists of orthopedic surgeons, physical therapists and athletic trainers. We strive to improve and maintain the health and wellbeing of the dancer through evidence based injury prevention and performance enhancing screenings, evaluations and training.

Pointe Readiness Screening
Dance Injury Prevention Screening
Dance Injury Prevention Training
Power & Posture
Athletic Training Services

Pointe Readiness Screening

A physical screening designed to determine if the dancer has adequate strength, balance and range of motion to safely begin pointe.

Includes a 30-minute screening with personalized recommendations for pointe preparation. Screening provided at school, studio or at one of Nicklaus Children’s Outpatient Centers
Minimum of 5 dancers required to host Pointe Readiness Screening at studio.

Please contact 786-624-5110 for information on pricing.

Dance Injury Prevention Screening

A comprehensive biomechanical motion analysis and physical evaluation of a dancer’s risk of injury. Designed to identify areas needing improvement to reduce the risk of injury and enhance performance.

Team/Studio Screening: Includes a video analysis and physical screening with individual injury risk profile. Screening provided at school or dance studio
Individual Screening: Includes a 60-minute motion analysis and physical assessment with individualized results summary and training recommendation package, provided at select Nicklaus Children’s Outpatient Centers.

Please contact 786-624-5110 for information on pricing.

Dance Injury Prevention Training

A training program designed to improve strength, range of motion, balance and neuromuscular control to enhance performance and reduce the risk of dance related injuries. Ideal for teams and individual athletes, provided at one of Nicklaus Children’s Outpatient Centers.

Performance Training

30-minute training session
45-minute training session (May be split by up to 2 athletes)
60-minute sessions (May be split by up to 4 athletes)

Please contact 786-624-5110 for information on pricing.

Power & Posture

Specialized training workshops for dancers to improve body awareness, core stability and power for optimal dance performance. These workshops will teach dancers proper muscle activation, controlled landing techniques and postural alignment to help them train and perform safely. Our workshops are led by our Dance Medicine Specialists and are offered at local dance studios for your convenience.

60-minute workshops (minimum of 6 dancers)

Small group (up to 12 dancers)
Large group (up to 30 dancers)

90-minute workshops (minimum of 6 dancers)

Small group (up to 12dancers)
Large group (up to 30 dancers)

120-minute workshops (minimum of 6 dancers)

Small group (up to 12 dancers)
Large group (up to 30 dancers)

Please contact 786-624-5110 for information on pricing.

Dance Medicine Program

Devoted to providing comprehensive medical and performance based care to young dancers

Phone: 1-855-624-7778

The Nicklaus Children’s Hospital Dance Medicine Program is devoted to providing comprehensive medical and performance based care to dancers.

Pointe Readiness Screening
Dance Injury Prevention Screening
Dance Injury Prevention Training
Power & Posture
Athletic Training Services

Pointe Readiness Screening

A physical screening designed to determine if the dancer has adequate strength, balance and range of motion to safely begin pointe.

Includes a 30-minute screening with personalized recommendations for pointe preparation. Screening provided at school, studio or at one of Nicklaus Children’s Outpatient Centers
Minimum of 5 dancers required to host Pointe Readiness Screening at studio.

Please contact 786-624-5110 for information on pricing.

Dance Injury Prevention Screening

Team/Studio Screening: Includes a video analysis and physical screening with individual injury risk profile. Screening provided at school or dance studio
Individual Screening: Includes a 60-minute motion analysis and physical assessment with individualized results summary and training recommendation package, provided at select Nicklaus Children’s Outpatient Centers.

Please contact 786-624-5110 for information on pricing.

Dance Injury Prevention Training

Performance Training

30-minute training session
45-minute training session (May be split by up to 2 athletes)
60-minute sessions (May be split by up to 4 athletes)

Please contact 786-624-5110 for information on pricing.

Power & Posture

60-minute workshops (minimum of 6 dancers)

Small group (up to 12 dancers)
Large group (up to 30 dancers)

90-minute workshops (minimum of 6 dancers)

Small group (up to 12dancers)
Large group (up to 30 dancers)

120-minute workshops (minimum of 6 dancers)

Small group (up to 12 dancers)
Large group (up to 30 dancers)

Please contact 786-624-5110 for information on pricing.

Youth Athletic Development Program

A fun and positve fitness experience

Phone: 786-624-5133

What is the goal of the program?

The goal of the program is to promote a fun and positive fitness experience that will help create a foundation of fitness for a lifetime commitment to health and wellness.

How does it work?

We accomplish this goal by teaching participants the essential fundamental motor skills that help to create a foundation of muscular strength, with the integration of neuromuscular training (e.g. weight training, plyometric, speed, agility, and coordination drills).

Group Classes

FUNdamentals (for kids ages 6 - 11)

A group fitness program designed for kids to have fun and improve their athleticism. This class will focus on the ABC’s of athletic development; agility, balance, coordination and speed as well as overall fitness. The skills taught in this program aide in the mastery of fundamental movement skills, which are essential for future growth and development of all children.

First class FREE for all new clients
Single classes
10 class packages

Please call 786-624-5110 for information on pricing.

Foundations (for teens ages 11 and up)

A group class that is designed to create a strong foundation of athletic movements. Participants will learn how to train safely and effectively to reach their maximum athletic potential and reduce their risk of injuries.

First class FREE for all new clients
Single classes
10 class packages

Please call 786-624-5110 for information on pricing.

Performance Training Sessions

With a focus on performance enhancement, injury screening and prevention training, our specialists use state-of-the-art technology to analyze and identify injury risk, as well as advanced training and strengthening techniques to optimize sports performance and injury prevention.

Single Sessions

30-Minute Training Session
45-Minute Training Session (may be split by up to 2 athletes)
60-Minute Training Sessions (may be split by up to 4 athletes)

Please call 786-624-5110 for information on pricing.

Session Packages

10-Package of 45-minute Performance Training Sessions
10-package of 60-Minute Performance Training Sessions

Please call 786-624-5110 for information on pricing.

Youth Athletic Development Program

A fun and positve fitness experience

Phone: 786-624-5133

What is the goal of the program?

The goal of the program is to promote a fun and positive fitness experience that will help create a foundation of fitness for a lifetime commitment to health and wellness.

How does it work?

Group Classes

FUNdamentals (for kids ages 6 - 11)

First class FREE for all new clients
Single classes
10 class packages

Please call 786-624-5110 for information on pricing.

Foundations (for teens ages 11 and up)

First class FREE for all new clients
Single classes
10 class packages

Please call 786-624-5110 for information on pricing.

Performance Training Sessions

Single Sessions

30-Minute Training Session
45-Minute Training Session (may be split by up to 2 athletes)
60-Minute Training Sessions (may be split by up to 4 athletes)

Please call 786-624-5110 for information on pricing.

Session Packages

10-Package of 45-minute Performance Training Sessions
10-package of 60-Minute Performance Training Sessions

Please call 786-624-5110 for information on pricing.

Pediatric Diabetes Treatment Center

Personalized and individualized attention for each child.

Phone: 1-888-624-2778

Diabetes affects 123,000 children or one in 500 in the United States. The Pediatric Diabetes Treatment Center at Nicklaus Children's Hospital, treats 100 new children annually on an inpatient basis and treats several hundred children in our outpatient center.

Due to the complexity of diabetes in children, the child, family, and medical team create a plan for living, eating, learning, exercising, and playing that promotes wellness, monitors the disease, and provides support. Each child is treated individually and personally. Many of our staff members are bilingual and ready to assist patients and their families at all times.

Continuous Insulin Infusion Program for Children and Adolescents

The treatment of diabetes in children has evolved from just one or two injections per day to multiple injections or constant insulin infusion through a diabetes insulin pump, often referred to as "The Pump." The reason for this change is that the goal of insulin therapy is to keep blood sugars as close to normal as possible, thus alleviating complications associated with high blood sugar. The advantages of "The Pump" are to increase flexibility of lifestyle while improving blood sugar control.

Nicklaus Children's Hospital has designed a program to help you and your child make the transition from injections to the diabetes insulin pump. You will meet with one of our diabetes educators to learn about the various pump models and infusion sets available enabling you to make an informed decision on the best fit for your child. You may also need to meet with a dietician to review and/or fine tune carbohydrate counting skills. Once you have starting using the insulin pump, we will ask you to fax or email results of your child's daily testing for a two week period after the pump is started.

This program is specifically designed to be less intrusive in your lifestyle and get you and your child back into your routine as soon as possible.

Camp Roaring Sun

Camp Roaring Sun is a camp exclusively for children ages 6 through 12 with diabetes who are treated at Nicklaus Children's Hospital.

The camp began in 1987 as a day camp and has grown into a week-long, sleepover camp. The campers enjoy a week of fun in the sun and activities that include nature walks, a trip to see a baseball game and swimming under the supervision of Nicklaus Children’s pediatric endocrinology nurses. The children’s blood levels are regularly monitored throughout the day while they socialize in a fun, safe and caring environment.

A Team Approach to Care

The Pediatric Diabetes Treatment Center at Nicklaus Children's Hospital, consists of board certified pediatric endocrinologists and a multi-specialty trained pediatric staff including:

Certified diabetes nurse educator
Registered dietician
Child life specialist
Psychologist
Pharmacist
Social worker

Pediatric Diabetes Treatment Center

Personalized and individualized attention for each child.

Phone: 1-888-624-2778

Continuous Insulin Infusion Program for Children and Adolescents

This program is specifically designed to be less intrusive in your lifestyle and get you and your child back into your routine as soon as possible.

Camp Roaring Sun

Camp Roaring Sun is a camp exclusively for children ages 6 through 12 with diabetes who are treated at Nicklaus Children's Hospital.

A Team Approach to Care

The Pediatric Diabetes Treatment Center at Nicklaus Children's Hospital, consists of board certified pediatric endocrinologists and a multi-specialty trained pediatric staff including:

Certified diabetes nurse educator
Registered dietician
Child life specialist
Psychologist
Pharmacist
Social worker

Eating Disorders Program

Our program brings togehter a full spectrum of specialists

Phone: 305-668-5525

The Eating Disorders Program at Nicklaus Children's Hospital brings together the expertise of a full spectrum of specialists to offer multidisciplinary care and treatment for individuals suffering from eating disorders. Together, the Eating Disorders Program staff is making a difference in the lives of families striving to help children or teens overcome these destructive behaviors.

A first step often involves inpatient stabilization of the child or teen, followed by referrals for ongoing outpatient management and therapy specific to the needs of each patient.

Eating disorders are complex psychological conditions in which abnormal eating patterns are developed and maintained in an attempt to cope with emotional problems. Each year at least 8 million Americans – including teen girls and boys, and women and men – are affected by eating disorders. The most prevalent types of eating disorders are anorexia nervosa and bulimia nervosa.

Multidisciplinary care for Nicklaus Children’s Eating Disorders Program is managed through the Division of Adolescent Medicine. First-time appointments can be made by calling 305-668-5525.

Eating Disorder Treatment

To minimize eating disorder-related damage to health, early intervention is important. The longer behaviors are maintained, the more ingrained they become. Because eating disorders affect the physical, mental and emotional health of victims, multidisciplinary action is the most effective approach.

The Eating Disorders Program brings together a team of specialists to evaluate the child physically and emotionally and create an individualized eating disorder treatment plan.

The team includes:

A hallmark of the Nicklaus Children's program involves inpatient stabilization to intervene in destructive behaviors and set a course for a healthier future. During hospitalization, the child's medical needs are addressed and the patient is stabilized. When the patient is ready to be discharged, the program supports the transition. Depending on individual need, some patients may be referred to a higher level of care, while others may continue in the care of the Nicklaus Children's program on an outpatient basis.

Symptoms of Eating Disorders in Children and Teens

The following may be symptoms of an eating disorder:

Excessive weight loss or concern about weight
Preoccupation with weight, food, calories, and dieting
Dissatisfaction with body
Ritualistic or obsessive eating behavior, food rituals (i.e. cutting food into extremely small bites, excessive chewing)
Bouts of gorging with large quantities of food
Frequent comments about feeling “fat” despite weight loss
Anxiety about gaining weight or being “fat”
Consistent excuses to avoid mealtimes or situations involving food
Disappearance of large quantities of food in short periods of time
Evidence of purging behaviors, including frequent trips to the bathroom immediately after eating
Use of diuretics (pills to promote water loss) or laxatives
Refusing to eat in public
Excessive exercising, the need to burn off calories taken in
Fainting
Irregularity or cessation in menstrual periods
Low heart rate or blood pressure
Low body temperature
Withdrawal from usual friends and activities

About Anorexia Nervosa

Anorexia is a life-threatening disease in which the affected person intentionally deprives him or herself of food. People with anorexia may maintain body weights that are 15 percent or more below their ideal. Even when emaciated, those affected often have so distorted a body image that they continue to perceive themselves as “fat.”

About Bulimia Nervosa

Bulimia is a type of eating disorder in which the affected person experiences episodes of uncontrollable overeating (binge eating). Individuals with this type of eating disorder may be harder to identify. They can appear to be of normal weight, but routinely eat excessive amounts of food over a short period of time and immediately “purge” themselves of the food by vomiting or taking laxatives. They usually become experts at concealing this behavior from others.

Consequences of Eating Disorders

If left untreated, both anorexia and bulimia can have devastating consequences. Starvation behaviors in those suffering from anorexia can often lead to permanent damage to the bones, heart and brain, even death. Between 5 percent and 10 percent of those with anorexia die within 10 years of contracting this disorder. Individuals with bulimia often suffer from depression, anxiety disorders, heart damage, kidney damage, and injury to the digestive system and teeth. The disorder may also lead to chemical imbalances and dehydration that can result in death.

Eating Disorders Program

Our program brings togehter a full spectrum of specialists

Phone: 305-668-5525

A first step often involves inpatient stabilization of the child or teen, followed by referrals for ongoing outpatient management and therapy specific to the needs of each patient.

Multidisciplinary care for Nicklaus Children’s Eating Disorders Program is managed through the Division of Adolescent Medicine. First-time appointments can be made by calling 305-668-5525.

Eating Disorder Treatment

The Eating Disorders Program brings together a team of specialists to evaluate the child physically and emotionally and create an individualized eating disorder treatment plan.

The team includes:

Symptoms of Eating Disorders in Children and Teens

The following may be symptoms of an eating disorder:

Excessive weight loss or concern about weight
Preoccupation with weight, food, calories, and dieting
Dissatisfaction with body
Ritualistic or obsessive eating behavior, food rituals (i.e. cutting food into extremely small bites, excessive chewing)
Bouts of gorging with large quantities of food
Frequent comments about feeling “fat” despite weight loss
Anxiety about gaining weight or being “fat”
Consistent excuses to avoid mealtimes or situations involving food
Disappearance of large quantities of food in short periods of time
Evidence of purging behaviors, including frequent trips to the bathroom immediately after eating
Use of diuretics (pills to promote water loss) or laxatives
Refusing to eat in public
Excessive exercising, the need to burn off calories taken in
Fainting
Irregularity or cessation in menstrual periods
Low heart rate or blood pressure
Low body temperature
Withdrawal from usual friends and activities

About Anorexia Nervosa

About Bulimia Nervosa

Consequences of Eating Disorders

Eating Disorders Program

Our program brings togehter a full spectrum of specialists

Phone: 305-668-5525

A first step often involves inpatient stabilization of the child or teen, followed by referrals for ongoing outpatient management and therapy specific to the needs of each patient.

Multidisciplinary care for Nicklaus Children’s Eating Disorders Program is managed through the Division of Adolescent Medicine. First-time appointments can be made by calling 305-668-5525.

Eating Disorder Treatment

The Eating Disorders Program brings together a team of specialists to evaluate the child physically and emotionally and create an individualized eating disorder treatment plan.

The team includes:

Symptoms of Eating Disorders in Children and Teens

The following may be symptoms of an eating disorder:

Excessive weight loss or concern about weight
Preoccupation with weight, food, calories, and dieting
Dissatisfaction with body
Ritualistic or obsessive eating behavior, food rituals (i.e. cutting food into extremely small bites, excessive chewing)
Bouts of gorging with large quantities of food
Frequent comments about feeling “fat” despite weight loss
Anxiety about gaining weight or being “fat”
Consistent excuses to avoid mealtimes or situations involving food
Disappearance of large quantities of food in short periods of time
Evidence of purging behaviors, including frequent trips to the bathroom immediately after eating
Use of diuretics (pills to promote water loss) or laxatives
Refusing to eat in public
Excessive exercising, the need to burn off calories taken in
Fainting
Irregularity or cessation in menstrual periods
Low heart rate or blood pressure
Low body temperature
Withdrawal from usual friends and activities

About Anorexia Nervosa

About Bulimia Nervosa

Consequences of Eating Disorders

Eating Disorders Program

Our program brings togehter a full spectrum of specialists

Phone: 305-668-5525

A first step often involves inpatient stabilization of the child or teen, followed by referrals for ongoing outpatient management and therapy specific to the needs of each patient.

Multidisciplinary care for Nicklaus Children’s Eating Disorders Program is managed through the Division of Adolescent Medicine. First-time appointments can be made by calling 305-668-5525.

Eating Disorder Treatment

The Eating Disorders Program brings together a team of specialists to evaluate the child physically and emotionally and create an individualized eating disorder treatment plan.

The team includes:

Symptoms of Eating Disorders in Children and Teens

The following may be symptoms of an eating disorder:

Excessive weight loss or concern about weight
Preoccupation with weight, food, calories, and dieting
Dissatisfaction with body
Ritualistic or obsessive eating behavior, food rituals (i.e. cutting food into extremely small bites, excessive chewing)
Bouts of gorging with large quantities of food
Frequent comments about feeling “fat” despite weight loss
Anxiety about gaining weight or being “fat”
Consistent excuses to avoid mealtimes or situations involving food
Disappearance of large quantities of food in short periods of time
Evidence of purging behaviors, including frequent trips to the bathroom immediately after eating
Use of diuretics (pills to promote water loss) or laxatives
Refusing to eat in public
Excessive exercising, the need to burn off calories taken in
Fainting
Irregularity or cessation in menstrual periods
Low heart rate or blood pressure
Low body temperature
Withdrawal from usual friends and activities

About Anorexia Nervosa

About Bulimia Nervosa

Consequences of Eating Disorders

Eating Disorders Program

Our program brings togehter a full spectrum of specialists

Phone: 305-668-5525

A first step often involves inpatient stabilization of the child or teen, followed by referrals for ongoing outpatient management and therapy specific to the needs of each patient.

Multidisciplinary care for Nicklaus Children’s Eating Disorders Program is managed through the Division of Adolescent Medicine. First-time appointments can be made by calling 305-668-5525.

Eating Disorder Treatment

The Eating Disorders Program brings together a team of specialists to evaluate the child physically and emotionally and create an individualized eating disorder treatment plan.

The team includes:

Symptoms of Eating Disorders in Children and Teens

The following may be symptoms of an eating disorder:

Excessive weight loss or concern about weight
Preoccupation with weight, food, calories, and dieting
Dissatisfaction with body
Ritualistic or obsessive eating behavior, food rituals (i.e. cutting food into extremely small bites, excessive chewing)
Bouts of gorging with large quantities of food
Frequent comments about feeling “fat” despite weight loss
Anxiety about gaining weight or being “fat”
Consistent excuses to avoid mealtimes or situations involving food
Disappearance of large quantities of food in short periods of time
Evidence of purging behaviors, including frequent trips to the bathroom immediately after eating
Use of diuretics (pills to promote water loss) or laxatives
Refusing to eat in public
Excessive exercising, the need to burn off calories taken in
Fainting
Irregularity or cessation in menstrual periods
Low heart rate or blood pressure
Low body temperature
Withdrawal from usual friends and activities

About Anorexia Nervosa

About Bulimia Nervosa

Consequences of Eating Disorders

Eating Disorders Program

Our program brings togehter a full spectrum of specialists

Phone: 305-668-5525

A first step often involves inpatient stabilization of the child or teen, followed by referrals for ongoing outpatient management and therapy specific to the needs of each patient.

Multidisciplinary care for Nicklaus Children’s Eating Disorders Program is managed through the Division of Adolescent Medicine. First-time appointments can be made by calling 305-668-5525.

Eating Disorder Treatment

The Eating Disorders Program brings together a team of specialists to evaluate the child physically and emotionally and create an individualized eating disorder treatment plan.

The team includes:

Symptoms of Eating Disorders in Children and Teens

The following may be symptoms of an eating disorder:

Excessive weight loss or concern about weight
Preoccupation with weight, food, calories, and dieting
Dissatisfaction with body
Ritualistic or obsessive eating behavior, food rituals (i.e. cutting food into extremely small bites, excessive chewing)
Bouts of gorging with large quantities of food
Frequent comments about feeling “fat” despite weight loss
Anxiety about gaining weight or being “fat”
Consistent excuses to avoid mealtimes or situations involving food
Disappearance of large quantities of food in short periods of time
Evidence of purging behaviors, including frequent trips to the bathroom immediately after eating
Use of diuretics (pills to promote water loss) or laxatives
Refusing to eat in public
Excessive exercising, the need to burn off calories taken in
Fainting
Irregularity or cessation in menstrual periods
Low heart rate or blood pressure
Low body temperature
Withdrawal from usual friends and activities

About Anorexia Nervosa

About Bulimia Nervosa

Consequences of Eating Disorders

Center for Spine Disorders & Scoliosis Surgery

South Florida's Top-Ranked Hospital for Pediatric Orthopedic Care

Phone: 786-624-2225

The Center for Spinal Disorders at Nicklaus Children's Hospital provides diagnosis and treatment of spinal disorders in children and teens.

The center has established itself as one of the most experienced and successful in the nation in treating spine disorders in children. Dr. Stephen George, Dr. Thomas Errico and Dr. Subaraman Ramchandran have played a key role in the creation of best practice guidelines that have significantly decreased the length of hospital stay after scoliosis surgery. Dr. Thomas Errico holds more than 150 registered patents and has been influential in the development of some of the latest and most innovative techniques in spinal surgery.

The Center for Spinal Disorders Has Moved!

The Center for Spinal Disorders has moved its office to a new location on the Nicklaus Children’s Hospital campus. The new space, located on the first floor of the George E. Batchelor Research and Academic Pavilion, features expanded treatment areas for the comfort of our patients and their families.

Reserved parking for patients of the Center for Spinal Disorders is available on the first floor of the Yellow Garage (see map below). Complimentary valet services will also be offered in the Yellow Garage, Monday through Friday 6:00 a.m. – 6:00 p.m. For more information visit our hospital parking page.

A Team Approach

The division offers a team approach to care that has been established as a model of practice within the spinal surgical field. The team includes the spine surgical team’s highly experienced board-certified orthopedic surgeons who perform spinal surgery in children, dedicated spine-trained anesthesiologists and a PhD neurophysiologist who monitors, the spinal cord and nerve function throughout surgery. Dedicated spinal surgical nurses, technicians, and radiology technicians complete the spinal surgical team. The surgical nurses are experts in the care of spinal surgery patients, managing six-eight patients per week.

Scoliosis Screenings for Children

Routine scoliosis screenings are performed at the pediatricians office or at your child's school. If your child receives a positive screening result, the child should be evaluated by an orthopedic spine doctor to further assess whether he or she has any form of scoliosis.

Scoliosis is usually confirmed by taking an X-ray of the entire spine looking from front to back. Scoliosis is a curvature of the spine that can cause asymmetric growth of the spine and the chest wall. Common symptoms of scoliosis include: one shoulder blade higher than the other, uneven waist and hips, uneven rib cage, bump in the back or front of the chest.

Generally, scoliosis is a disorder of growth and usually occurs in adolescents during the time of growth spurt just before puberty. It is very important to diagnose scoliosis early so that appropriate treatment can be initiated to prevent any progression of the scoliosis and avoiding unnecessary back surgeries.

Newest Spine Imaging Technology Reduces Radiation Exposure

At Nicklaus Children's Hospital, we are committed to providing our patients and their families with the best care and technology available. This focus has led to our recent acquisition of the EOSedge™, an imaging system that delivers high-quality, three-dimensional full-body images of patients in a standing position using low-dose radiation.

EOSedge has a unique setting called Flex DoseTM that adjusts the amount of radiation patients receive. This setting minimizes exposure of areas of the body when possible, while still delivering the high- resolution images needed for our doctors to make treatment decisions. EOSedge is offered at the Center for Spinal Disorders at Nicklaus Children's Hospital.

The Center for Spinal Disorders at Nicklaus Children's has been using EOS imaging systems for its pediatric spine patients since 2013. Traditional EOS imaging services are offered at the hospital's spine clinics in Miramar and Palm Beach Gardens.

Child and Family Friendly Approach

The center's orthopedic nurses devote unlimited time to preoperative teaching for the patient and family to ensure that each is ready for the procedure. In addition, Child Life Specialists work with children and families upon admission to help with questions before, and after surgery. Children recover in the region’s leading pediatric hospital, which has many special child- and family-friendly features.

Research and Innovation

The Center for Spinal Disorders at Nicklaus Children's is committed to offering the latest in research and innovation to the patients and families we serve.

The center is currently involved in a study to lower the radiation exposure to patients over time, by studying whether a single, supine X-ray can be used for surgical planning versus having the patient undergo multiple X-rays, the traditional method to illustrate bending at the sides.

The Center for Spinal Disorders and Scoliosis Surgery uses leading-edge technology to create three-dimensional images for surgical planning. These radiographic images are converted into three-dimensional images that visually guide the surgical when planning for surgery. Nicklaus Children's is the only center in South Florida with this technology.

The spine team uses evidence-based operative protocols to decrease blood loss during surgery and decrease the length of stay for spine surgery patients. This involves pre- and post- operative strategies, such as eliminating certain medications prior to surgery and donating blood, to ensure patients have optimal surgical outcomes. The typical hospital length of stay for a spine patient at Nicklaus Children’s is about two nights.

The Center for Spinal Disorders and Scoliosis Surgery is one of few centers in the nation involved in a clinical trial for fusion less spinal surgery. This leading edge technique for scoliosis correction in children and adolescents is uses a vertical body tether to correct scoliosis rather than using traditional spinal fusion techniques.

Center for Spine Disorders & Scoliosis Surgery

South Florida's Top-Ranked Hospital for Pediatric Orthopedic Care

Phone: 786-624-2225

The Center for Spinal Disorders at Nicklaus Children's Hospital provides diagnosis and treatment of spinal disorders in children and teens.

The Center for Spinal Disorders Has Moved!

A Team Approach

Scoliosis Screenings for Children

Newest Spine Imaging Technology Reduces Radiation Exposure

Child and Family Friendly Approach

Research and Innovation

The Center for Spinal Disorders at Nicklaus Children's is committed to offering the latest in research and innovation to the patients and families we serve.

Global Health

Support for international patients and families

Phone: 1-888-797-6010

If your child has unexplained symptoms that require complex, specialist surgery, or has a rare genetic condition requiring the latest, innovative procedures not yet available to you locally, then Nicklaus Children’s Hospital could provide the answers and hope you’re looking for.

The 307-bed hospital is renowned for excellence in all aspects of pediatric medicine, with many specialty programs routinely ranked among the best in the nation.

Medical Treatments and Services

Adolescent Medicine
Allergy/Immunology
Anesthesiology
Asthma Center
Behavioral Medicine
Bone Marrow Transplants
Brachial Plexus Surgery
Cardiac Intensive Care
Cardiology
Cardiovascular Surgery
Craniofacial Reconstructive Surgery
Critical Care Medicine
Dermatology
Dialysis Center
Eating Disorders
Emergency Medicine
Endocrinology
Enuresis Center
Epilepsy Center (offering medical/surgical care)
Gastroenterology
Genetic and Metabolic Disorders
Hematology/Oncology
Infectious Diseases
Infusion Services
International Vaccine Services
Interventional Cardiology
Neonatology
Nephrology
Neurology
Neuropharmacology
Neurosurgery
Nutrition
Ophthalmology
Orthopedic Surgery
Otolaryngology
Pathology
Pediatric Care Center
Pediatric Dentistry
Pediatric Hospitalists
Pediatric Surgery
Pediatric Trauma
Plastic Surgery
Preventive Medicine/Health Promotion
Psychiatry
Radiology
Rehabilitation Services
Rheumatology
Sleep Disorder Center
Spine/Scoliosis Surgery
Sports Medicine
Telemedicine/Virtual Consulting
Thoracic Surgery
Urgent Care
Urology

Medical Education

Nicklaus Children's Hospital is an international leader in medical education at all levels with a strong commitment to lifelong learning, personal and professional development, and professional and scholarly work. Our Medical Education Department offers a wide array of resources for international physicians, other healthcare providers, and medical researchers.

Our multifaceted CME (Continuing Medical Education) program includes the annual Pediatric Postgraduate Course (PPGC): “Perspectives in Pediatrics”, which has attracted a distinguished international audience for almost 50 years. Nicklaus Children's is also committed to serving as a teaching hospital with highly regarded pediatric fellowship and residency training programs.

Medical Research

The Nicklaus Children's Research Institute is home to over 150 Investigators across nearly 30 subspecialties, and supports a wide range of clinical research studies and partnerships both locally and internationally. Our investigators are experienced in multi-site clinical investigations sponsored primarily by the pharmaceutical and medical device industries. Many investigators head research teams as principal investigators and lead sponsor-investigator studies and joint projects with academia.

Nicklaus Children's Hospital investigators are knowledgeable and experienced in Phase I-IV clinical investigations in support of New Drug Applications (NDAs) and under Investigational Device Exemptions (IDEs). Their work also includes deployment of Humanitarian Use Devices (HUDs) and studies in support of orphan drug development.

Enhancing Access to Care for Infants in Colombia

Partnering with International Physicians

Nicklaus Children's Hospital works closely with international physicians to provide coordinated care to their patients. Our team stays in close contact with referring physicians before, during and after a hospital stay. Please provide detailed clinical information and complete the online International Patient Registration Form so we may expedite your request.

Brachial Plexus and Peripheral Nerve Program

Phone: 305-278-5921

The Brachial Plexus and Peripheral Nerve Program at Nicklaus Children’s Hospital provides comprehensive care for newborns, infants and children suffering from injuries or tumors of the peripheral nerves.

Problems with the peripheral nerves may result in weakness, numbness and/or discomfort in the affected part of the body.

The brachial plexus is a network of nerves within the neck that supply the arm with motor input and sensory feedback. Injuries to the brachial plexus can occur during the birthing process or as a result of trauma, including falls, sports injuries, penetrating injuries (stab wounds/gunshot wounds) and motor vehicle collisions.

In addition to our focus on the brachial plexus, the Program also provides care for children with injuries or diseases (including tumors) of other peripheral nerves throughout the body.

Who is a Candidate for the Program?

Infants and newborns with limited or no movement of the shoulder, elbow, wrist or hand following birth.
Children or teens who have experienced trauma and have weakness or reduced sensation in the hand/arm or any other part of the body.
Children who have unexplained weakness, numbness, pain or discomfort in an arm or leg.

A Multidisciplinary Approach

Pediatric patients with brachial plexus and peripheral nerve disorders benefit from a multidisciplinary approach that brings together a team of specialists to participate in evaluation and care management.

The multidisciplinary team at Nicklaus Children’s Brachial Plexus and Peripheral Nerve Disorders Program includes members from the following specialties:

Pediatric Plastic Surgery and Hand Surgery
Pediatric Orthopedics
Pediatric Neurology and Neurosurgery
Pediatric Occupational and Physical Therapy

Approaches to Treatment

What Should I Expect?

At the initial visit, your child will be evaluated by members of the team that specialize in care of peripheral nerve problems. A medical history will be taken. Please bring all medical records and radiology images/reports associated with the peripheral nerve problem. Some children may require one or more imaging studies or other diagnostic tests to evaluate nerve and muscle function.

Imaging studies that may be prescribed include:

MRI scans
CT scans
Ultrasound
X-rays
Additional diagnostic studies, including nerve conduction and/or electromyography, may also be ordered.

Brachial Plexus and Peripheral Nerve Program

Phone: 305-278-5921

Problems with the peripheral nerves may result in weakness, numbness and/or discomfort in the affected part of the body.

In addition to our focus on the brachial plexus, the Program also provides care for children with injuries or diseases (including tumors) of other peripheral nerves throughout the body.

Who is a Candidate for the Program?

Infants and newborns with limited or no movement of the shoulder, elbow, wrist or hand following birth.
Children or teens who have experienced trauma and have weakness or reduced sensation in the hand/arm or any other part of the body.
Children who have unexplained weakness, numbness, pain or discomfort in an arm or leg.

A Multidisciplinary Approach

The multidisciplinary team at Nicklaus Children’s Brachial Plexus and Peripheral Nerve Disorders Program includes members from the following specialties:

Pediatric Plastic Surgery and Hand Surgery
Pediatric Orthopedics
Pediatric Neurology and Neurosurgery
Pediatric Occupational and Physical Therapy

Approaches to Treatment

What Should I Expect?

Imaging studies that may be prescribed include:

MRI scans
CT scans
Ultrasound
X-rays
Additional diagnostic studies, including nerve conduction and/or electromyography, may also be ordered.

Brachial Plexus and Peripheral Nerve Program

Phone: 305-278-5921

Problems with the peripheral nerves may result in weakness, numbness and/or discomfort in the affected part of the body.

In addition to our focus on the brachial plexus, the Program also provides care for children with injuries or diseases (including tumors) of other peripheral nerves throughout the body.

Who is a Candidate for the Program?

Infants and newborns with limited or no movement of the shoulder, elbow, wrist or hand following birth.
Children or teens who have experienced trauma and have weakness or reduced sensation in the hand/arm or any other part of the body.
Children who have unexplained weakness, numbness, pain or discomfort in an arm or leg.

A Multidisciplinary Approach

The multidisciplinary team at Nicklaus Children’s Brachial Plexus and Peripheral Nerve Disorders Program includes members from the following specialties:

Pediatric Plastic Surgery and Hand Surgery
Pediatric Orthopedics
Pediatric Neurology and Neurosurgery
Pediatric Occupational and Physical Therapy

Approaches to Treatment

What Should I Expect?

Imaging studies that may be prescribed include:

MRI scans
CT scans
Ultrasound
X-rays
Additional diagnostic studies, including nerve conduction and/or electromyography, may also be ordered.

Brachial Plexus and Peripheral Nerve Program

Phone: 305-278-5921

Problems with the peripheral nerves may result in weakness, numbness and/or discomfort in the affected part of the body.

In addition to our focus on the brachial plexus, the Program also provides care for children with injuries or diseases (including tumors) of other peripheral nerves throughout the body.

Who is a Candidate for the Program?

Infants and newborns with limited or no movement of the shoulder, elbow, wrist or hand following birth.
Children or teens who have experienced trauma and have weakness or reduced sensation in the hand/arm or any other part of the body.
Children who have unexplained weakness, numbness, pain or discomfort in an arm or leg.

A Multidisciplinary Approach

The multidisciplinary team at Nicklaus Children’s Brachial Plexus and Peripheral Nerve Disorders Program includes members from the following specialties:

Pediatric Plastic Surgery and Hand Surgery
Pediatric Orthopedics
Pediatric Neurology and Neurosurgery
Pediatric Occupational and Physical Therapy

Approaches to Treatment

What Should I Expect?

Imaging studies that may be prescribed include:

MRI scans
CT scans
Ultrasound
X-rays
Additional diagnostic studies, including nerve conduction and/or electromyography, may also be ordered.

Brachial Plexus and Peripheral Nerve Program

Phone: 305-278-5921

Problems with the peripheral nerves may result in weakness, numbness and/or discomfort in the affected part of the body.

In addition to our focus on the brachial plexus, the Program also provides care for children with injuries or diseases (including tumors) of other peripheral nerves throughout the body.

Who is a Candidate for the Program?

Infants and newborns with limited or no movement of the shoulder, elbow, wrist or hand following birth.
Children or teens who have experienced trauma and have weakness or reduced sensation in the hand/arm or any other part of the body.
Children who have unexplained weakness, numbness, pain or discomfort in an arm or leg.

A Multidisciplinary Approach

The multidisciplinary team at Nicklaus Children’s Brachial Plexus and Peripheral Nerve Disorders Program includes members from the following specialties:

Pediatric Plastic Surgery and Hand Surgery
Pediatric Orthopedics
Pediatric Neurology and Neurosurgery
Pediatric Occupational and Physical Therapy

Approaches to Treatment

What Should I Expect?

Imaging studies that may be prescribed include:

MRI scans
CT scans
Ultrasound
X-rays
Additional diagnostic studies, including nerve conduction and/or electromyography, may also be ordered.

Patient and Family Resources

Nicklaus Children's Hospital is committed to providing family-centered pediatric medical programs and services.

Phone: 786-624-4400

Nicklaus Children's Hospital provides many unique, family-centered pediatric medical programs and services to the families and children we serve. Some programs help familiarize parents with Nicklaus Children's services, while our Child Life services help make the hospital experience less intimidating.

At Nicklaus Children's Hospital, we focus on providing both patients and families with top-notch medical care, coupled with emotional, psychological and educational support. In this section you will find information on Nicklaus Children's services for patients and families.

Planning your Visit to the Main Hospital

While You're Here

Family-Centered Care Services

Financial Services

Managing financial and medical coverage when seeking services at our health system can be challenging for our patient families. Here you will find information on financial services at Nicklaus Children's Hospital.

Community Outreach and Education Programs

Nicklaus Children's Hospital provides community outreach to our local South Florida community by providing classes and courses, in addition to family-centered services to parents, families and professionals. Browse our community calendar for upcoming events you would like to attend.

Nicklaus Children's Research Institute

A Leader in Pediatric Medical Research

Phone: 1-800-533-1792

The Nicklaus Children's Research Institute is a regional leader in providing pediatric clinical research services from the pharmaceutical, biotechnology, medical device industries, and from government agencies. The program provides comprehensive support for all types of clinical research studies, including Phase I to IV investigational drug studies. The Research Institute supports interventional research studies along with providing various types of support to over 200 more observational research studies per year across nearly 30 subspecialties with a focus on cardiology, cardiovascular surgery, neurology, neurosurgery and oncology.

The Nicklaus Children's Research Institute is the largest provider of clinical research services for children of Latin origin in the southeastern United States. It is one of few pediatric programs in the nation and the first in Florida to be fully accredited by the Association for the Accreditation of Human Research Protection Programs, Inc. (AAHRPP). In addition, the program is a member of the distinguished Children's Oncology Group (COG), a national research collaborative providing the latest treatments for children with cancer.

Knowledgeable Research Team

Nicklaus Children's Research Institute employs knowledgeable clinical research coordinators with significant expertise and a track record in the field. Many of our research coordinators are certified by the Association of Clinical Research Professionals (ACRP) or the Society of Clinical Research Associates (SoCRA) and all are experienced in coordinating industry-sponsored clinical research projects.

Experienced Investigators

Nicklaus Children's Research Institute is home to investigators across nearly 30 subspecialties. They are experienced in multi-site clinical research investigations. Nicklaus Children's Hospital Investigators collaborate on research studies with investigators from other children's hospitals and academic institutions from all over the country.

Many investigators head research teams as principal investigators and lead sponsor-investigator studies and joint projects with academia. Nicklaus Children's Hospital investigators are knowledgeable and experienced in Phase I-IV clinical investigations in support of New Drug Applications (NDAs) and under Investigational Device Exemptions (IDEs). Their work also includes deployment of Humanitarian Use Devices (HUDs) and studies in support of orphan drug development.

Pediatric Specialties

Adolescent Medicine
Allergy & Immunology
Anesthesiology
Asthma
Bone Marrow Transplant
Brachial Plexus
Cardiology
Cardiovascular Surgery
Craniofacial Differences
Cystic Fibrosis
Dental Services
Dermatology
Endocrinology
Epilepsy
Gastroenterology
Genetics
Hematology/Oncology
Infectious Diseases
Limb Discrepancy
Neonatology
Nephrology
Neurology
Neuropharmacology
Neuroradiology
Neurosurgery
Nutrition
Ophthalmology
Orthopedic Surgery
Otolaryngology (ENT)
Pathology
Pediatric Medicine
Pediatric Surgery
Plastic & Reconstructive Surgery
Psychiatry
Psychology
Pulmonology
Radiology
Rheumatology
Scoliosis Surgery
Sleep Disorders
Sports Medicine
Thoracic Surgery
Urological Surgery

History of Research Leadership

The Nicklaus Children's Research Institute was established in 1992.

This 43,000-square-foot, three-story building houses the hospital’s Research Institute – the only facility in Florida dedicated exclusively to pediatric research. It offers robust clinical research services in support of FDA applications, government-funded research and academic projects.

Later named the George E. Batchelor Research and Academic Pavilion, the facility is devoted to research in nutrition, surgery, molecular biology, genetics, immunology and oncology. George E. Batchelor was an aviation entrepreneur and philanthropist who generously donated millions of dollars for research on children's health throughout his life before his passing in 2002.

Headache Program

Evaluation and treatment of children and teens with chronic headaches

Phone: 786-624-2778

Headaches are relatively common in children and teens, and headaches that impact school attendance and daily life can be a source of concern for both the child and family. Nicklaus Children's Headache Program, part of the hospital's Brain Institute, offers a comprehensive, team approach to the evaluation and management of pediatric and adolescent patients with headaches.

A Multidisciplinary Approach

The program team is led by a pediatric neurologist with specialized fellowship training and extensive experience in treating children and adolescents with headaches. Psychologists collaborate to offer behavioral techniques to support care management.

Approaches to Treatment

Peripheral Nerve Blocks
Sphenopalatine Ganglion Blocks
Trigger Point Injections

Who is a Candidate for the Headache Program?

Program candidates include any child or teen who:

Has headaches that occur on a consistent basis
Has headaches that result in missed school days or other activities
Has headaches that cause concern for the patient, parents, or primary care physician in any way

What Should I Expect?

At the initial visit, you will complete a detailed questionnaire pertaining to the patient's headaches and medical and social history. You will be seen by the neurologist or nurse practitioner, and in many cases by the psychologist. Testing may be ordered when appropriate. The team will work with you to develop and detailed treatment plan to implement both at home and at school.

Additionally, there may be opportunities for your child to participate in clinical trials for new and emerging headache treatments. These opportunities will be offered as they arise.

Headache Program

Evaluation and treatment of children and teens with chronic headaches

Phone: 786-624-2778

A Multidisciplinary Approach

Approaches to Treatment

Peripheral Nerve Blocks
Sphenopalatine Ganglion Blocks
Trigger Point Injections

Who is a Candidate for the Headache Program?

Program candidates include any child or teen who:

Has headaches that occur on a consistent basis
Has headaches that result in missed school days or other activities
Has headaches that cause concern for the patient, parents, or primary care physician in any way

What Should I Expect?

Additionally, there may be opportunities for your child to participate in clinical trials for new and emerging headache treatments. These opportunities will be offered as they arise.

Headache Program

Evaluation and treatment of children and teens with chronic headaches

Phone: 786-624-2778

A Multidisciplinary Approach

Approaches to Treatment

Peripheral Nerve Blocks
Sphenopalatine Ganglion Blocks
Trigger Point Injections

Who is a Candidate for the Headache Program?

Program candidates include any child or teen who:

Has headaches that occur on a consistent basis
Has headaches that result in missed school days or other activities
Has headaches that cause concern for the patient, parents, or primary care physician in any way

What Should I Expect?

Additionally, there may be opportunities for your child to participate in clinical trials for new and emerging headache treatments. These opportunities will be offered as they arise.

Cerebral Palsy and Spasticity Program

South Florida's Top-Ranked Hospital for Pediatric Orthopedic Care

Phone: (786) 624-2154

The Cerebral Palsy and Spasticity Program brings together a multidisciplinary team from the Nicklaus Children’s Hospital Orthopedic, Sports Health and Spine Institute and Brain Institute. The teams work collaboratively to treat children with movement conditions and disorders, including cerebral palsy. The program is one of the few of its kind in the state of Florida for the treatment of children with cerebral palsy and spasticity.

The Importance of a Team Approach to Care

During clinic visits, patients are seen by specialists in orthopedics, neurology, neurosurgery, psychiatry and physical/occupational therapy. Specialists meet after each clinic and discuss every case individually. The clinical coordinator reaches out to the family to review treatment recommendations and schedule specific interventions. The program also includes in-house orthotists that work with patients and families to measure and fit patients with supportive devices.

The goal is to maximize movement, comfort and quality of life for affected children and their families.

Treatment Options for Spasticity

A common characteristic of various neurological disorders is spasticity, which is the excessive tightness or tension of certain muscle groups. It interferes with smooth, coordinated motions, and results in limited movement patterns and impaired motor skills.

The program offers both medical and surgical interventions for the treatment of cerebral palsy. Medications include oral baclofen. The program also provides selective spasticity control using Botox and disport injections. A Botox or Dysport injection is an injection of botulinum toxin (which causes temporary paralysis) into a muscle to relieve spasticity and involuntary movements.

Children able to walk alone or with braces, walker, or crutches may be videotaped. Each team member will examine the child. The group will then meet to discuss which procedure will be in the child's best interest. The surgeon will discuss with the family the risks and the potential benefits and if surgery is scheduled, the clinical nurse specialist will assist in obtaining equipment and coordinating therapies.

While neither of these spasticity treatments - selective dorsal rhizotomy or the Baclofen pump - will eliminate the underlying neurological problem (e.g. Cerebral palsy), reducing the spasticity may allow better muscle control and function. Physical and occupational therapy will also be essential before and after surgery.

Wheelchair/Seating and Mobility Clinic

Cerebral Palsy and Spasticity Program

South Florida's Top-Ranked Hospital for Pediatric Orthopedic Care

Phone: (786) 624-2154

The Importance of a Team Approach to Care

The goal is to maximize movement, comfort and quality of life for affected children and their families.

Treatment Options for Spasticity

Wheelchair/Seating and Mobility Clinic

Cerebral Palsy and Spasticity Program

South Florida's Top-Ranked Hospital for Pediatric Orthopedic Care

Phone: (786) 624-2154

The Importance of a Team Approach to Care

The goal is to maximize movement, comfort and quality of life for affected children and their families.

Treatment Options for Spasticity

Wheelchair/Seating and Mobility Clinic

Cerebral Palsy and Spasticity Program

South Florida's Top-Ranked Hospital for Pediatric Orthopedic Care

Phone: (786) 624-2154

The Importance of a Team Approach to Care

The goal is to maximize movement, comfort and quality of life for affected children and their families.

Treatment Options for Spasticity

Wheelchair/Seating and Mobility Clinic

Outpatient Cardiology Program

Delivering the highest-quality care with convenient access

Phone: 1-888-624-2778

The Nicklaus Children's Outpatient Cardiology Program is recognized for expertise in the care and management of pediatric heart disease, offering evaluation and treatment for fetal, newborns, children and adults with a suspected or a diagnosed cardiac disorder. Part of Nicklaus Children’s nationally ranked Heart Institute; the outpatient cardiology clinic is committed to delivering the highest-quality care with convenient access to services for families in Palm Beach County and Treasure Coast.

The outpatient cardiology clinic provides extensive evaluation and management of patients with a wide range of cardiac disorders.

We are particularly recognized for care of:

Families with complex fetal cardiac diagnoses
Patients with complex congenital cardiac diagnoses
Patients with complex medical conditions requiring multiple subspecialty evaluations and coordination of care
Patients with cardiac concerns associated with genetic syndromes and advanced lipid disorders

Subspecialty Cardiology Clinics

Adult Congenital Heart Program
Cardiac Prenatal Program
Cardiometabolic & Preventive Program (CAMP)
Electrophysiology & Pacemaker Clinic
Free EKG for Student Athletes

Outpatient Cardiology Services

Echocardiogram for complex congenital heart disease
EKG, holter monitor, event monitor, and pacemaker/ICD analysis
Genetic testing to identify congenital heart conditions
24-hour ambulatory blood pressure monitoring
Exercise stress testing performed at offsite partner hospitals
Cardiac nutritional counseling with a licensed nutritionist
Advanced lipoprotein analysis

What can I expect during a cardiac outpatient evaluation?

During your visit expect to spend time with our team
Expect a detailed cardiac evaluation with attention to minimizing stress on your child and family
Expect to learn and feel empowered regarding your child’s cardiac diagnosis
Expect to have access to our team for future questions or concerns

Inpatient consultations also available at:

Outpatient Cardiology Program

Delivering the highest-quality care with convenient access

Phone: 1-888-624-2778

The outpatient cardiology clinic provides extensive evaluation and management of patients with a wide range of cardiac disorders.

We are particularly recognized for care of:

Families with complex fetal cardiac diagnoses
Patients with complex congenital cardiac diagnoses
Patients with complex medical conditions requiring multiple subspecialty evaluations and coordination of care
Patients with cardiac concerns associated with genetic syndromes and advanced lipid disorders

Subspecialty Cardiology Clinics

Adult Congenital Heart Program
Cardiac Prenatal Program
Cardiometabolic & Preventive Program (CAMP)
Electrophysiology & Pacemaker Clinic
Free EKG for Student Athletes

Outpatient Cardiology Services

Echocardiogram for complex congenital heart disease
EKG, holter monitor, event monitor, and pacemaker/ICD analysis
Genetic testing to identify congenital heart conditions
24-hour ambulatory blood pressure monitoring
Exercise stress testing performed at offsite partner hospitals
Cardiac nutritional counseling with a licensed nutritionist
Advanced lipoprotein analysis

What can I expect during a cardiac outpatient evaluation?

During your visit expect to spend time with our team
Expect a detailed cardiac evaluation with attention to minimizing stress on your child and family
Expect to learn and feel empowered regarding your child’s cardiac diagnosis
Expect to have access to our team for future questions or concerns

Inpatient consultations also available at:

NeuroCardiac and Development Program

Focused on supporting the developmental needs of children with congenital heart disease.

Phone: 305-662-8301

Who We Are

As increasing numbers of children survive congenital heart disease (CHD) treatments, there is growing recognition of developmental, behavioral and academic challenges that may impact these children as they grow.

The NeuroCardiac and Development Program offers a multidisciplinary approach for the evaluation and treatment of children with congenital heart defects (CHD), and develop an individualized treatment for each child.

Nicklaus Children’s Hospital is part of the Cardiac Neurodevelopmental Outcome Collaborative (CNOC), a national consortium of healthcare organizations and professionals committed to optimizing neurodevelopmental outcomes for individuals with pediatric and congenital heart disease through clinical, quality and research initiatives, with the goal to maximize quality of life for every individual.

Is the NeuroCardiac Development Program Right for Your Child?

Ideal candidates for this program are children with a congenital heart defect and experiencing any of the following:

Surgery within the first 6 months of life
Developmental or genetic syndromes
Seizures or stroke
Prematurity (Born <37 weeks gestation)
Not meeting developmental milestones
Emotional outbursts or behavioral problems
Struggling in school

Evaluations

The NeuroCardiac and Development Program specialists help identify potential developmental delays, learning and/or behavioral concerns during the different stages of childhood. Individualized recommendations are made during your child’s visit to help support their needs. Clinic visits are scheduled according to your child’s age and needs.

Infancy (First year of life)

Developmental evaluations

Within the first 3 months of life
6 months
9 months
12 months

During each evaluation, the specialist will assess your child’s developmental milestones of physical, motor, social-emotional, speech development and feeding skills.

Toddler (1 - 3 years of age) & Preschool (3 - 5 years of age)

Developmental evaluations

18 months (1.5 years of age)
36 months ( 3 years of age)
5 years of age

The specialist will continue to assess your child’s physical, motor, social-emotional, speech development and feeding skills. In addition, they will assess behavioral patterns and function. Starting at age 5 a neuropsychologist will perform comprehensive evaluations of cognitive, psychosocial and behavioral abilities to assess for school readiness.

School-Age (6+ years of age)

Evaluations by a neuropsychologist are based on your child’s needs and can continue throughout adolescence. Find descriptions of Neuropsychological Assessments here.

Features of our program

Inpatient Neurocardiac Rounds: During the child’s hospitalization in the cardiac unit, the multidisciplinary team meets weekly to identify risk factors that could impact your child’s neurodevelopmental outcomes. Recommendations are made to the medical team and intervention is started. Our team well understands that the earlier the concerns are evaluated and delays are identified, the better the opportunity to achieve a successful outcome.
Outpatient Neurocardiac Clinic: The team of specialists will continue to follow up with those patients who have risk factors that could impact the patient’s development, those with developmental delays and/or learning difficulties. Evaluations begin in infancy and continue through the child’s transition to adulthood.

Developmental Screenings and Evaluations provide families with resources for variety of early intervention programs and services, including:

Early Steps
Speech and Language Pathology (SLP) Therapies
Physical Therapy
Occupational Therapy
Applied Behavior Analysis (ABA) Therapy
Pediatric Psychology (e.g., parent-child interaction therapy, parent management training)
Pediatric Audiology
UM-NSU Center for Autism and Related Disabilities (UM-NSU CARD)
FIU Center for Children and Families (FIU CCF)

Multidisciplinary Team of Specialists

The program brings together a team of pediatric specialists for the evaluation and management of each child’s condition during collaborative clinics. This team approach simplifies the care journey for families, enabling them to consult with all needed specialists during a single clinic visit and benefit from the collective assessment of the entire team. The team is integrated by the following pediatric specialties:

Cardiology
Developmental-Behavioral Pediatrics
Neurology
Neuropsychology
Rehabilitation
Social Worker

Visit our Family Resources for helpful links and information for families of children with CHD.

NeuroCardiac and Development Program

Focused on supporting the developmental needs of children with congenital heart disease.

Phone: 305-662-8301

Who We Are

Is the NeuroCardiac Development Program Right for Your Child?

Ideal candidates for this program are children with a congenital heart defect and experiencing any of the following:

Surgery within the first 6 months of life
Developmental or genetic syndromes
Seizures or stroke
Prematurity (Born <37 weeks gestation)
Not meeting developmental milestones
Emotional outbursts or behavioral problems
Struggling in school

Evaluations

Infancy (First year of life)

Developmental evaluations

Within the first 3 months of life
6 months
9 months
12 months

During each evaluation, the specialist will assess your child’s developmental milestones of physical, motor, social-emotional, speech development and feeding skills.

Toddler (1 - 3 years of age) & Preschool (3 - 5 years of age)

Developmental evaluations

18 months (1.5 years of age)
36 months ( 3 years of age)
5 years of age

School-Age (6+ years of age)

Evaluations by a neuropsychologist are based on your child’s needs and can continue throughout adolescence. Find descriptions of Neuropsychological Assessments here.

Features of our program

Inpatient Neurocardiac Rounds: During the child’s hospitalization in the cardiac unit, the multidisciplinary team meets weekly to identify risk factors that could impact your child’s neurodevelopmental outcomes. Recommendations are made to the medical team and intervention is started. Our team well understands that the earlier the concerns are evaluated and delays are identified, the better the opportunity to achieve a successful outcome.
Outpatient Neurocardiac Clinic: The team of specialists will continue to follow up with those patients who have risk factors that could impact the patient’s development, those with developmental delays and/or learning difficulties. Evaluations begin in infancy and continue through the child’s transition to adulthood.

Developmental Screenings and Evaluations provide families with resources for variety of early intervention programs and services, including:

Early Steps
Speech and Language Pathology (SLP) Therapies
Physical Therapy
Occupational Therapy
Applied Behavior Analysis (ABA) Therapy
Pediatric Psychology (e.g., parent-child interaction therapy, parent management training)
Pediatric Audiology
UM-NSU Center for Autism and Related Disabilities (UM-NSU CARD)
FIU Center for Children and Families (FIU CCF)

Multidisciplinary Team of Specialists

Cardiology
Developmental-Behavioral Pediatrics
Neurology
Neuropsychology
Rehabilitation
Social Worker

Visit our Family Resources for helpful links and information for families of children with CHD.

NeuroCardiac and Development Program

Focused on supporting the developmental needs of children with congenital heart disease.

Phone: 305-662-8301

Who We Are

Is the NeuroCardiac Development Program Right for Your Child?

Ideal candidates for this program are children with a congenital heart defect and experiencing any of the following:

Surgery within the first 6 months of life
Developmental or genetic syndromes
Seizures or stroke
Prematurity (Born <37 weeks gestation)
Not meeting developmental milestones
Emotional outbursts or behavioral problems
Struggling in school

Evaluations

Infancy (First year of life)

Developmental evaluations

Within the first 3 months of life
6 months
9 months
12 months

During each evaluation, the specialist will assess your child’s developmental milestones of physical, motor, social-emotional, speech development and feeding skills.

Toddler (1 - 3 years of age) & Preschool (3 - 5 years of age)

Developmental evaluations

18 months (1.5 years of age)
36 months ( 3 years of age)
5 years of age

School-Age (6+ years of age)

Evaluations by a neuropsychologist are based on your child’s needs and can continue throughout adolescence. Find descriptions of Neuropsychological Assessments here.

Features of our program

Inpatient Neurocardiac Rounds: During the child’s hospitalization in the cardiac unit, the multidisciplinary team meets weekly to identify risk factors that could impact your child’s neurodevelopmental outcomes. Recommendations are made to the medical team and intervention is started. Our team well understands that the earlier the concerns are evaluated and delays are identified, the better the opportunity to achieve a successful outcome.
Outpatient Neurocardiac Clinic: The team of specialists will continue to follow up with those patients who have risk factors that could impact the patient’s development, those with developmental delays and/or learning difficulties. Evaluations begin in infancy and continue through the child’s transition to adulthood.

Developmental Screenings and Evaluations provide families with resources for variety of early intervention programs and services, including:

Early Steps
Speech and Language Pathology (SLP) Therapies
Physical Therapy
Occupational Therapy
Applied Behavior Analysis (ABA) Therapy
Pediatric Psychology (e.g., parent-child interaction therapy, parent management training)
Pediatric Audiology
UM-NSU Center for Autism and Related Disabilities (UM-NSU CARD)
FIU Center for Children and Families (FIU CCF)

Multidisciplinary Team of Specialists

Cardiology
Developmental-Behavioral Pediatrics
Neurology
Neuropsychology
Rehabilitation
Social Worker

Visit our Family Resources for helpful links and information for families of children with CHD.

Recreational Experiences

We CREATE Positive Memories

Phone: 786-624-7900

Philosophy of Play Spaces for Hospitalized Children

Play spaces are a child’s haven. It is the one aspect of a child’s hospitalization wherein he/she has some control of the hospital. A child can decide to come to the playroom and participate in special activities, free play, or may choose not to come at all. Play spaces allow children to have an opportunity to socialize with children that may share similar experiences.

Play spaces are equally important to siblings, as well as the hospitalized child. Dedicated spaces for recreational play and guided activities offer parents and caregivers peace of mind to focus on the needs of the hospitalized child.

Amphitheater & Plaza Events

Located in the Main Lobby of the Advanced Pediatric Care Pavilion (APCP), this space is exclusively dedicated for recreational engagement of all of our patients and families and their visitors. The Amphitheater and Plaza host patient enrichment activities and a variety of special events in partnership with our community donors.

Broadway Performances
Licensed Character Visits
Seasonal Celebrations
Meet & Greets
Broadway Performances Miniature Golf Lessons
Watch Parties
Special Giveaways

Main Playroom

Located on 3rd floor of the Central Building, is available for all inpatient families a guests. Children and their families are welcome to explore a variety of recreational activities.

Outdoor Play Area
Video Game Station
Basketball Hoop
Sensory Station
Pool Table
Oversized Board Games
Arts & Crafts Station
Medical Play Area

Hours of operation vary by Play Space.

Outpatient Nutritional Consultations

Improve and mantain your child's nutritional health

Phone: 1-877-624-8413

Nicklaus Children’s Hospital Food and Nutrition Services Department offers nutritional consultations at our outpatient centers. Our goal is to maintain and improve your child’s nutritional health.

Nutrition consultations are available for children from infancy through adolescence. We offer outpatient assessments and counseling with referrals from your child’s pediatrician or specialty physician.

Nutrition Issues in Children

Registered dietitians from the Clinical Nutrition Department provide in-depth nutrition assessment and counseling to help with a variety of nutrition issues in children including:

Cardiovascular disease, hypertension, elevated blood cholesterol
Malnutrition
High cholesterol
Picky eating and inadequate nutrition
Nutrient deficiencies

Children with Food Allergies

For children that suffer from food allergies or intolerances, the RD will teach them and the parent how to read food labels. Learning about food labels will help you know which ingredients to avoid and will help you to find substitutions to keep your child’s diet balanced and tasty.

Weight Management for Children

If your child has been struggling with weight gain, the RD will work with you to make sure your child gets enough of all the key nutrients. The RD can also suggest high-calorie, high protein meal plans and products that will help your child thrive.

Children on Nutrition Support

If your child is on nutrition support, the RD will come up with the right feeding regimen according to your child’s special nutritional needs, while helping you make your child feel included.

If the family time involves sharing meals, this can make a child on nutrition support feel left out. The RD knows that and they will help you come up with ideas of family rituals and family time around activities that do not involve meals or food.

Support for Children with Chronic Conditions

If your child suffers from a chronic condition, the RD will help you understand the condition and provide education to help you create a meal plan that includes all the important nutrients to manage this condition.

Sports Nutrition Counseling
Tube Feeding
Weight management
Vegetarian/vegan diets

What should I expect during my visit?

During your initial visit, the Registered Dietitian (RD) will attentively listen about your child’s eating habits, food preferences, family dynamics and dietary restrictions. The RD will obtain an eating history, body measurements and will review medical information from the child’s primary physician.

During this visit the Registered Dietitian (RD) will provide you with specific information and may also use some materials such as measuring cups, food models or food label reading to demonstrate you and your child important concepts related to nutrition.

As part of the consultation, the RD will also use creative strategies to help with meal planning, grocery shopping, food journaling and mindful eating. She/he will also be able to suggest some reliable websites, social media channels and apps that can be used as tools to help you reach your child’s nutrition and health goals.

After learning about your child’s health history, favorite foods, eating and exercise habits, and some of the family dynamics, the dietitian will help you as a family set goals and prioritize. Therefore the patient and family will work together with the RD to develop a safe, effective and individualized nutrition plan that will suit your child’s specific needs.

Follow-up visits will focus on maintenance and monitoring of the progress your child has made. Keep in mind that every follow up visit is a new opportunity to review or learn new things regarding your child’s health and nutrition.

Initial appointments last about an hour, and follow-up visits can be scheduled to monitor progress and adjust treatment plans, this typically last a little less than the initial appointment.

Counseling is available in English and Spanish. Our services require a referral from a pediatrician.

Outpatient Nutritional Consultations

Improve and mantain your child's nutritional health

Phone: 1-877-624-8413

Nutrition Issues in Children

Registered dietitians from the Clinical Nutrition Department provide in-depth nutrition assessment and counseling to help with a variety of nutrition issues in children including:

Cardiovascular disease, hypertension, elevated blood cholesterol
Malnutrition
High cholesterol
Picky eating and inadequate nutrition
Nutrient deficiencies

Children with Food Allergies

Weight Management for Children

Children on Nutrition Support

If your child is on nutrition support, the RD will come up with the right feeding regimen according to your child’s special nutritional needs, while helping you make your child feel included.

Support for Children with Chronic Conditions

Sports Nutrition Counseling
Tube Feeding
Weight management
Vegetarian/vegan diets

What should I expect during my visit?

Initial appointments last about an hour, and follow-up visits can be scheduled to monitor progress and adjust treatment plans, this typically last a little less than the initial appointment.

Counseling is available in English and Spanish. Our services require a referral from a pediatrician.

Welcome to Volunteer Resources!

It's time to make a difference at Nicklaus Children's Hospital

Phone:

Thank you for your interest in volunteering at Nicklaus Children’s Hospital! Nicklaus Children's volunteers make a difference with the patients and families in the hospital and outpatient centers by providing comfort, care, and unexpected joy, and by supporting the professional staff throughout Nicklaus Children's Health System. The Volunteer Resources Department orients, interviews, trains, and places all qualified applicants who wish to volunteer.

Our volunteers are passionate about helping children throughout the community by providing compassionate and empathetic care & support across a variety of volunteer programs. Volunteers are also in alignment with Nicklaus Children’s Health System mission and values and operating statement.

We enthusiastically welcome individuals of all backgrounds and abilities, and offer a wide variety of volunteer opportunities to meet the interests, needs, and desired experiences of all volunteers.

Volunteer Requirements

If you believe you would be a great addition to the NCHS volunteer team – please review the volunteer requirements below and use the provided link to begin the application process.

All health and safety checks must be in compliance, we do not offer any exemptions on the vaccine requirements
MMR/TB testing/Varicella/TDap/annual influenza
Background check for individuals 18+ (Please note we do not accept court ordered community service hours.)
Volunteers require a minimum commitment of 6 consecutive months 80 total hours // 3 hours per week
Volunteer applications can take up to 4-6 weeks for processing
All volunteers will have to attend a mandatory orientation, along with any other trainings required for their volunteer assignment

Volunteer Programs

Bedside Buddies

Volunteers provide engagement opportunities through play at the bedside for admitted children

Children & Family Experience

Volunteers provide engagement opportunities through play at –play areas, lobbies, common areas, etc., family resource center support

Cuddler

Volunteer provides affection, love, and warmth through touch to admitted patients

Pet Therapy

The use of therapy dogs to enhance the patient experience

Administrative Support

Assists with administrative duties such as filing, organizing, data entry, phone calls, and additional clerical tasks

Events

Provides support for special events across the health system

Teen program

Teens assist with engagement and support programs in structured shifts at varying points in the year

Miami-Dade Community Resources

Nicklaus Children’s understands many factors impact your child’s health. There are resources available throughout the community, and this list can serve as one starting point to find help.

Phone:

Remember these three digit numbers: 211 & 988

Call 211 for essential community services, 24/7 in English, Spanish and Creole.
Call or text 988 for 24/7 Suicide and Crisis Lifeline support in English and Spanish.

Miami-Dade Community Resources

For Food

Feeding South Florida
WIC - for children 0-5 and breastfeeding mothers
SNAP - simplified application through mRelief

For Housing

For Utilities

For Transportation

For Community Resource Centers

Services and Locations

For Prescription Delivery

Many insurance companies provide prescription delivery, please reach out to your company to check.

For Cell Phone/Internet Benefits

Affordable Connectivity Program - Pulsewrx

For Medicaid

Florida Department of Children and Families

Broward Community Resources

Review resources for Broward County.

Palm Beach Community Resources

Review resources for Palm Beach County.

Lipid Clinic

Complex lipid disorders such as high LDL cholesterol, elevated triglycerides, elevated lipoprotein (a), and other complex lipid conditions generally have genetic roots.

Phone: 305-662-8301

At Nicklaus Children’s Hospital, our team of pediatric cardiologists will work on a comprehensive plan including close monitoring, a dietary plan physical activity recommendations and, in some cases, genetic testing or medication to control lipid disorders with the goal of preventing heart disease.

The team specializes in treating complex lipid disorders such as high LDL cholesterol, elevated triglycerides, elevated lipoprotein (a), and other complex lipid conditions with genetic (familial) causes. We also focus on pediatric patients whose parents have suffered from early onset heart attack or stroke.

What is a lipid?

A lipid is a type of fat found in the blood. When lipids in the body are elevated, particularly cholesterol, it puts the patient at greater risk for heart disease and other conditions.

Who is a candidate for the clinic?

Children and adolescents up to the age of 21 with abnormal lipid profiles, parental history for early onset heart attack or stroke, or have conditions which predispose to abnormal lipid levels (i.e. diabetes, history for cancer, or kidney disease).

Lipid Clinic

Complex lipid disorders such as high LDL cholesterol, elevated triglycerides, elevated lipoprotein (a), and other complex lipid conditions generally have genetic roots.

Phone: 305-662-8301

What is a lipid?

A lipid is a type of fat found in the blood. When lipids in the body are elevated, particularly cholesterol, it puts the patient at greater risk for heart disease and other conditions.

Who is a candidate for the clinic?

Chromosome 22q Clinic

Specialty clinic for treatment and management of DiGeorgee Syndrome in children

Phone: (786) 624-2381

The Chromosome 22 Q Clinic at Nicklaus Children’s Hospital is Florida's specialty multidisciplinary service dedicated to the care and support of children born with chromosome 22Q deletion. This hereditary condition affects one of every 2,000- 4,000 newborns and is present in 5 to 8 percent of children born with a cleft palate.

Also known as 22q11.2 deletion syndrome, DiGeorge syndrome and velo-cardio-facial syndrome, 22Q disorder results when a small segment of the 22nd chromosome is missing. This small chromosomal deletion can affect virtually every body system and is the second most common genetic disorder, with Down syndrome being the most prevalent.

The deletion of 22Q is associated with a wide array of symptoms which include delays in growth, congenital heart disease, breathing concerns, cleft and craniofacial issues, immune deficiencies, kidney problems and anomalies of the skeletal system. It also may result in developmental delays and cognitive delays as well as attention deficit hyperactivity disorder (ADHD), autism and anxiety disorders.

Congenital heart surgery
Developmental therapies(Speech therapy, occupational and developmental therapies can be made available at Nicklaus Children’s outpatient centers located throughout South Florida)

Craniofacial Center

A Multidisciplinary Team Approach to Care

With so many body systems potentially affected by chromosome 22Q deletion, affected families benefit from a team approach to care that brings together a full array of specialists in a single clinic visit to consult collaboratively in the child’s care and management. The team evaluates each child and works together to develop an optimal care planned to address each child’s individual needs.

The team includes specialists in:

Chromosome 22q Clinic

Specialty clinic for treatment and management of DiGeorgee Syndrome in children

Phone: (786) 624-2381

Congenital heart surgery
Developmental therapies(Speech therapy, occupational and developmental therapies can be made available at Nicklaus Children’s outpatient centers located throughout South Florida)

Craniofacial Center

A Multidisciplinary Team Approach to Care

The team includes specialists in:

Chromosome 22q Clinic

Specialty clinic for treatment and management of DiGeorgee Syndrome in children

Phone: (786) 624-2381

Congenital heart surgery
Developmental therapies(Speech therapy, occupational and developmental therapies can be made available at Nicklaus Children’s outpatient centers located throughout South Florida)

Craniofacial Center

A Multidisciplinary Team Approach to Care

The team includes specialists in:

Chromosome 22q Clinic

Specialty clinic for treatment and management of DiGeorgee Syndrome in children

Phone: (786) 624-2381

Congenital heart surgery
Developmental therapies(Speech therapy, occupational and developmental therapies can be made available at Nicklaus Children’s outpatient centers located throughout South Florida)

Craniofacial Center

A Multidisciplinary Team Approach to Care

The team includes specialists in:

Center for Treatment of Beckwith-Wiedemann Syndrome

One of the leading programs in the world for BWS treatment

Phone: (305) 278-5923

What is Beckwith-Wiedmann Syndrome?

Beckwith-Wiedemann syndrome, or BWS, is a genetic condition caused by abnormal gene regulation. It can cause premature birth, low blood sugar, abdominal problems, and macroglossia (enlarged tongue). Approximately 300 children per year are born with Beckwith-Wiedemann syndrome and while most cases are sporadic, some may be hereditary depending on the underlying cause.

Center for Beckwith-Wiedemann Syndrome

The Center for Beckwith-Wiedemann Syndrome at Nicklaus Children’s Hospital is one of the leading programs in the world for BWS treatment, continuously helping children with BWS go on to live healthy, normal lives. We offer a multidisciplinary approach to care that addresses the full scope of needs for patients with this congenital disorder. The center is also one of the few in the nation with long-standing interest and experience in caring for children with BWS.

Prenatal Beckwith-Wiedemann syndrome diagnosis
Surgical treatment of macroglossia (enlarged tongue)
Treatment and therapy for BWS symptoms
Ongoing screening protocols

BWS Family Conference

Join us on from July 22 to July 23 for our BWS Family Conference! A panel of experts and guest speakers will present on different topics in treating craniofacial differences in children. Families will have the opportunity for in-person clinics with our renowned team and to ask questions. Virtual access to the lectures is also available.

Contact Us

If you have questions or would like more information, please contact:

Kristen Burr
BWS Coordinator
T) (305) 278-5923
Kristen.burr@nicklaushealth.org

Center for Treatment of Beckwith-Wiedemann Syndrome

One of the leading programs in the world for BWS treatment

Phone: (305) 278-5923

What is Beckwith-Wiedmann Syndrome?

Center for Beckwith-Wiedemann Syndrome

Prenatal Beckwith-Wiedemann syndrome diagnosis
Surgical treatment of macroglossia (enlarged tongue)
Treatment and therapy for BWS symptoms
Ongoing screening protocols

BWS Family Conference

Contact Us

If you have questions or would like more information, please contact:

Kristen Burr
BWS Coordinator
T) (305) 278-5923
Kristen.burr@nicklaushealth.org

Center for Treatment of Beckwith-Wiedemann Syndrome

One of the leading programs in the world for BWS treatment

Phone: (305) 278-5923

What is Beckwith-Wiedmann Syndrome?

Center for Beckwith-Wiedemann Syndrome

Prenatal Beckwith-Wiedemann syndrome diagnosis
Surgical treatment of macroglossia (enlarged tongue)
Treatment and therapy for BWS symptoms
Ongoing screening protocols

BWS Family Conference

Contact Us

If you have questions or would like more information, please contact:

Kristen Burr
BWS Coordinator
T) (305) 278-5923
Kristen.burr@nicklaushealth.org

Center for Treatment of Beckwith-Wiedemann Syndrome

One of the leading programs in the world for BWS treatment

Phone: (305) 278-5923

What is Beckwith-Wiedmann Syndrome?

Center for Beckwith-Wiedemann Syndrome

Prenatal Beckwith-Wiedemann syndrome diagnosis
Surgical treatment of macroglossia (enlarged tongue)
Treatment and therapy for BWS symptoms
Ongoing screening protocols

BWS Family Conference

Contact Us

If you have questions or would like more information, please contact:

Kristen Burr
BWS Coordinator
T) (305) 278-5923
Kristen.burr@nicklaushealth.org

Pediatric Intensive Care Unit (PICU)

Our PICU is the most experienced pediatric and neonatal Extracorporeal Membrane Oxygenation (ECMO) resource for children with life-threatening heart and lung conditions.

Phone: (305) 669-5818

The Pediatric Intensive Care Unit at Nicklaus Children’s Hospital is a 40-bed unit that provides sophisticated technologies and procedures for high acuity, critically ill infants, children and adolescents from birth to 21 years of age. Aside from the hospital’s overarching mission – to inspire hope and promote lifelong health by providing the best care to every child – and its vision – to be where the children are – the Pediatric Intensive Care Unit uniquely devised, through a multi-disciplinary approach, its own mission, vision, and values to guide care.

Children's Intensive Care LifeFlight® Transport

Many neonatal and pediatric patients at other hospitals who face life-threatening medical conditions requiring critical care are transferred to Nicklaus Children's Pediatric Intensive Care Unit by a specialized mobile intensive care unit known as LifeFlight®.

This highly trained team of physicians, nurses, EMTs and paramedics utilizes self-contained life-support equipment to stabilize, treat and monitor a child upon contact at the referring facility and throughout transport via ground, helicopter or fixed-wing ambulance.

Family-Centered Care

Whether a patient is admitted to Nicklaus Children's PICU under the care of a personal physician, by a staff physician, or through another intensive care unit, the child becomes the center of a multi-disciplinary team effort. More than 100 critical care nurses monitor patient progress minute-to-minute, 24 hours a day, seven days a week. Nurses are situated in alcoves between rooms in order to make them readily accessible to patient and family needs.

Family-centered care is the main core of the unit’s processes. Happy Family Rounds occur every morning with a visit from a patient-family representative, case manager, and PICU unit manager to address any needs and concerns. In addition, family members are encouraged to participate in daily physician rounds. Multi-disciplinary meetings are also coordinated on a needs basis with families.

The water-themed PICU attempts to provide a tranquil and comfortable environment for patients and families. All rooms are private with a family area that includes a couch that pulls out into a full-sized bed, a large screen TV, internet access, and private bathroom. For added comfort, there is a family lounge on the unit with a coffee maker, refrigerator, microwave, dining tables, sofa, and TV.

We understand that respirators, EKG monitors, intravenous tubes, and the technology of today's children's intensive care can overwhelm a child and family. Aside from the Get Well Network that provides access to the internet, movies, and patient-specific education at the bedside through the TV, the medical staff of Nicklaus Children's PICU is supported by an extensive and family-centered, human resources team that includes social workers, child life specialists, hospital chaplains, and volunteers.

Our Mission, Vision and Values

Mission: The Pediatric Intensive Care Unit at Nicklaus Children’s Hospital is a unique academic and family-centered environment dedicated to providing barrier-free access to achieve the best outcomes.

Vision: The Pediatric Intensive Care Unit at Nicklaus Children’s Hospital is the leading center of comprehensive care for every critically ill child.

Values: At the Pediatric Intensive Care Unit at Nicklaus Children’s Hospital our core values are to provide family-centered care through:

Pursuing Excellence
Practicing Integrity and Respect
Promoting Collaboration in Care
Innovation
Ownership and Initiative

Successful Outcomes

Nicklaus Children's PICU patients spend more than 2,000 patient days attached to ventilators each year another measure of the units acuity of care. Despite handling the most severely stricken children (with an average of nearly 300 patients transferred from other hospitals every year), Nicklaus Children's intensive care consistently outperforms the national averages, both in mortality rates (2% vs. 6%) and in length of patient stays (3.5 days vs. 4.7 days).

Successful outcomes such as these speak directly to the value of specialized child care. Nicklaus Children's Pediatric ICU has reached a critical mass in acute care for children and it shows. The experience of staff physicians and clinical care nurses, their procedures and even their equipment reflect the particular needs of children.

According to VPS, an independent national ICU database, the Pediatric Intensive Care Unit at Nicklaus Children's Hospital maintains one of the best outcomes in the country, with an average mortality of 1.77% from 2005 to 2011, as compared to 2.84 % among our peers. Our standardized mortality ratio (ratio of actual mortality to expected mortality) is 0.57 compared to 0.96 in our peer group.

standardized mortality ration 2016 to 2006 data

unadjusted mortality rate chart 2016 to 2005 data
Source: VPS Participant Sites

LifeFlight® Critical Care Transport

The Pediatric/Neonatal Critical Care Specialist

Phone: 1-888-LIFE-FLT

Transport Available Around the Clock

The LifeFlight® transport service is based in Miami, Florida and provides specialized advanced life support and critical care patient transport by ground and air ambulance 24 hours a day, 365 days a year. The service area includes South Florida, the Caribbean, and Central and South America.

LifeFlight® is a transport service that conducts inter-facility transport of patients to intensive care units, emergency departments, and medical surgical units. On request, LifeFlight® also transfers patients from Nicklaus Children's Hospital to other facilities and also handles third-party transfers for patients seeking transport to other facilities.

The team is committed to utilizing the appropriate transport (air or ground) to enhance patient outcome, safety and cost effectiveness to best serve our community.

Pediatric and Neonatal Critical Transports

LifeFlight® transports patients representing a broad range of ages, including:

neonatal patients (birth to 28 days; preterm through term)
infants (29 days to 1 year)
pediatric patients (age 1 through 17 years)
and adult patients (18 years and older).
Non-pediatric patients are not transferred to the Nicklaus Children's main campus.

Critical Care Life Support Systems

The LifeFlight® program safely transports more 4,000 infants and children per year to Nicklaus Children's Hospital. Patients come from local clinics and hospitals as well as from referring centers throughout Florida, the Caribbean, and South and Central America.

LifeFlight® carries some of the most advanced life-support systems such as:

neonatal and pediatric ventilators
defibrillators
intubation equipment
cardio-respiratory and hemodynamic monitors
infusion devices
whole-body hypothermia capabilities
transport phototherapy capabilities
transcutaneous Pa02 monitors
emergency medications
transport incubators and other equipment necessary for IV therapy
cardio-pulmonary resuscitation
care of the critical patient at altitude by a team comprised of critical care transport ECLS

About the LifeFlight® Team

The LifeFlight® transport team is comprised of multidisciplinary medical professionals and includes registered nurses, paramedics and emergency medical technicians in a variety of transport roles, including but not limited to critical care, advanced life support, and specialty care transport.

All clinical team members hold a national certification in their respective disciplines, with many team members holding transport-specific certifications. The LifeFlight® transfer center is staffed by communications specialists who are also nationally certified flight communicators.

About the Fleet

The LifeFlight® fleet includes:

Six hospital-owned and leased ground ambulances that are specially equipped to provide critical care or advanced life-saving support for patients.
A hospital-owned Sikorsky® S76 C+ helicopter and a leased Sikorsky S76 C++ helicopter. Both are operated by PHI Air Medical, which is equipped to care for any acuity-level patient of any age.*
Fixed-wing airplanes contracted through Aitheras (primary provider) or other contract carriers (if primary provider unavailable).*

*Nicklaus Children's Hospital is not a direct air carrier. Aircraft, both helicopters and fixed wing, are operated pursuant to contract with Nicklaus Children's by companies that are FAA certified. Licenses for all associated transport craft (ground and air) can be found at Florida Department of Health site.

LifeFlight® Critical Care Transport

The Pediatric/Neonatal Critical Care Specialist

Phone: 1-888-LIFE-FLT

Transport Available Around the Clock

The team is committed to utilizing the appropriate transport (air or ground) to enhance patient outcome, safety and cost effectiveness to best serve our community.

Pediatric and Neonatal Critical Transports

LifeFlight® transports patients representing a broad range of ages, including:

neonatal patients (birth to 28 days; preterm through term)
infants (29 days to 1 year)
pediatric patients (age 1 through 17 years)
and adult patients (18 years and older).
Non-pediatric patients are not transferred to the Nicklaus Children's main campus.

Critical Care Life Support Systems

LifeFlight® carries some of the most advanced life-support systems such as:

neonatal and pediatric ventilators
defibrillators
intubation equipment
cardio-respiratory and hemodynamic monitors
infusion devices
whole-body hypothermia capabilities
transport phototherapy capabilities
transcutaneous Pa02 monitors
emergency medications
transport incubators and other equipment necessary for IV therapy
cardio-pulmonary resuscitation
care of the critical patient at altitude by a team comprised of critical care transport ECLS

About the LifeFlight® Team

About the Fleet

The LifeFlight® fleet includes:

Six hospital-owned and leased ground ambulances that are specially equipped to provide critical care or advanced life-saving support for patients.
A hospital-owned Sikorsky® S76 C+ helicopter and a leased Sikorsky S76 C++ helicopter. Both are operated by PHI Air Medical, which is equipped to care for any acuity-level patient of any age.*
Fixed-wing airplanes contracted through Aitheras (primary provider) or other contract carriers (if primary provider unavailable).*

Speak Now For Kids Family Advocacy Week

Elevating patient stories and educating lawmakers about the unique role of children's hospitals.

Phone:

Two Nicklaus Children’s Hospital patient families, the Hartrick family and the Coiras family, are participating in this year’s virtual Speak Now For Kids 2020 Family Advocacy Week campaign, organized by the Children’s Hospital Association.

Throughout the week, both families will join virtual meetings with elected officials to share their stories, educate lawmakers about the ongoing and essential care provided by Nicklaus Children’s Hospital during the COVID-19 pandemic and beyond, and discuss necessary short and long-term investments in children’s health that need to be made for children’s hospitals across the nation. Like Tad and Mark, many children in the state and in the nation rely on access to pediatric care and Medicaid funding in order to provide the best possible chance at the highest quality of life.

Share Our Stories!

Follow Nicklaus Children’s Hospital on social media to keep up with the Hartrick family and the Corias family as they post throughout the week, advocating for access to high quality pediatric care. Make sure to like their posts and share their stories to show your support. Facebook: @Nicklaus Children’s Hospital
Instagram: @nicklaus4kids Twitter: @nicklaus4kids

Mark's story

For the last nine years, Mark Coiras and his family have called Nicklaus Children’s Hospital their second home. Today, the Coiras family shares a piece of Mark’s journey as they advocate for access to pediatric care and Medicaid funding in support of this year’s Speak Now For Kids Family Advocacy Week.

baby tad right after surgery and after graduating from intensive care

Tad's story

Over the last two years, Theodore “Tad” Hartrick has spent months at a time at Nicklaus Children’s Hospital. Like Tad, there are many children in the state and in the nation who rely on access to pediatric care and Medicaid funding. Here is a message from the Hatrick family in support of this year’s Speak Now For Kids Family Advocacy Week campaign.

Kids Rely on Medicaid

Medicaid is a lifeline- it covers kids in every state, from every background. It provides affordable coverage to children in lower-income families and to kids with special health care needs. This federal-state partnership is the largest source of children's health coverage in the U.S.

Mark's Story

Trauma Services

The only freestanding pediatric trauma center in South Florida.

Phone: (305) 624-4640

The Miguel "Mike" B. Fernandez Family Pediatric Trauma Center at Nicklaus Children's Hospital Emergency Department is one of only two freestanding pediatric trauma centers in the state of Florida and the only freestanding pediatric trauma center in South Florida.

The Trauma Center serves children from birth to under 16 years of age, with outstanding outcomes. Most patients are victims of falls or motor vehicle accidents, and have sustained fractures or head injuries. The Trauma Center currently includes four trauma treatment bays within the Emergency Department capable of treating up to 8 traumatically injured patients.

Support Hospital Wide

The Trauma Team includes multidisciplinary healthcare professionals throughout Nicklaus Children's Hospital. The Operating Room and Recovery Room teams are often instrumental in providing life-saving and restorative treatment.

The 40-bed Pediatric Intensive Care Unit provides sustained treatment and oversight for children once they are stabilized by the trauma team for patients that require intensive monitoring. In addition to the ICU and OR, inpatient medical surgical units provide care for patients that are less critical. Nicklaus Children's is home to more than 475 pediatric subspecialists representing virtually every pediatric subspecialty. Many of these physicians have national and international reputations and are available to consult in the care of complex cases.

rainbow graphic with trauma stats

Classes and Programs to Promote Children's Well-Being

The Trauma Services Department offers a number of classes and programs to promote the well-being of children in our community.

Sport Injury prevention workshops for parents and coaches of young athletes
Court-ordered child passenger restraint course (C.R.O.P.)
Safe Sitter Program (16-hour program that instructs teens in caring for small children)
First aid
Safe Transport of Children with Special Needs, offering assistance in the selection of safety seats for proper fit and installation, and appropriateness for child’s overall passenger safety needs. Sponsored by the Florida Department of Transportation.
Safety health fairs (offered on campus and on location)

STOP THE BLEED®

Nicklaus Children’s Hospital offers STOP THE BLEED® training for area schools and other interested groups. Stop the Bleed is a curriculum developed by the American College of Surgeons to prepare individuals to respond to bleeding injuries. The number one cause of preventable death after injury is bleeding.
This training can help school or camp leaders be prepared to respond to a bleeding victim. Course participants will learn how to recognize life-threatening bleeding and to control it quickly and effectively, using three core techniques.

Due to the current pandemic, these courses can only be offered virtually or in an environment that allows for physical distancing and other safety provisions, at this time.

For more information or to request instruction, please call 786-624-4640.

Injury Prevention Programs

Nicklaus Children's Hospital is the Proud Lead Organization for the Miami-Dade County SAFE KIDS Coalition. The Miami-Dade County SAFE KIDS Coalition is comprised of public, private and voluntary organizations united and committed to identify and significantly reduce unintentional deaths and injuries to the children of South Florida. We respond to the needs of our community by providing professional education, practical training programs, and legislative initiatives essential to promote the safety and wellbeing of our children.

Pediatric Epilepsy Center

A Global Leader for Treating Epilepsy in Children.
Our top-ranked program offers the latest medical and surgical interventions to help children with epileptic seizures.

Phone: (786) 624-2381

Nicklaus Children's Brain Institute is an internationally recognized leader in caring for children and infants with epilepsy, welcoming patients from all over the world to visit our Epilepsy Center. The South Florida-based program offers the latest medical and surgical interventions to help children with epileptic seizures.

For children whose seizures cannot be controlled medically, the program is a world leader in performing pediatric epilepsy surgery. In fact, leaders who provide care at pediatric epilepsy centers around the world have received training right here at Nicklaus Children's Hospital. Our team has pioneered innovative, minimally invasive surgical methods for children including MRI-guided laser ablation surgery and focused ultrasound.

The program is centered around a team approach to care, in which clinicians from many different specialties come together to review patient information and plan the optimal treatment for each individual child. Epilepsy Center nurses and physicians provide compassionate and supportive care to support the needs of families of children confronting the challenges that come with recurrent seizures.

Choose a Global Leader for Treating Epilepsy in Children

The Epilepsy Center:

Has has offered new and investigational medicines to treat epilepsy for more than 30 years.
Was the first center in the world to directly map the brains of infants and children as a first step toward successful pediatric brain surgery.
Was among the first to offer surgical therapy for epilepsy associated with tuberous sclerosis and treat rare ion channel disturbances.
Is one of a handful of centers able to evaluate and surgically treat epilepsy in children with normal MRI scans. This group presents the greatest challenge for surgical planning.
Has pioneered minimally invasive techniques for pediatric epilepsy surgery, including laser technology to remove brain tissue causing seizures, and focused ultrasound to ablate epileptic tissue without the need to open the skull.

Conditions We Treat

New-onset seizures
Medically resistant epilepsy
Neuropsychiatric disorders
Rasmussen syndrome
Tuberous Sclerosis Complex
Congenital brain malformations
Brain tumor-associated epilepsy
Epilepsy caused by traumatic brain injury
Epilepsy caused by brain infections

State-of-the-Art Technology for Pediatric Epilepsy Care & Treatment

Epilepsy surgery using focused ultrasound
Optical imaging of epileptic tissue
Computer-modeled diagnosis of epilepsy source
Precision surgery made possible through intraoperative brain mapping
Neuro-intensive monitoring of children with severe epilepsy
Comprehensive genetic diagnosis of epileptic disorders

Excellent Surgical Outcomes

When surgical treatment is indicated for children and infants with medically resistant epilepsy (seizures that cannot be curbed by prescription medications), the Epilepsy Center stands out as the center where more than 1,600 surgeries for children with epilepsy have been since 1984. Even ten years after surgery, 67 percent of our patients remain seizure-free or almost y seizure-free.

Pediatric Epilepsy Center

A Global Leader for Treating Epilepsy in Children.
Our top-ranked program offers the latest medical and surgical interventions to help children with epileptic seizures.

Phone: (786) 624-2381

Choose a Global Leader for Treating Epilepsy in Children

The Epilepsy Center:

Has has offered new and investigational medicines to treat epilepsy for more than 30 years.
Was the first center in the world to directly map the brains of infants and children as a first step toward successful pediatric brain surgery.
Was among the first to offer surgical therapy for epilepsy associated with tuberous sclerosis and treat rare ion channel disturbances.
Is one of a handful of centers able to evaluate and surgically treat epilepsy in children with normal MRI scans. This group presents the greatest challenge for surgical planning.
Has pioneered minimally invasive techniques for pediatric epilepsy surgery, including laser technology to remove brain tissue causing seizures, and focused ultrasound to ablate epileptic tissue without the need to open the skull.

Conditions We Treat

New-onset seizures
Medically resistant epilepsy
Neuropsychiatric disorders
Rasmussen syndrome
Tuberous Sclerosis Complex
Congenital brain malformations
Brain tumor-associated epilepsy
Epilepsy caused by traumatic brain injury
Epilepsy caused by brain infections

State-of-the-Art Technology for Pediatric Epilepsy Care & Treatment

Epilepsy surgery using focused ultrasound
Optical imaging of epileptic tissue
Computer-modeled diagnosis of epilepsy source
Precision surgery made possible through intraoperative brain mapping
Neuro-intensive monitoring of children with severe epilepsy
Comprehensive genetic diagnosis of epileptic disorders

Excellent Surgical Outcomes

Pediatric Epilepsy Center

A Global Leader for Treating Epilepsy in Children.
Our top-ranked program offers the latest medical and surgical interventions to help children with epileptic seizures.

Phone: (786) 624-2381

Choose a Global Leader for Treating Epilepsy in Children

The Epilepsy Center:

Has has offered new and investigational medicines to treat epilepsy for more than 30 years.
Was the first center in the world to directly map the brains of infants and children as a first step toward successful pediatric brain surgery.
Was among the first to offer surgical therapy for epilepsy associated with tuberous sclerosis and treat rare ion channel disturbances.
Is one of a handful of centers able to evaluate and surgically treat epilepsy in children with normal MRI scans. This group presents the greatest challenge for surgical planning.
Has pioneered minimally invasive techniques for pediatric epilepsy surgery, including laser technology to remove brain tissue causing seizures, and focused ultrasound to ablate epileptic tissue without the need to open the skull.

Conditions We Treat

New-onset seizures
Medically resistant epilepsy
Neuropsychiatric disorders
Rasmussen syndrome
Tuberous Sclerosis Complex
Congenital brain malformations
Brain tumor-associated epilepsy
Epilepsy caused by traumatic brain injury
Epilepsy caused by brain infections

State-of-the-Art Technology for Pediatric Epilepsy Care & Treatment

Epilepsy surgery using focused ultrasound
Optical imaging of epileptic tissue
Computer-modeled diagnosis of epilepsy source
Precision surgery made possible through intraoperative brain mapping
Neuro-intensive monitoring of children with severe epilepsy
Comprehensive genetic diagnosis of epileptic disorders

Excellent Surgical Outcomes

Pediatric Epilepsy Center

A Global Leader for Treating Epilepsy in Children.
Our top-ranked program offers the latest medical and surgical interventions to help children with epileptic seizures.

Phone: (786) 624-2381

Choose a Global Leader for Treating Epilepsy in Children

The Epilepsy Center:

Has has offered new and investigational medicines to treat epilepsy for more than 30 years.
Was the first center in the world to directly map the brains of infants and children as a first step toward successful pediatric brain surgery.
Was among the first to offer surgical therapy for epilepsy associated with tuberous sclerosis and treat rare ion channel disturbances.
Is one of a handful of centers able to evaluate and surgically treat epilepsy in children with normal MRI scans. This group presents the greatest challenge for surgical planning.
Has pioneered minimally invasive techniques for pediatric epilepsy surgery, including laser technology to remove brain tissue causing seizures, and focused ultrasound to ablate epileptic tissue without the need to open the skull.

Conditions We Treat

New-onset seizures
Medically resistant epilepsy
Neuropsychiatric disorders
Rasmussen syndrome
Tuberous Sclerosis Complex
Congenital brain malformations
Brain tumor-associated epilepsy
Epilepsy caused by traumatic brain injury
Epilepsy caused by brain infections

State-of-the-Art Technology for Pediatric Epilepsy Care & Treatment

Epilepsy surgery using focused ultrasound
Optical imaging of epileptic tissue
Computer-modeled diagnosis of epilepsy source
Precision surgery made possible through intraoperative brain mapping
Neuro-intensive monitoring of children with severe epilepsy
Comprehensive genetic diagnosis of epileptic disorders

Excellent Surgical Outcomes

Adult Congenital Heart Disease Program

We are committed to helping our patients grow, live and thrive through all phases and milestones of adulthood.

Phone: 1-888-624-2778

The Adult Congenital Heart Disease Program at Nicklaus Children's Hospital serves the ever-growing population of adults who were born with congenital heart defects (CHD). Some people with CHD were diagnosed and treated as children, and continue with us for ongoing care during adulthood. Others were diagnosed with CHD as adults, and come to us as new patients for initial evaluation and management.

The Adult Congenital Heart Disease Program collaborates with adult cardiologists in the community in the transition to care through adulthood.

Adult Congenital Heart Disease Specialists

The Adult Congenital Heart Program includes a comprehensive team including:

Pediatric cardiologists board-certified in adult congenital heart disease
Cardiac imaging experts
Cardiac interventionists
Cardiac electrophysiology specialists
Cardiac intensivists
Cardiac surgeons

The Adult Congenital Heart Disease Program cares for adult patients of any age, and offers routine outpatient surveillance, advanced cardiac imaging including cardiac MRI, arrhythmia management, pregnancy care, diagnostic and interventional catheterization, and congenital cardiac surgery.

Cardiac Imaging & Diagnostic Services

We are committed to helping our patients grow, live and thrive through all phases and milestones of adulthood.

Adult Congenital Heart Disease Program

We are committed to helping our patients grow, live and thrive through all phases and milestones of adulthood.

Phone: 1-888-624-2778

Adult Congenital Heart Disease Specialists

The Adult Congenital Heart Program includes a comprehensive team including:

Pediatric cardiologists board-certified in adult congenital heart disease
Cardiac imaging experts
Cardiac interventionists
Cardiac electrophysiology specialists
Cardiac intensivists
Cardiac surgeons

Cardiac Imaging & Diagnostic Services

We are committed to helping our patients grow, live and thrive through all phases and milestones of adulthood.

Hydrocephalus Program

A national leader in the care management of children with hydrocephalus

Phone: 786-624-2381

The Hydrocephalus Program at Nicklaus Children's Hospital is a national leader in the care management of children with hydrocephalus. The program, which was one of the first in North American to use minimally invasive endoscopic techniques to treat premature babies with post-hemorrhagic hydrocephalus, has among the nation's longest experience with this method. For some patients, endoscopic third ventriculostomy with choroid plexus coagulation can offer a permanent resolution of hydrocephalus without the need for placement of a shunt.

The Hydrocephalus Program is under the leadership of the Division of Pediatric Neurosurgery at Nicklaus Children's Hospital, part of the nationally recognized Nicklaus Children's Brain Institute. The team of doctors and nurses has decades of experience caring for children with complex neurological disorders requiring surgery, and has championed pioneering and innovative techniques for managing children with epilepsy, brain tumors, spasticity and hydrocephalus.

Caring for Infants and Children of All Ages

Many babies are diagnosed with hydrocephalus before birth. Consultations with the Hydrocephalus Program care team prior to birth optimizes care planning and helps expectant families understand their child's diagnosis, helping them be more at ease.

What is Hydrocephalus?

Hydrocephalus is primarily an excessive accumulation of fluid in the brain. This excess of fluid, known as cerebrospinal fluid (CSF), accumulates in the brain, causing the fluid spaces of the brain to enlarge. There are many cause of hydrocephalus, which can be congenital or acquired in nature. In some children, the cause remains unknown.

The Hydrocephalus Program team conducts a comprehensive evaluation of each patient, before recommending treatment options tailored to meet the child or infant's individual needs.

Shunt placement

A shunt is a valve that is connected to a catheter to divert excess cerebral spinal fluid to another part of the body for absorption. Our neurosurgeons use various types of shunt valves, both fixed pressure and programmable valves to treat hydrocephalus in babies and children. These options are determined based on each patient's individual needs.

Endoscopic Third Ventriculostomy

Endoscopic third ventriculostomy (ETV) with or without choroid plexus cauterization is a minimally invasive procedure that creates an opening in the floor of the third ventricle to allow free-flowing communication between the ventricular system and the subarachnoid spaces. Through evidence-based research, it has been recognized that adding cauterization of the choroid plexus to the third ventriculostomy has impacted positively the success of ETVs to treat hydrocephalus in young children and certain types of hydrocephalus.

Hydrocephalus Program

A national leader in the care management of children with hydrocephalus

Phone: 786-624-2381

Caring for Infants and Children of All Ages

What is Hydrocephalus?

The Hydrocephalus Program team conducts a comprehensive evaluation of each patient, before recommending treatment options tailored to meet the child or infant's individual needs.

Shunt placement

Endoscopic Third Ventriculostomy

Hydrocephalus Program

A national leader in the care management of children with hydrocephalus

Phone: 786-624-2381

Caring for Infants and Children of All Ages

What is Hydrocephalus?

The Hydrocephalus Program team conducts a comprehensive evaluation of each patient, before recommending treatment options tailored to meet the child or infant's individual needs.

Shunt placement

Endoscopic Third Ventriculostomy

Hydrocephalus Program

A national leader in the care management of children with hydrocephalus

Phone: 786-624-2381

Caring for Infants and Children of All Ages

What is Hydrocephalus?

The Hydrocephalus Program team conducts a comprehensive evaluation of each patient, before recommending treatment options tailored to meet the child or infant's individual needs.

Shunt placement

Endoscopic Third Ventriculostomy

The Victor Center

Genetic Testing and Counseling

Phone: 786-624-2671

The Victor Center for the Prevention of Jewish Genetic Diseases at Nicklaus Children's Hospital provides access to comprehensive genetic education, genetic counseling services and affordable genetic screenings for individuals in Florida, Pennsylvania, Massachusetts, New York, New Jersey, and Maryland who may be at risk of being carriers of a gene mutation for at least one of the PREVENTABLE JEWISH GENETIC DISEASES ON OUR EXPANDED PANEL.

The Nicklaus Children's Hospital Center of Precision Medicine (CPM) is the umbrella which houses the Victor Center, a longtime leader in preconception screening. The Victor Center for the Prevention of Jewish Genetic Diseases enables families to get the genetic testing and counseling they need to understand their genetic risks.

What is a genetic screening?

Genetic screening is a process in which, through a simple saliva or blood test, a person’s genes are examined for changes, called mutations, in specific genes. Genetic screening is used to determine whether an individual or couple is at increased risk to have a baby with a hereditary disorder by passing on a gene mutation to their offspring. The Victor Center at Nicklaus Children's Hospital currently screens for over 200 genetic disorders.

Who should consider genetic screening?

Carriers of a gene mutation are healthy individuals. Being a carrier does not mean you have the genetic disease. However, being a carrier does mean that either parent can pass the gene mutation onto their children, making it important to screen both prospective parents.

Individuals who fall into one or more of the following categories should consider genetic testing:

Young adults of reproductive age (18-44)
Engaged couples, newlywed couples
Interfaith couples
Anyone who is adopted and their ancestry is unknown
LGBTQ couples along with sperm and/or egg donor
If you are already pregnant – both partners need to be tested immediately if screening was not already provided from your OB/GYN or physician.

What are the chances that I am a carrier for a genetic disease?

1 in 2 Ashkenazi Jews is a carrier for at least one “Jewish” genetic disease. Our newly expanded panel consists of more than 200 genetic diseases, and includes those that are commonly found in Ashkenazi, Sephardi, and Mizrachi Jews as well as people other ethnicities. Our screening platform uses a method called sequencing, unlike our former platform of targeted mutations. A few disorders on our panel are not sequenced but use another type of analysis due to the structure of the gene.

What kind of genetic screening should I do?

Advances in genetic technology have led to significant changes in genetic screening and screening panels. Ethnic background and insurance coverage may have a bearing on your screening options. The genetics professionals of the Victor Center can provide you with the information you need to make health decisions for you and your family’s future.

Where can I get screened?

The Victor Center provides full service genetic counseling and screening to all interested individuals and couples. We can provide these services through the Nicklaus Children’s Hospital main campus, outpatient centers such as Midtown or Aventura, or through community screening events. We can also offer virtual counseling and screening that you can do from the comfort of your own home.

Request an Appointment

Genetic screening cost

Many insurance providers cover preconception screening although coverage and costs to you can vary depending on your plan. (e.g., your lab, deductible and co-insurance requirements). Speak with our genetic counselor for more details by calling us today at 786-624-2671.

Genetic Counseling

Genetic counseling helps individuals, couples or families understand their genetic risk by taking a family history and discussing details of preconception genetic testing. Genetic counselors explain any risks associated with the testing; which diseases are tested; their mode of inheritance; and the implications of results for reproductive options and the health of extended family. Genetic counselors help individuals make informed decisions about family planning. If both are found to be carriers for the same disease, there are many reproductive options available. Genetic counseling is recommended as an integral part of this process.

Rare Diseases Day (February 28): How Nicklaus Children's Makes a Difference

Rare Disease Day, which takes place annually on the last day of February, was established to raise awareness among the general public, policymakers and professionals, about rare diseases and their impact on patient lives. Nicklaus Children’s is committed to supporting families of children with rare diseases as well as those at risk of having a child with a genetic disorder.

Project Baby Manatee

Nicklaus Children’s is one of the first hospitals in the country to pilot rapid whole genome sequencing (rWGS) as the new standard of care. Thanks to Cornelia T. Bailey Foundation and Florida State Appropriation, and in collaboration with Rady Children’s Hospital, Nicklaus Children’s provides this cutting-edge technology to patients in need. rWGS offers hope to families of critically ill children with undiagnosed diseases, who would usually go on “diagnostic odyssey”. About half of participating patients have receiveda final diagnosis based on the sequencing results, as well as modification of the treatment as a result of the rWGS. In all cases, diagnosed conditions were the result of rare, and frequently newly discovered genetic mutations that might not have been detected by other technologies.

The Victor Center

Genetic Testing and Counseling

Phone: 786-624-2671

What is a genetic screening?

Who should consider genetic screening?

Individuals who fall into one or more of the following categories should consider genetic testing:

Young adults of reproductive age (18-44)
Engaged couples, newlywed couples
Interfaith couples
Anyone who is adopted and their ancestry is unknown
LGBTQ couples along with sperm and/or egg donor
If you are already pregnant – both partners need to be tested immediately if screening was not already provided from your OB/GYN or physician.

What are the chances that I am a carrier for a genetic disease?

What kind of genetic screening should I do?

Where can I get screened?

Request an Appointment

Genetic screening cost

Genetic Counseling

Rare Diseases Day (February 28): How Nicklaus Children's Makes a Difference

Project Baby Manatee

Sickle Cell / Hemoglobinopathies Care Program

Improving the quality of life and productivity of children and adolescents with sickle cell disease and other hemoglobinopathies.

Phone:

The Sickle Cell/Hemoglobinopathies Comprehensive Care Program, offered through the Helen & Jacob Shaham Cancer and Blood Disorders Institute at Nicklaus Children's Hospital, has been providing treatment for children with sickle cell disease and other hemoglobinopathy for more than 25 years. Over 300 patients are cared for on a regular basis.

Under the direction of our team of highly experienced pediatric hematologists, children with sickle cell anemia and other hemoglobinopathies are monitored closely and receive comprehensive management, including but not limited to the coordination of EKGs, echocardiograms, eye examinations, radiology tests with special emphasis on transcranial doppler. Preventive measures include immunizations, prophylactic antibiotics and vitamins. Ophthalmology, endocrinology and cardiac evaluations are performed on a regular basis.

Sickle cell anemia treatment and special services include:

Hypertransfusion management for patients following strokes and other catastrophic complications
Hydroxyurea treatment is provided as early as 9 months of age prophylactically to minimize the recurrent painful crises, acute chest syndrome and other complications
Bone marrow transplantation is the only curative therapy that is available for children who fulfill the criteria.
Iron chelation (removal of iron from the body) is provided for patients with elevated iron levels
Transcranial Doppler study for early detection of risk for stroke
Genetic counseling for patients and family
Consultation services with subspecialists who support prevention and management of complications, including ophthalmologists, cardiologists, pulmonologists, orthopaedists, radiologists, nephrologists and more.
Smooth transition to adult facility at the age of 21 years

The program is committed to improve the quality of life and productivity of children and adolescents with sickle cell disease and other hemoglobinopathies through a comprehensive, patient/family focused health care delivery system that integrates local community resources. Our emphasis is to provide quality and comprehensive services with screening, diagnostic testing, assessment, evaluation, educational services, counseling and supportive services to individuals and families.

Sickle Cell / Hemoglobinopathies Care Program

Improving the quality of life and productivity of children and adolescents with sickle cell disease and other hemoglobinopathies.

Phone:

Sickle cell anemia treatment and special services include:

Hypertransfusion management for patients following strokes and other catastrophic complications
Hydroxyurea treatment is provided as early as 9 months of age prophylactically to minimize the recurrent painful crises, acute chest syndrome and other complications
Bone marrow transplantation is the only curative therapy that is available for children who fulfill the criteria.
Iron chelation (removal of iron from the body) is provided for patients with elevated iron levels
Transcranial Doppler study for early detection of risk for stroke
Genetic counseling for patients and family
Consultation services with subspecialists who support prevention and management of complications, including ophthalmologists, cardiologists, pulmonologists, orthopaedists, radiologists, nephrologists and more.
Smooth transition to adult facility at the age of 21 years

Neurocritical Care Program for Acute Brain Injuries

A national referral center for the diagnosis and management of children with complex neurologic conditions.

Phone: (786) 624-2381

Nicklaus Children’s Hospital is one of the few children’s hospitals in the nation to offer a Neurocritical Care Program. The program is a recognized national referral center for the diagnosis and management of children with complex neurologic conditions including traumatic brain injury, stroke, infections, hypoxia, tumors, acute vascular malformations, hydrocephalus, status epilepticus (prolonged seizures) and uncontrolled epilepsy.

The Neurocritical Care Program is a leader in offering innovative management options, including therapeutic hypothermia, medical research trials, surgical interventions, evidence-based diets, whole genome sequencing (WGS) and rapid whole genome sequencing (rWGS).

An Advanced Neurocritical Care Setting

Children receive care in one of the hospital’s three critical care units, including the Pediatric Intensive Care Unit (PICU), Cardiac Intensive Care Unit (CICU) and Neonatal intensive Care Unit (NICU). These units each consist of 40-bed floors, housed in the hospital’s Advanced Pediatric Care Pavilion, and offer the latest technological advances and around-the-clock care by a team dedicated to management of children with complex conditions. Care spaces include comfortable accommodations for parents or guardians.

We are one of the few hospitals in the country to offer rapid WGS (rWGS), an accelerated test, yielding clinical results in as little as 72 hours, depending on the case. This select test is offered in our three intensive care units (neonatal, pediatric, and cardiac) for critically ill children, a population for a fast answer may be crucial for medical management.

Neuromonitoring capabilities including continuous EEG
Intracranial pressure monitoring
Brain tissue oxygen monitoring (Licox system)
Therapeutic hypothermia
Medication research trials
Surgical interventions
Evidence-based diets
Acute Ischemic Stroke care

A Team Approach to Care

The Neurocritical Care Program brings together a full range of clinical specialists to provide around-the-clock specialized pediatric care. The team includes board-certified:

pediatric neurointensivists
pediatric neurosurgeons
pediatric neurologists
pediatric neurocritical care nurse practitioners, and nurses trained in brain injury management.

Supporting the care team are intensive care social workers, case managers and child life specialists.

Neurocritical Care Program for Acute Brain Injuries

A national referral center for the diagnosis and management of children with complex neurologic conditions.

Phone: (786) 624-2381

An Advanced Neurocritical Care Setting

Neuromonitoring capabilities including continuous EEG
Intracranial pressure monitoring
Brain tissue oxygen monitoring (Licox system)
Therapeutic hypothermia
Medication research trials
Surgical interventions
Evidence-based diets
Acute Ischemic Stroke care

A Team Approach to Care

The Neurocritical Care Program brings together a full range of clinical specialists to provide around-the-clock specialized pediatric care. The team includes board-certified:

pediatric neurointensivists
pediatric neurosurgeons
pediatric neurologists
pediatric neurocritical care nurse practitioners, and nurses trained in brain injury management.

Supporting the care team are intensive care social workers, case managers and child life specialists.

Limb Lengthening and Deformity Correction Program

Florida's Top-Ranked Hospital for Pediatric Orthopedic Care

Phone: 305-662-8225

The Limb Lengthening and Deformity Correction Program at Nicklaus Children's Hospital can produce life-changing results for affected children. The program utilizes the latest technology in the field to correct foot deformities and arm or leg length discrepancies, and helps the patient and family choose which method best suits their needs. Our pediatric orthopedists use advanced techniques and procedures for deformity correction and leg lengthening surgery, and ensure that your child is given the best treatment, care, and support throughout the process.

Pediatric Orthopedic Team

Throughout limb correction treatment, patients are carefully monitored by the Nicklaus Children's orthopedic surgery specialists. After the initial surgical procedure is performed, the patient is typically hospitalized for several days for monitoring and education. Instruction is provided in the hospital by the pediatric orthopedic surgeon and by the physical and occupational therapist to ensure that children and families can manage the external fixator successfully when they return home.

Once at home, the patient is seen by the Limb Deformity Correction Program staff on an outpatient basis every week or two to ensure that progress is carefully monitored.

Skeletal Dysplasia & Clubfoot in Babies

The Department of Orthopedics at Nicklaus Children's Hospital is a regional leader in the care of orthopedic conditions in infants and babies. Our specialists provide comprehensive treatment to foot deformities, including skeletal dysplasia and clubfoot in babies and children.

About Limb Lengthening and Deformity Correction

Limb correction is a gradual process that lengthens and/or straightens bone and soft tissue so that a limb can function as normally as possible. At Nicklaus Children's, one technique the orthopedist may utilize for limb lengthening is the Ilizarov surgical method to correct the deformed limb. This technique uses a device called a circular external fixator to take advantage of the body's natural ability to grow healthy new bone tissue. A circular external fixator fits around the patient's limb and is attached with pins that extend through the skin and into the bone.

Other techniques that may be employed for arm or leg length discrepancies include: mono-lateral external fixators, intramedullary skeletal kinetic distractors (ISKD), guided growth and internal fixation. Daily adjustments are made to the apparatus, gradually causing the bone to be reshaped or lengthened as needed. Typically, limb lengthening and correction is completed within four to 12 months depending on the patient's initial condition. Taylor Spatial Frames are also utilized by the treatment team at Nicklaus Children's Hospital.

Meeting with an Orthopedic Surgeon during Pregnancy

As more and more women have ultrasounds during their pregnancies, doctors are diagnosing clubfoot and other limb differences before birth more often. The Nicklaus Children’s Orthopedic, Sports Health and Spine Institute offers prenatal consults for orthopedic conditions including clubfoot and other congenital differences. Meeting with one of our pediatric orthopedic surgeons will help you get a better idea of what treatment options are available to you after your baby’s birth.

Limb Lengthening and Deformity Correction Program

Florida's Top-Ranked Hospital for Pediatric Orthopedic Care

Phone: 305-662-8225

Pediatric Orthopedic Team

Once at home, the patient is seen by the Limb Deformity Correction Program staff on an outpatient basis every week or two to ensure that progress is carefully monitored.

Skeletal Dysplasia & Clubfoot in Babies

About Limb Lengthening and Deformity Correction

Meeting with an Orthopedic Surgeon during Pregnancy

Pediatric Blood & Bone Marrow Transplant Center

Exceeding patient care standards and predicted outcomes.

Phone: 305-663-6851

The Blood and Marrow Transplantation Program at Nicklaus Children's Hospital is South Florida’s first and most experienced care provider for children requiring blood or bone marrow transplantation. The program is one of only two pediatric blood and marrow transplant centers in South Florida and performs more than 30 blood and marrow transplants per year.

Established in 1991, the program was originally accredited in 2003 by the Foundation for the Accreditation of Cellular Therapies (FACT) for all aspects of blood or marrow transplantation (cellular therapy). The program continues to meet the rigorous FACT standards, having achieved its most recent re-accreditation in 2020. FACT accreditation is given to organizations that exceed standards in patient care and laboratory practices.

See our BMT survival rates

We treat patients with malignant and nonmalignant disorders, and use both Autologous and Allogeneic donors. It includes peripheral blood, bone marrow and cord blood (single or double), from HLA-matched family members, haplo-identical family members as well as unrelated donors.

Cutting Edge Therapy

The Helen & Jacob Shaham Cancer and Blood Disorders Institute at Nicklaus Children's Hospital is one of few in the state to offer the latest immune cell treatment for children and adolescents with certain types of leukemia.

The treatment, known as chimeric antigen receptor T-cell (CAR T) therapy uses a patient's own immune system cells to treat acute lymphoblastic leukemia (ALL) among other types of cancer. The Shaham Cancer & Blood Disorders Institute is an approved treatment facility to deliver the FDA- approved CAR T-Cell therapy to children and adolescents with certain types of pediatric cancers.

Multidisciplinary Pediatric Care

Our Pediatric BMT program is comprised of a multidisciplinary team of clinicians that come together to provide consultation, evaluation and follow up care to each individual patient’s needs.

Program Highlights

Board-certified pediatricians and pediatric oncologists
Nurse navigators
Pediatric radiation oncology
On-site stem cell harvesting for transplantation
A Children's Oncology Group (COG) Member with access to the latest clinical trials
National Marrow Donor Program (NMDP) Transplant Center
Member of the Pediatric Transplantation and Cellular Therapy Consortium (PTCTC)
Access to all unrelated donor registries for stem cell products
Child Life Specialists
Music Therapy
Blood and Marrow Transplant-trained nursing staff
Psychologists specialized in oncology and hematologic care, including sickle cell disease
Bone Marrow Transplant failure program and follow up care
Pediatric Advanced Care Team

Excellent Outcomes Close to Home

The Blood and Marrow Transplant Program maintains outcomes that are the best in the region as reported by the National Marrow Donor Program (NMDP). The program’s experience and dedication to quality and in-depth staff training continues to drive outcomes that well exceed predicted outcomes.

The Blood and Marrow Transplant (BMT) Program at Nicklaus Children’s has surpassed expected outcomes for patients receiving allogeneic (donor tissue) transplants, attaining an overall 93 percent survival rate for the years 2019 to 2021. This distinction is outlined in the Transplant Center-Specific Survival Report published recently by the Center for International Blood and Marrow Transplant Research (CIBMTR).  To learn more about the Nicklaus Children’s BMT Program’s CIBMTR survival rates, click here.

The BMT Program at Nicklaus Children’s, one of only two pediatric blood and marrow transplant centers in South Florida, performs more than 30 blood and marrow transplants per year. Established in 1991, the program continues to meet the stringent FACT accreditation standards, having achieved its most recent reaccreditation in 2020.

Access to the Latest Research Protocols and Data

The Blood and Marrow Transplant Program is a Children’s Oncology Group (COG) accredited center for transplants and is a member of the Pediatric Blood and Marrow Transplant Consortium (PBMTC) and the International Blood and Marrow Transplant Registry (IBMTR). Membership in these organizations brings access to the very latest research protocols and national and international research data.

Pediatric Blood & Bone Marrow Transplant Center

Exceeding patient care standards and predicted outcomes.

Phone: 305-663-6851

See our BMT survival rates

Cutting Edge Therapy

Multidisciplinary Pediatric Care

Our Pediatric BMT program is comprised of a multidisciplinary team of clinicians that come together to provide consultation, evaluation and follow up care to each individual patient’s needs.

Program Highlights

Board-certified pediatricians and pediatric oncologists
Nurse navigators
Pediatric radiation oncology
On-site stem cell harvesting for transplantation
A Children's Oncology Group (COG) Member with access to the latest clinical trials
National Marrow Donor Program (NMDP) Transplant Center
Member of the Pediatric Transplantation and Cellular Therapy Consortium (PTCTC)
Access to all unrelated donor registries for stem cell products
Child Life Specialists
Music Therapy
Blood and Marrow Transplant-trained nursing staff
Psychologists specialized in oncology and hematologic care, including sickle cell disease
Bone Marrow Transplant failure program and follow up care
Pediatric Advanced Care Team

Excellent Outcomes Close to Home

Access to the Latest Research Protocols and Data

Airway Disorders Program

Providing expert interventional care for babies, children and adolescents with airway disorders.

Phone: 786-624-3687

When a child or infant has an airway disorder, expert surgical care may be needed to support the child’s ability to breathe or eat. Symptoms of an airway disorder can include stridor (wheezing), turning blue, inhaling (aspirating) food while eating and the use of a tracheostomy tube to support breathing.

The Airway Disorders Program brings together a clinical team experienced in providing care for children with a wide range of airway disorders. The team evaluates each child’s individual condition and develops a care plan tailored to his or her specific needs. Program offerings include a range of surgical procedures that help children breathe to their best ability.

Patients of the program benefit from the comprehensive team of pediatric specialists available on the Nicklaus Children’s Hospital campus to consult in the care of children with complex medical needs.

What is an Airway Disorder?

Airway disorders affect the part of the airway just above the voice box (larynx) to the trachea (windpipe). Disorders can be the result of congenital defects or may stem from injury or a medical procedure.

Who is a Candidate for Evaluation?

Infants born prematurely with a history of intubation
Children born with congenital defects or medical conditions that affect the airways (vocal cords and trachea)
A child who utilizes a tracheostomy tube or ventilator tube to breathe

About Airway Reconstruction

Airway reconstruction procedures are planned by the care team to address each child’s specific airway defect. Procedures involve reconstructing or expanding sections of the airway, as needed. Some procedures are performed endoscopically, with the surgical site accessed through the patient’s mouth. Other procedures are conducted through an incision in the patient’s neck.

Cricotracheal Resection (CTR)
Tracheal Resection

Meet the Doctor

Brian Ho, MD

Dr. Ho treats patients with disorders encompassing the entire spectrum of pediatric otolaryngology, from routine health care for children with minor ear, nose and throat (ENT) problems to complicated head and neck, sinuses and airway surgical interventions in the operating room.

Learn more

Airway Disorders Program

Providing expert interventional care for babies, children and adolescents with airway disorders.

Phone: 786-624-3687

What is an Airway Disorder?

Who is a Candidate for Evaluation?

Infants born prematurely with a history of intubation
Children born with congenital defects or medical conditions that affect the airways (vocal cords and trachea)
A child who utilizes a tracheostomy tube or ventilator tube to breathe

About Airway Reconstruction

Cricotracheal Resection (CTR)
Tracheal Resection

Meet the Doctor

Brian Ho, MD

Learn more

Colorectal Center

The First and Most Experienced Comprehensive Pediatric Colorectal Program in Florida

Phone:

When a child has a colon and/or rectum abnormality, the associated challenges can impact quality of life for the child and the entire family.

As Florida’s first and leading pediatric colorectal program, the Colorectal Center at Nicklaus Children’s offers state-of-the-art medical and surgical care. We are dedicated to enhancing the quality of life for children and families facing colorectal challenges. The center is designed to optimize medical and surgical care and daily living for affected families. The center treats children, adolescents and young adults with abnormalities affecting the large intestine (colon), anus, rectum, urinary tract and genitals with the goal of creating a personalized treatment plan that supports patients and families in living a full and active life.

A Multidisciplinary Approach to Care

The Colorectal Program's multidisciplinary care team includes a full spectrum of specialists who are available to consult in the child’s care depending on individual needs. Our bilingual staff is here to coordinate care for children with complex care needs. Medical team members that collaborate with the Colorectal Center include:

World-renowned pediatric surgeons specialized in the management of bowel and rectum abnormalities
Pediatric urologists
Neurosurgeons
Nurse practitioner with experience in supporting families in managing children with bowel and rectum abnormalities
Pediatric gastroenterologists
Radiologists
Pathologists
Psychologists
Dietitians
Child life specialists
Social workers

Bowel Management Program
Cloaca Repair
Colostomy
Crohn’s and Colitis Surgery
Gracilis Muscle Neosphincter
Re-operations or Complex Cases

Dedicated Team in Improving Quality of Life

Many patients with colorectal disorders face challenges integrating into society because of associated social stigmas. Most children require long-term follow up care. The Colorectal Center is dedicated to the well-being and needs of all our patients through childhood and beyond.

Specialized weekly clinics enable families to consult with several members of the team in a unified setting, for personalized attention, to assess progress and modify care plans as appropriate.

Colorectal Center

The First and Most Experienced Comprehensive Pediatric Colorectal Program in Florida

Phone:

When a child has a colon and/or rectum abnormality, the associated challenges can impact quality of life for the child and the entire family.

A Multidisciplinary Approach to Care

World-renowned pediatric surgeons specialized in the management of bowel and rectum abnormalities
Pediatric urologists
Neurosurgeons
Nurse practitioner with experience in supporting families in managing children with bowel and rectum abnormalities
Pediatric gastroenterologists
Radiologists
Pathologists
Psychologists
Dietitians
Child life specialists
Social workers

Bowel Management Program
Cloaca Repair
Colostomy
Crohn’s and Colitis Surgery
Gracilis Muscle Neosphincter
Re-operations or Complex Cases

Dedicated Team in Improving Quality of Life

Cardiac Catheterization Laboratory

Recognized as a world leader in interventional cardiac catheterization

Phone: 305-662-8301

The Pediatric Cardiac Catheterization and Interventional Program at Nicklaus Children's Hospital is widely recognized as one of the world’s leaders in interventional cardiac catheterization. By utilizing the latest innovations in imaging technologies, coupled with the newest catheter and device technologies, the cardiologists at The Heart Institute are able to routinely perform both simple and complex interventional cardiac catheterization procedures that serve to enhance or, in certain cases, eliminate the need for open-heart surgery.

While the catheterization laboratory is a high-tech environment, the program philosophy of high-tech meets high-touch is evident in every aspect of care. Families learn about their child’s procedure in a special pre-catheterization clinic and are encouraged to remain with their child in the cath lab until he or she is comfortably asleep. Blood work is completed while children are sleeping, in keeping with the hospital’s emphasis on minimizing stress. This family focused approach to care has contributed to the program’s international reputation and prominence.

How we’re innovating pediatric cardiac catheterization

A number of new heart catheterization devices and techniques have been developed or refined at The Heart Institute including:

Hybrid procedures (combined with surgery) to approach complex cardiovascular conditions
Radiofrequency energy to treat heart abnormalities and disturbances
Replacement of pulmonary valves using the Edwards Lifesciences SAPIEN™ transcatheter heart valve
Non-surgical closure of Patent Ductus Arteriosus (PDA) with Amplatzer Piccolo™ Occluder

What is heart catheterization in children?

Pediatric cardiac catheterization is a medical procedure that determines how well your child’s heart is working. A catheter is inserted into the heart to measure blood flow, blood pressure, and capture X-ray images. Our team at Nicklaus Children’s Hospital uses heart catheterization and a variety of other tests to diagnose and monitor potential heart conditions.

How does this procedure work?

Around 6 to 8 hours before the pediatric cardiac catheterization procedure, patients will be asked to avoid consuming food, drink, and certain medicines. After taking pre-procedure medication, a sheath is inserted into a blood vessel, usually in the groin area. Through this sheath, a long tube called a catheter is threaded through the vessel to the heart. With the catheter safely in place, various other instruments can be inserted to conduct tests on the heart. The risk factors can be mild or temporary, including bruising around where the catheter is inserted or itchiness/upset stomach if contrast dye is used.

Adolescent Intensive Outpatient Program (IOP)

An IOP designed to provide intensive mental health treatment for adolescents and their families in a least-restrictive environment.

Phone:

The Intensive Outpatient Program (IOP) at Nicklaus Children’s Hospital is designed to provide intensive treatment for adolescents and their families in a least-restrictive environment.

This program is ideal for adolescents transitioning from an inpatient unit or a partial hospitalization program (PHP). IOP is also recommended when traditional outpatient treatment alone is insufficient to improve the patient’s emotional status.

Adolescent and Family Participation

Adolescents referred to the program will participate in a variety of group psychotherapies. We regard the family as an integral part of the treatment, thus family participation is required. Program elements are scheduled at times to be least disruptive to the adolescent and family members.

Program Requirements

The IOP is not a substitute for weekly / individual / family therapy but an enhancement. Thus all participants should, if possible, continue with their individual therapy and medication management appointments. We will be able to provide individual and/or family therapy on an outpatient basis if you are not currently receiving these services with a mental health professional.

Programs Offered

The Intensive Outpatient Program is currently being held via Telehealth. The program is held three to four hours a day, three times per week. The days and times are subject to change.

General Program

(Anxiety, Mood Disorders, Trauma, Self-Injury)

Tuesdays and Thursdays from 4 p.m. to 8 p.m.
Saturdays from 11 a.m. to 2 p.m.

Eating Disorders Program

A supportive network for families striving to help teens overcome anorexia and bulimia.

Mondays and Wednesdays from 4 p.m. to 8 p.m.
Saturdays from 11 a.m. to 2 p.m.

Insurance Coverage

Some, but not all, insurance companies provide coverage for IOP services. Verification of benefits will be obtained prior to admission to the program. A self- pay option is also available.

Note: Upon admission to the program, adolescents and parents must attend all sessions as scheduled to comply with insurance company medical necessity criteria for this level of care.

Adolescent Intensive Outpatient Program (IOP)

An IOP designed to provide intensive mental health treatment for adolescents and their families in a least-restrictive environment.

Phone:

The Intensive Outpatient Program (IOP) at Nicklaus Children’s Hospital is designed to provide intensive treatment for adolescents and their families in a least-restrictive environment.

Adolescent and Family Participation

Program Requirements

Programs Offered

The Intensive Outpatient Program is currently being held via Telehealth. The program is held three to four hours a day, three times per week. The days and times are subject to change.

General Program

(Anxiety, Mood Disorders, Trauma, Self-Injury)

Tuesdays and Thursdays from 4 p.m. to 8 p.m.
Saturdays from 11 a.m. to 2 p.m.

Eating Disorders Program

A supportive network for families striving to help teens overcome anorexia and bulimia.

Mondays and Wednesdays from 4 p.m. to 8 p.m.
Saturdays from 11 a.m. to 2 p.m.

Insurance Coverage

Some, but not all, insurance companies provide coverage for IOP services. Verification of benefits will be obtained prior to admission to the program. A self- pay option is also available.

Note: Upon admission to the program, adolescents and parents must attend all sessions as scheduled to comply with insurance company medical necessity criteria for this level of care.

Neuro-Oncology Center

Florida's Top-Ranked Hospital for Pediatric Neurology and Neurosurgery

Phone: 786 624-4996

The prognosis for children with brain tumors has improved drastically over the last decade, but advances in medicine and research trials that have paved the way for more targeted treatments. The Neuro-Oncology Center at Nicklaus Children’s is comprised of a multidisciplinary team where each specialist applies their expertise in order to obtain an accurate diagnosis and customize a treatment plan that works best for each individual patient.

Treatment of Brain Tumors in Children

Neurosurgery

Clinical Cancer Research

The Neuro-Oncology Center participates in in clinical cancer research studies focused on finding new cures, treatments and procedures for pediatric brain and spinal cord tumors.

Innovation and Technology

Nicklaus Children’s Hospital is home to an intraoperative magnetic resonance imaging (iMRI) system which allows the surgeon to take images of the brain during surgery. This enables the team to determine the difference between healthy tissue and abnormal brain tissue in real time during the surgery to allow for more accurate tumor resection.

The hospital became the first pediatric facility in Florida to offer this leading-edge equipment. It brings MRI technology – recognized as the “gold standard” in differentiating between healthy and abnormal brain tissue—directly into the surgical suite to enhance surgical effectiveness and safety.

A Collaboration of Two Great Programs

The Helen & Jacob Shaham Cancer and Blood Disorders Institute works closely with the Nicklaus Children's Brain Institute to provide the highest quality of care for children with brain tumors. Following appropriate surgical treatment by the world-renowned pediatric neurosurgery team, treatment with chemotherapy or radiation therapy may be required.

Our pediatric specialty team includes:

Advanced Care Professionals (APRNs and APPs)
Anesthesiologists
Board-Certified Neurosurgeons
Child Life Specialists
Endocrinologists
Geneticists
Music Therapists
Neurologists
Neuropsychologists
Oncologists
Pain Management Team
Palliative Care (Pediatric Advanced Care Team)
Pathologists
Pharmacists
Psychologists
Radiologists
Rehabilitation Specialists (Physical, Occupational and Speech Therapy)
School Liaison
Social Workers
Specialists in Survivorship

Neuro-Oncology Center

Florida's Top-Ranked Hospital for Pediatric Neurology and Neurosurgery

Phone: 786 624-4996

Treatment of Brain Tumors in Children

Neurosurgery

Clinical Cancer Research

The Neuro-Oncology Center participates in in clinical cancer research studies focused on finding new cures, treatments and procedures for pediatric brain and spinal cord tumors.

Innovation and Technology

A Collaboration of Two Great Programs

Our pediatric specialty team includes:

Advanced Care Professionals (APRNs and APPs)
Anesthesiologists
Board-Certified Neurosurgeons
Child Life Specialists
Endocrinologists
Geneticists
Music Therapists
Neurologists
Neuropsychologists
Oncologists
Pain Management Team
Palliative Care (Pediatric Advanced Care Team)
Pathologists
Pharmacists
Psychologists
Radiologists
Rehabilitation Specialists (Physical, Occupational and Speech Therapy)
School Liaison
Social Workers
Specialists in Survivorship

Neuro-Oncology Center

Florida's Top-Ranked Hospital for Pediatric Neurology and Neurosurgery

Phone: 786 624-4996

Treatment of Brain Tumors in Children

Neurosurgery

Clinical Cancer Research

The Neuro-Oncology Center participates in in clinical cancer research studies focused on finding new cures, treatments and procedures for pediatric brain and spinal cord tumors.

Innovation and Technology

A Collaboration of Two Great Programs

Our pediatric specialty team includes:

Advanced Care Professionals (APRNs and APPs)
Anesthesiologists
Board-Certified Neurosurgeons
Child Life Specialists
Endocrinologists
Geneticists
Music Therapists
Neurologists
Neuropsychologists
Oncologists
Pain Management Team
Palliative Care (Pediatric Advanced Care Team)
Pathologists
Pharmacists
Psychologists
Radiologists
Rehabilitation Specialists (Physical, Occupational and Speech Therapy)
School Liaison
Social Workers
Specialists in Survivorship

Neuro-Oncology Center

Florida's Top-Ranked Hospital for Pediatric Neurology and Neurosurgery

Phone: 786 624-4996

Treatment of Brain Tumors in Children

Neurosurgery

Clinical Cancer Research

The Neuro-Oncology Center participates in in clinical cancer research studies focused on finding new cures, treatments and procedures for pediatric brain and spinal cord tumors.

Innovation and Technology

A Collaboration of Two Great Programs

Our pediatric specialty team includes:

Advanced Care Professionals (APRNs and APPs)
Anesthesiologists
Board-Certified Neurosurgeons
Child Life Specialists
Endocrinologists
Geneticists
Music Therapists
Neurologists
Neuropsychologists
Oncologists
Pain Management Team
Palliative Care (Pediatric Advanced Care Team)
Pathologists
Pharmacists
Psychologists
Radiologists
Rehabilitation Specialists (Physical, Occupational and Speech Therapy)
School Liaison
Social Workers
Specialists in Survivorship

Survive & Thrive: The Cancer Survivorship Program

A Follow-Up Clinic for Childhood Cancer Survivors

Phone: 786-624-4629

Over 80% of children diagnosed with cancer will be cured, joining the growing population of long-term childhood cancer survivors. Additionally, over 70% of long-term childhood cancer survivors have a chronic condition as a consequence of the therapy they received. Survive & Thrive—The Survivorship Program at the Helen & Jacob Shaham Cancer and Blood Disorders Institute was created to provide support and follow up care for childhood cancer survivors.

Late Side Effects of Cancer in Children

Pediatric cancer survivors may have special health needs as a result of late side effects of their cancer diagnosis and/or treatment, which requires lifelong monitoring. Potential late effects may include:

Lung and heart complications
Hormone disorders
Secondary cancer
Learning disabilities
Vision/hearing problems
Infertility

Survive & Thrive is designed to help pediatric cancer survivors optimize their health and quality of life.

Audiogram
Hormone Level Test
Metabolic Panel Test
Skin Screening

A Team Approach to Care

The program offers a comprehensive care team including:

Our team also coordinates the testing that follows the comprehensive visit.

Frequently Asked Questions

How does the Shaham Cancer & Blood Disorders Institute provide follow-up care for childhood cancer survivors?

Our childhood cancer survivors are seen annually in a comprehensive clinic lead by a pediatric oncology healthcare provider (MD/NP). Our school coordinator, social worker, and registered dietitian are also available on-site at each clinic. Medical specialists are available on an as-needed basis by referral.

What is the age cut-off for providing follow-up care to childhood cancer survivors?

Our comprehensive follow-up clinic sees patients up until their 22nd birthday. Special permission may be obtained for those childhood cancer survivors who are over 22 years of age. Please contact the clinic for more information.

If the Shaham Cancer & Blood Disorders Institute does not provide life-long follow-up care for childhood cancer survivors, where is the patient referred to when the age limitation is reached?

If we are unable to see a childhood cancer survivor due to the age limitation, we will refer to an adult oncologist or adult survivorship program.

Does the Shaham Cancer & Blood Disorders Institute offer late effects consultations to survivors who were not treated at Nicklaus Children’s Hospital?

Absolutely. Any pediatric cancer survivor can be seen in our clinic. In addition to scheduling your appointment, please provide our team with a referral letter from your health care provider, medical records, and insurance information. Patients may self-refer to our program.

What are the eligibility criteria for survivors entering the program?

The survivor must be at least two years off therapy. Neuro-Oncology patients are also eligible.

How often is your long-term follow-up clinic scheduled?

Our long-term follow-up clinic is scheduled every other Wednesday in the afternoons. Please call 786-624-4629 to schedule your appointment.

What care team individuals make up the team?

The survivorship program at the Shaham Cancer & Blood Disorders Institute is comprised of a medical director, nurse practitioner, program coordinator, school coordinator, social worker, registered dietitian and psychologist.

Survive & Thrive: The Cancer Survivorship Program

A Follow-Up Clinic for Childhood Cancer Survivors

Phone: 786-624-4629

Late Side Effects of Cancer in Children

Lung and heart complications
Hormone disorders
Secondary cancer
Learning disabilities
Vision/hearing problems
Infertility

Survive & Thrive is designed to help pediatric cancer survivors optimize their health and quality of life.

Audiogram
Hormone Level Test
Metabolic Panel Test
Skin Screening

A Team Approach to Care

The program offers a comprehensive care team including:

Our team also coordinates the testing that follows the comprehensive visit.

Frequently Asked Questions

How does the Shaham Cancer & Blood Disorders Institute provide follow-up care for childhood cancer survivors?

What is the age cut-off for providing follow-up care to childhood cancer survivors?

If the Shaham Cancer & Blood Disorders Institute does not provide life-long follow-up care for childhood cancer survivors, where is the patient referred to when the age limitation is reached?

If we are unable to see a childhood cancer survivor due to the age limitation, we will refer to an adult oncologist or adult survivorship program.

Does the Shaham Cancer & Blood Disorders Institute offer late effects consultations to survivors who were not treated at Nicklaus Children’s Hospital?

What are the eligibility criteria for survivors entering the program?

The survivor must be at least two years off therapy. Neuro-Oncology patients are also eligible.

How often is your long-term follow-up clinic scheduled?

Our long-term follow-up clinic is scheduled every other Wednesday in the afternoons. Please call 786-624-4629 to schedule your appointment.

What care team individuals make up the team?

Leukemia and Lymphoma Program

Pediatric care for children with malignancies.

Phone:

Our pediatric Leukemia and Lymphoma Program provides care for children with malignancies. Using the latest advances in treatment for leukemia in children, the majority of our patients with leukemia and lymphoma reach adulthood. The Helen & Jacob Shaham Cancer and Blood Disorders Institute at Nicklaus Children's Hospital is nationally recognized and provides highly specialized and sophisticated treatment for pediatric leukemia patients – always with a focus on the best long-term results and minimization of possible late side effects.

Leukemia remains the most common childhood malignancy, with approximately 5,000 new cases of leukemia in children diagnosed annually in the United States, accounting for 30 percent of childhood cancers.

There are two common types of Leukemia that we treat at Nicklaus Children’s:

Acute lymphoblastic leukemia (ALL) is the type of leukemia that most commonly affects children, accounting for around 70 percent of leukemia cases each year in the U.S.
Acute myelogenous leukemia (AML) is the second most common form of leukemia in children. AML generally occurs by the age of 2, and is not often seen in older children until the teenage years. AML is the most common type of acute leukemia in adults.

The chronic forms of leukemia such as chronic myelogenous leukemia (CML) are rarely seen in children.

Blood & Marrow Transplantation Program

33 Years of Excellence. Our hallmark Blood and Marrow Transplantation Program at Nicklaus Children's Hospital is celebrating its 33rd anniversary this year as South Florida’s first and most experienced children's cancer center. Since the program was founded in 1991, we have performed over 400 transplants with the best outcomes in the region.

Leukemia and Lymphoma Program

Pediatric care for children with malignancies.

Phone:

There are two common types of Leukemia that we treat at Nicklaus Children’s:

Acute lymphoblastic leukemia (ALL) is the type of leukemia that most commonly affects children, accounting for around 70 percent of leukemia cases each year in the U.S.
Acute myelogenous leukemia (AML) is the second most common form of leukemia in children. AML generally occurs by the age of 2, and is not often seen in older children until the teenage years. AML is the most common type of acute leukemia in adults.

The chronic forms of leukemia such as chronic myelogenous leukemia (CML) are rarely seen in children.

Blood & Marrow Transplantation Program

Sarcoma and Solid Tumor Program

Specialized care for children with any type of bone cancer.

Phone:

The Sarcoma and Solid Tumor Program at Nicklaus Children’s Hospital is the largest in South Florida and one of the largest in the state in providing care to children with all types of bone and soft tissue cancers. The program is committed to offering the latest interventions and treatments for children with sarcoma and solid tumors.

Sarcoma is a group of cancers, or masses, that can grow anywhere in the body, including bones, muscles, tissues and organs. Sarcomas a rare in children, with less than 15 percent of the pediatric population affected.

Why Choose Us?

Treating sarcomas and solid tissue cancers can be complicated and often require surgery, chemotherapy and in some cases radiation. That is why it is important to be evaluated by a team experienced in the treatment of sarcoma, who will work together throughout the treatment journey and optimize outcomes.

The program is comprised of a specialized team of pediatric multidisciplinary specialists with expertise in treating sarcoma who work closely together to provide coordinated, compassionate care to children faced with a diagnosis. These include experts in:

Nutrition
Oncology
Orthopedic Oncology
Orthopedic Surgery
Pediatric Surgery
Physical and Occupational Therapy
Plastic Surgery
Psychology
Radiation Oncology
Radiology
Social Work

About the Program

At Nicklaus Children’s Hospital, our team well understands the complexities involved in caring for children with rare and complex cancers, including sarcomas and solid tumors. Highlights of our program include:

Advanced imaging
Behavioral health and psychological support throughout the care journey
Clinical trials for children and adolescents with new diagnosis and relapsed sarcoma conditions
Targeted chemotherapies using personalized medicine
Surgical and Non-Surgical Techniques for Limb Salvage
Survivorship program to provide support post-treatment
HIPEC and HITEC heathed chemotherapy treatments

A Regional Leader in Limb Salvage Techniques

For tumors involving the musculoskeletal system, orthopedic surgeons provide evaluation and treatment, including prescribing and interpreting imaging and testing, as well as performing biopsies and definitive cancer surgery treatment.

The orthopedic surgical team enlists one of the region’s most experienced oncological orthopedists to remove pediatric tumors and reconstruct extremities utilizing the most advanced limb salvage techniques available. The team is one of a few in the region to utilize oncological prostheses for limb salvage that make it possible for a child’s leg to grow through a series of nonsurgical adjustments, eliminating the need for future leg-lengthening surgeries. The department also coordinates rehabilitative care of the patient following cancer surgery.

Limb Salvage Surgery
Mass Resection Surgery
Proton Beam Radiation
Proton Radiation Therapy
Targeted Therapies

Clinical Trials

The Sarcoma and Solid Tumor Program at Nicklaus Children’s is a referral center for treatment of children and adolescents with some of the most complex tumors. The program is part of many investigational trials for sarcoma and bone tumors, including:

A study on the use of personalized medicine and genomics to guide individualized treatments for children with relapsed or refractory solid tumors and leukemia.
Next generation sequencing of pediatric tumor samples from a multi-site consortium of clinical cancer programs.
Part of a nationwide consortium for pediatric MATCH (molecular analysis for therapy choice).

Sarcoma and Solid Tumor Program

Specialized care for children with any type of bone cancer.

Phone:

Why Choose Us?

Nutrition
Oncology
Orthopedic Oncology
Orthopedic Surgery
Pediatric Surgery
Physical and Occupational Therapy
Plastic Surgery
Psychology
Radiation Oncology
Radiology
Social Work

About the Program

Advanced imaging
Behavioral health and psychological support throughout the care journey
Clinical trials for children and adolescents with new diagnosis and relapsed sarcoma conditions
Targeted chemotherapies using personalized medicine
Surgical and Non-Surgical Techniques for Limb Salvage
Survivorship program to provide support post-treatment
HIPEC and HITEC heathed chemotherapy treatments

A Regional Leader in Limb Salvage Techniques

Limb Salvage Surgery
Mass Resection Surgery
Proton Beam Radiation
Proton Radiation Therapy
Targeted Therapies

Clinical Trials

A study on the use of personalized medicine and genomics to guide individualized treatments for children with relapsed or refractory solid tumors and leukemia.
Next generation sequencing of pediatric tumor samples from a multi-site consortium of clinical cancer programs.
Part of a nationwide consortium for pediatric MATCH (molecular analysis for therapy choice).

Pediatric Sleep Disorders Center

We offer sleep studies for pediatric sleep disorders

Phone: 1-888-624-2778

Part of the nationally recognized Nicklaus Children's Brain Institute, our Sleep Disorders Center specializes in the diagnosis, management, and research of sleep disorders in children and adolescents. The center is accredited by the American Academy of Sleep Medicine and led by a board-certified sleep specialist.

Laboratory Services for Sleeping Disorders in Children

Treatments for Sleep Disorders

Pediatric Sleep Studies

The Pediatric Sleep Disorders Center at Nicklaus Children's Hospital specializes in the diagnosis and management of sleep disorders in children.

The pediatric sleep center, located at Nicklaus Children's Hospital's main campus, is specially designed to study sleep disorders and performs a variety of polysomnography studies, many of which examine breathing problems during sleep. The lab contains state-of-the-art polysomnography equipment, a diagnostic tool that helps evaluate and manage pediatric sleep disorders.

Conditions that may require a sleep study can include sleep apnea, narcolepsy, down syndrome, achondroplasia, obesity, ADHD, seizures or unusual behavior during sleep.

The Pediatric Sleep Disorders Center has been accredited by the American Academy of Sleep Medicine (AASM) since 1991, and is led by a board-certified sleep specialist. To make an appointment with the Pediatric Sleep Disorders Center please call 1-888-624-2778.

Pediatric Sleep Disorders Center

We offer sleep studies for pediatric sleep disorders

Phone: 1-888-624-2778

Laboratory Services for Sleeping Disorders in Children

Treatments for Sleep Disorders

Pediatric Sleep Studies

The Pediatric Sleep Disorders Center at Nicklaus Children's Hospital specializes in the diagnosis and management of sleep disorders in children.

Conditions that may require a sleep study can include sleep apnea, narcolepsy, down syndrome, achondroplasia, obesity, ADHD, seizures or unusual behavior during sleep.

Pediatric Sleep Disorders Center

We offer sleep studies for pediatric sleep disorders

Phone: 1-888-624-2778

Laboratory Services for Sleeping Disorders in Children

Treatments for Sleep Disorders

Pediatric Sleep Studies

The Pediatric Sleep Disorders Center at Nicklaus Children's Hospital specializes in the diagnosis and management of sleep disorders in children.

Conditions that may require a sleep study can include sleep apnea, narcolepsy, down syndrome, achondroplasia, obesity, ADHD, seizures or unusual behavior during sleep.

Inflammatory Bowel Disease Center

Phone: 786-624-2515

The Inflammatory Bowel Disease (IBD) Center at Nicklaus Children’s Hospital is a multidisciplinary program that provides comprehensive support and management for children and young adults with Crohn’s disease and ulcerative colitis. Under the leadership of Dr. Alisa Muñiz Crim, the center brings together a wide range of care specialists to support the child and family in managing individual care needs.

Causes of IBD in Children

Inflammatory Bowel Diseases (IBDs) are disorders that result in inflammation to the digestive tract. They usually involve severe diarrhea, abdominal pain or cramps, fever fatigue, weight loss, joint pain or growth failure.

The causes of inflammatory bowel disease are not well understood. However, children who have a parent or close family member with IBD are more likely to be affected. Diet, environment and the immune system likely play a significant role.

Holistic Approach

The center fosters a holistic approach to the care of the child, incorporating lifestyle modifications, dietary therapy, medications and other interventions as needed. A monthly support group offers patients and their families the opportunity to share experiences, challenges, successes, and nutures a sense of community. The goal is to support children with IBD in attaining remission and optimizing quality of life.

Infusion Treatment

When infusion treatment is recommended, patients receive care in a specialized unit where they can rest comfortably throughout the infusion process. The unit is staffed by registered nurses who are experienced in managing infusion therapies for IBD patients. Child life specialists help to alleviate fears by offering activities to distract and engage the child or teen throughout their treatment.

Diagnostic Capabilities

Nicklaus Children’s uses state-of-the-art diagnostic tools including:

Flexible scopes, called endoscopes and colonoscopes
Imaging services including fluoroscopy, CT scans, and MRI scans
Camera pill (or PillCam), a non-invasive capsule endoscopy

A Team Approach

The IBD Center at Nicklaus Children’s Hospital brings together a comprehensive team of experts to support your child(ren) and family. The entire team takes part in clinical management to allow your child(ren) to benefit from multispecialty collaboration and consultation. Team members include:

Board-certified Pediatric Gastroenterologists, specializing in IBD
IBD Nurse Practitioner
IBD Nurses
IBD Social Worker
IBD Dietitian
Pharmacist
Child Life Specialists
IBD Surgeon

Convenience for Families

Patients can be seen in Miami-Dade, Broward and Palm Beach Counties. The IBD Center holds clinics in the morning and afternoon for the convenience of school-age children and their families.

ImproveCareNow

Nicklaus Children’s Hospital joined ImproveCareNow (ICN) in January 2015. ICN is an international, multi-center collaborative network that is transforming care and improving outcomes for children, adolescents and young adults with IBD. The partnership provides access to the latest advances in medical research and treatments so that patients can get better faster and stay well longer.

Inflammatory Bowel Disease Center

Phone: 786-624-2515

Causes of IBD in Children

Holistic Approach

Infusion Treatment

Diagnostic Capabilities

Nicklaus Children’s uses state-of-the-art diagnostic tools including:

Flexible scopes, called endoscopes and colonoscopes
Imaging services including fluoroscopy, CT scans, and MRI scans
Camera pill (or PillCam), a non-invasive capsule endoscopy

A Team Approach

Board-certified Pediatric Gastroenterologists, specializing in IBD
IBD Nurse Practitioner
IBD Nurses
IBD Social Worker
IBD Dietitian
Pharmacist
Child Life Specialists
IBD Surgeon

Convenience for Families

Patients can be seen in Miami-Dade, Broward and Palm Beach Counties. The IBD Center holds clinics in the morning and afternoon for the convenience of school-age children and their families.

ImproveCareNow

Extracorporeal Life Support Program (ECMO)

Providing life-saving intervention for the region's most critically ill infants and children.

Phone: (305) 669-5818

In 1988, the Pediatric Intensive Care Unit at Nicklaus Children's Hospital broke new medical ground, opening Florida's first Extracorporeal Life Support (ECLS) program to provide life-saving intervention for the region's most critically ill infants and children. Since those pioneering beginnings, the Extracorporeal Life Support program at Nicklaus Children's Hospital is proud to have given new life to hundreds of youngsters, while maintaining one of the best outcome records in the field.

The ECLS program includes Extracorporeal Membrane Oxygenation (ECMO) Therapy and is one of only three in the nation to perform emergency pediatric therapeutic apheresis, a safe and effective way of treating serious blood infections and diseases. ECMO Therapy is the use of a machine that acts like an artificial heart and lungs for a child delivering the oxygen to the blood they require to stay alive. Although a child’s heart continues to beat while undergoing this treatment, this machine makes it easier as it does much of the pumping for them. ECMO therapy is used for infants and children who suffer from respiratory and/or heart failure due to birth defects, trauma or serious infection.

Extracorporeal Life Support services are provided through the Pediatric Intensive Care Unit at Nicklaus Children's Hospital the leading pediatric care facility in the state of Florida.

What is Apheresis Therapy?

Apheresis therapy is used for treating serious blood infections and diseases. This involves removing the blood from the body, processing out key components and returning the remaining blood to the patient.

Three forms of apheresis therapy are offered, depending on patient diagnosis:

Therapeutic Plasma Exchange: This method of apheresis therapy is used to remove plasma from the blood of children with diseases and disorders that leave poisons and other damaging substances in the blood supply. Therapeutic plasma exchange is often used for children with meningitis, Guillain Barre, Hemolyitc Uremic Syndrome and Lupus Erythematosus. After removal of the damaged plasma, the child receives new plasma.
Red Cell Exchange: Commonly used to treat patients with Sickle Cell Disease, malaria and other diseases that attack the red blood cells, this treatment involves removal of the damaged red cells, after which the patient receives healthy red cells.
Leukopheresis: This apheresis therapy procedure is used for cancer patients. One type —used for children with cancer diseases such as lymphoma— involves removal of the abnormally large number of white cells associated with the disease. The second type of leukopheresis allows for collection of stem cells from the blood, which are later returned to a cancer patient during a bone marrow transplant.

What is Extracorporeal Membrane Oxygenation (ECMO) for Children?

ECMO stands for Extracorporeal Membrane Oxygenation. Extracorporeal means outside of the body. A membrane oxygenator is a piece of equipment which acts as a lung to deliver oxygen into the child's blood. The ECMO circuit acts as an artificial heart and lung for the patient during ECMO therapy.

ECMO is a life-saving technique that mimics the natural function of the heart and lungs, allowing an infant or child to rest while natural healing of the affected organs takes place. Candidates for ECMO include newborns and children suffering respiratory and/or cardiac failure as a result of birth defects, trauma or severe infection.

Throughout extracorporeal membrane oxygenation treatment, the child is the center of a highly coordinated team medical effort and receives around-the-clock care while on this "heart lung machine". The ECMO procedure involves channeling the patient's blood into a roller pump that serves as the child's "heart" throughout treatment. The pump sends the blood through an oxygenator, which serves as an artificial lung, infusing the blood with oxygen and removing carbon dioxide and returning it to the patient.

During extracorporeal membrane oxygenation treatment, the child's heart continues to beat, but its work is made easier because the ECMO machine does much of the pumping. The length of time a child remains on therapy depends on the diagnosis and the child's individual response

Candidates for ECMO

ECMO is used to help babies with a wide variety of medical challenges, including:

Persistent Pulmonary Hypertension
Meconium Aspiration Syndrome
Sepsis or infection
Pneumonia
Congenital Diaphragmatic Hernia
Congenital Heart Disease / Post-op Shock Lung
Hyaline Membrane Disease

ECMO is also used for older children suffering from the following conditions:

Post-op cardiac repair
Myocarditis
Sepsis
Pneumonia
Aspiration pneumonia
Asthma
Near drowning
Hydrocarbon ingestion (lighter fluid, turpentine)

In adults, ECMO may be indicated for:

Underlying disease with reasonable likelihood of reversal
Septic shock
Pneumonia
Pulmonary failure

Different Types of ECMO

Venous Arterial (VA) ECMO — In VA ECMO, a catheter is placed in the vein on the right side of the neck which removes un-oxygenated blood from the body. A second catheter is placed in the artery on the right side of the neck which returns oxygenated blood from the ECMO circuit to the body.
Venous Venous (VV) ECMO — In VV ECMO, a single catheter is placed in a vein. VV ECMO only provides support for the lungs, whereas VA provides support to the heart and the lung.

ECMO blood flow is maintained at a sufficient rate to adequately perfuse the patient and allow "rest" of the heart and lungs. In most infants, this can be achieved at flows of 80% of the required cardiac output.

ECMO is also maintained at a level such that adequate oxygen delivery is achieved for patient needs. These oxygenation needs may change from time to time, depending on the patient's condition.

Weaning Patients from ECMO

Initially, when the patient is placed on ECMO, the pump flow is kept high to allow the heart and lungs are allowed to rest. As the heart and lung function begins to improve, the ECMO flow will be decreased, allowing the heart and lungs to do more of the work.

The function of the heart and lungs are measured by blood samples, chest x-rays, chest movement and echocardiogram. Once the patient's condition has improved, the ECMO flow is decreased and the patient is tried off pump for a couple of hours.

If during this time, the patient remains stable, ECMO can be discontinued and the patient will require full ventilation which will also be reduced once the patient improves. Once ECMO is discontinued, the catheters will be removed from the neck and the vessels will be repaired.

ECMO Complications

There are numerous complications of ECMO that might occur:

Internal bleeding may result since the blood must be kept from clotting. A drug called Heparin is given to thin the blood which can lead to bleeding problems.
Whenever a tube is inserted in a blood vessel, there is an increased risk of infection, surgical complications and stroke, which may occur since the procedure involves tying off two major blood vessels, typically the carotid and the internal jugular vein.
Blood clots are another complication of ECMO that can occur even though the circuit is monitored visually for any signs of clots or air.
Transfusion-related infections may occur due to the fact that patients will be receiving blood and blood products transfusions.
Technical failure or malfunction can occur just as any piece of equipment can.

History of Pediatric ECMO Surgery

Extracorporeal membrane oxygenation is the use of extracorporeal circulation and gas exchange to provide temporary life support to patients with cardiac or pulmonary failure. One key component of ECMO is the transport of oxygen into blood across a semi-permeable membrane. This phenomenon was first recognized in 1944 when Kolff and Berk noted that blood became oxygenated as it passed through the cellophane chambers of their artificial kidney.

The concept of cardiopulmonary bypass was developed in the early 1950's. Devices used at that time were bubble or disk oxygenators with a direct oxygen-blood interface. Hemolysis occurred after a few hours of bypass. This precluded its use for long-term support. The development of the first membrane oxygenator, by Clowes in 1956, enabled prolonged cardiopulmonary bypass to become feasible.

The 1960's and 1970's were noted for advances in techniques and research, for prolonged pulmonary support. A nine hospital collaborative study was organized by the National Heart, Lung, and Blood Institute to study ECMO therapy, in adults with pulmonary insufficiency. Unfortunately, survival was not improved. The study had several problems: (1) the patients varied greatly as to the type and complexity of their disease process; (2) patients were often entered when lung damage was predicted as irreversible; (3) intensive ventilatory support was continued, which perpetuated lung damage.

The early ECMO experience in children was similar to that in the adult. However, these studies suggested that in appropriate patients who were treated early and did not have irreversible lung damage, ECMO was technically feasible with the potential to reverse pulmonary failure.

The first newborn population chosen for ECMO was the premature infant with hyaline membrane disease. These infants suffered an unacceptably high risk of intracranial hemorrhage. The combination of Hypoxia, hypothermia, acidosis, systemic heparinization, and alterations of cerebral circulation resulted in a prohibitively high mortality. A milestone in the history of ECMO was reached when Bartlett and associates pioneered the treatment of term or near term infants in acute, reversible respiratory failure.

Because of the pioneering efforts of Dr.Bartlett and his associates, we are able to offer ECMO to this population successfully. There are currently over eighty-five centers, internationally, offering ECMO with over 20,000 infants treated to date. The average survival rate is 83% for newborns, whom previously had a predicted survival of 20% without ECMO.

Urodynamics and Voiding Improvement Program

Phone: 305-663-8413

The Urodynamics and Voiding Improvement Program is dedicated to supporting the diagnosis and management of children with medical conditions that affect bladder function, including neurological conditions. The program features the region's most experienced and comprehensive care team for the management of bladder conditions in children.

Evaluation of Urinary Conditions

Voiding issues related to complex urogical malformations:

Bladder exstrophy
Cloacal anomalies
Posterial urethral valves

A Team Approach to Care

The Urodynamics and Voiding Improvement Program is comprised of a multidisciplinary team that collaborates to identify the source of bladder function abnormalities, with the goal of creating a care management plan to meet each child’s individual needs.

The team includes the following specialists:

Pediatric urologist
Radiologist
Pediatric urodynamic nurse
Pediatric radiologic technologist

Urodynamics and Voiding Improvement Program

Phone: 305-663-8413

Evaluation of Urinary Conditions

Voiding issues related to complex urogical malformations:

Bladder exstrophy
Cloacal anomalies
Posterial urethral valves

A Team Approach to Care

The team includes the following specialists:

Pediatric urologist
Radiologist
Pediatric urodynamic nurse
Pediatric radiologic technologist

Prenatal Heart Program

Designed for the needs of families whose babies are suspected of having heart disease or congenital heart defects.

Phone: 305-662-8301

The Prenatal Heart Program within the Nicklaus Children's Hospital Heart Institute is designed to address the needs of families whose pregnancies are at increased risk for congenital heart disease or for babies suspected of having heart disease diagnosed prenatally. Our goal is to provide a prompt diagnostic evaluation and improve the care of infants with congenital heart disease to provide the best possible care to your baby during and after birth.

The Prenatal Heart Program provides high-quality fetal echocardiograms to expectant families who have been referred for screening evaluations, or due to concern identified on prenatal ultrasounds. Additionally, the program offers second opinions to support our referring cardiologists and referring physicians. The program supports families through a team of cardiologists, nurse coordinators and specialists whose expertise will help guide families through the care journey. Our Prenatal Heart team will be with you and your baby through every step of the journey from prenatal planning, post-natal care, follow-up after birth and beyond.

A Prenatal Heart nurse coordinator is available to answer questions and assist with coordination of appointments and care between specialties such as Pediatric Cardiology, Cardiovascular Surgery, Genetics and Neonatology, as well as pediatricians and pediatric cardiologists within the community.

Prenatal Heart Program Services

Expert evaluation and diagnosis of fetal heart defects or heart rhythm problems
Explanation of and counseling about treatment options
Collaborative planning for your baby’s delivery

A Team Approach to Care

The Prenatal Heart Program Team also includes:

Pediatric Cardiovascular Surgeons
Pediatric Interventional Cardiologists and Electrophysiologists
Cardiac Intensivists within the Cardiac Intensive Care Unit
Dedicated Heart Institute Social Workers
Advanced Nurse Practitioners
Advanced Fetal Sonographers
Pediatric Cardiac MRI Specialists

Prenatal Heart Program

Designed for the needs of families whose babies are suspected of having heart disease or congenital heart defects.

Phone: 305-662-8301

Prenatal Heart Program Services

Expert evaluation and diagnosis of fetal heart defects or heart rhythm problems
Explanation of and counseling about treatment options
Collaborative planning for your baby’s delivery

A Team Approach to Care

The Prenatal Heart Program Team also includes:

Pediatric Cardiovascular Surgeons
Pediatric Interventional Cardiologists and Electrophysiologists
Cardiac Intensivists within the Cardiac Intensive Care Unit
Dedicated Heart Institute Social Workers
Advanced Nurse Practitioners
Advanced Fetal Sonographers
Pediatric Cardiac MRI Specialists

Prenatal Heart Program

Designed for the needs of families whose babies are suspected of having heart disease or congenital heart defects.

Phone: 305-662-8301

Prenatal Heart Program Services

Expert evaluation and diagnosis of fetal heart defects or heart rhythm problems
Explanation of and counseling about treatment options
Collaborative planning for your baby’s delivery

A Team Approach to Care

The Prenatal Heart Program Team also includes:

Pediatric Cardiovascular Surgeons
Pediatric Interventional Cardiologists and Electrophysiologists
Cardiac Intensivists within the Cardiac Intensive Care Unit
Dedicated Heart Institute Social Workers
Advanced Nurse Practitioners
Advanced Fetal Sonographers
Pediatric Cardiac MRI Specialists

Children's Positional Plagiocephaly Treatment Program

Treatment for 'Flat Head Syndrome' and cranial asymmetry in babies.

Phone: 1-888-624-2778

What is Positional Plagiocephaly or 'Flat Head Syndrome'?

It typically appears before an infant is 20 weeks old and can dramatically affect the shape of a baby’s head. Also known as deformational plagiocephaly or flat head syndrome, it is caused by the baby being in the same position for an extended amount of time (a crib, car seat carrier, swing).

Sometimes, this condition can be noticed while carrying the baby, the head may feel like it has an irregular shape/ asymmetry. A bald spot may also appear in the area where the infant prefers to rest his or her head. Also, the hair in the area might not lie flat, with hair strands extending outward instead of lying smoothly against the head. When asymmetry is mild to moderate, changes in sleep positioning and activities may help to improve the skull shape without the need for further intervention. Infants with more severe cranial asymmetry may have a chance for improvement and benefit from cranial remodeling treatment with helmet therapy.

Since 1996, the American Academy of Pediatrics (AAP) recommends that babies sleep on their back to reduce the risk of Sudden Infant Death Syndrome (SIDS). Parents are encouraged to always check with their pediatrician first for guidance.

It is recommended that all infants with cranial asymmetry be properly evaluated by a pediatric cranial specialist to rule out craniosynostosis. Unlike positional plagiocephaly, craniosynostosis requires surgery and can be diagnosed by X-ray.

Plastic surgery evaluation
Referrals to diagnostic imaging, certified orthotics and physical therapy as needed.

How does positional plagiocephaly differ from craniosynostosis?

Most children with cranial asymmetry simply have positional plagiocephaly. However, some infants are born with craniosynostosis, which unlike positional plagiocephaly, requires surgical intervention. Differentiating positional plagiocephaly from craniosynostosis is done primarily by physical examination, followed by radiographic confirmation. Look for these signs to recognize the difference:

Severity Scale for Positional Plagiocephaly

Signs of Craniosynostosis

Coronal Synostosis (Left Sided)

– Ear anterior on side of flattened forehead.
– Nose deviated to contralateral side.
– Eye on affected side appears larger, known as "Harlequin eye".
– Stabismus present in 30% of patients.

Lambdoid Synostosis (Right Sided)

– Cranium has a trapezoidal shape.
– Ear is more posterior on side of flattened occiput.
– A mastoid bulge is present on the affected side.
– Contralateral frontal bossing.

Metopic Synostosis

– Triangular shaped brow.
– Eyes appear closely set.
– Mild cases may only have a forehead ridge.

Sagittal Synostosis

– Long and narrow head.
– May have frontal bossing.
– May have occipital prominence.
– Head circumference is usually greater than 90%

Children's Positional Plagiocephaly Treatment Program

Treatment for 'Flat Head Syndrome' and cranial asymmetry in babies.

Phone: 1-888-624-2778

What is Positional Plagiocephaly or 'Flat Head Syndrome'?

Since 1996, the American Academy of Pediatrics (AAP) recommends that babies sleep on their back to reduce the risk of Sudden Infant Death Syndrome (SIDS). Parents are encouraged to always check with their pediatrician first for guidance.

Plastic surgery evaluation
Referrals to diagnostic imaging, certified orthotics and physical therapy as needed.

How does positional plagiocephaly differ from craniosynostosis?

Severity Scale for Positional Plagiocephaly

Signs of Craniosynostosis

Coronal Synostosis (Left Sided)

– Ear anterior on side of flattened forehead.
– Nose deviated to contralateral side.
– Eye on affected side appears larger, known as "Harlequin eye".
– Stabismus present in 30% of patients.

Lambdoid Synostosis (Right Sided)

– Cranium has a trapezoidal shape.
– Ear is more posterior on side of flattened occiput.
– A mastoid bulge is present on the affected side.
– Contralateral frontal bossing.

Metopic Synostosis

– Triangular shaped brow.
– Eyes appear closely set.
– Mild cases may only have a forehead ridge.

Sagittal Synostosis

– Long and narrow head.
– May have frontal bossing.
– May have occipital prominence.
– Head circumference is usually greater than 90%

The International Birthmark Institute

A comprehensive multi-specialty center of excellence.

Phone:

The International Birthmark Institute (TIBI) at Nicklaus Children's Hospital, is a comprehensive multi-specialty center of excellence for the evaluation and management of all birthmarks with special expertise in vascular birthmarks or vascular anomalies in newborn babies and children, including hemangiomas and vascular malformations.

A birthmark is a discolored and/or raised area of the skin that is apparent at birth or within a few weeks of birth. Birthmarks are made up of malformed pigment cells or blood vessels and require careful assessments by a team of specialists.

Diagnosis of Complex Vascular Birthmarks

Our diagnostic services include:

Lasers and Treatments Offered

Medical management with propranolol, oral/intralesional corticosteroids
Topical treatment with Aldara
Laser surgery

A Team Approach

Because some birthmarks may grow in sensitive areas such as eyes, throat, nose or genitals; their removal has to be carefully planned so as not to damage any organs and not to cause disfigurement.

The International Birthmark Institute (TIBI) is composed of a multidisciplinary team of healthcare professionals that span many pediatric disciplines. Our team of specialists can carefully asses and remove birthmarks with precision and care.

The International Birthmark Institute

A comprehensive multi-specialty center of excellence.

Phone:

Diagnosis of Complex Vascular Birthmarks

Our diagnostic services include:

Lasers and Treatments Offered

Medical management with propranolol, oral/intralesional corticosteroids
Topical treatment with Aldara
Laser surgery

A Team Approach

Because some birthmarks may grow in sensitive areas such as eyes, throat, nose or genitals; their removal has to be carefully planned so as not to damage any organs and not to cause disfigurement.

Children's Concussion Clinic

Our physicians are trained to evaluate and treat brain injuries from concussions to more serious traumas in children.

Phone: 786-624-2778

The Nicklaus Children's Brain Institute is pleased to offer a Concussion and Brain Injury Clinic as part of its expanding Brain Injury Evaluation and Neuroprotection (BIEN) Program. The signs of concussion in children can be hard to decipher, but our physicians are trained to evaluate and treat brain injuries from concussions to more serious traumas.

Generally, a concussion is any direct or indirect traumatic injury to the head and/or neck. Children and teens who have experienced brain injuries require ongoing medical management to ensure appropriate follow-up care.

Treatment for Concussions in Children

Evaluation and assessment of neuroimaging needs
Care plan development for resumption of school and activities
Guidance and supervision of return to physical activity
Clearance for return to competitive sport participation
Long term management of symptoms of post-concussive syndrome symptoms

Concussion Symptoms in Children

The effects of a concussion often surface after the injury, sometimes taking hours or even days to appear. Concussions in children sometimes develop into post-concussion syndrome, causing the child to experience symptoms for an extended period of time. Some even recover initially, delaying the onset of symptoms until after subsequent exertion.

Child concussion symptoms may include:

Loss of consciousness
Headache
Nausea
Vomiting
Balance problems
Dizziness
Lightheadedness
Fatigue
Drowsiness
Sensitivity to light or noise
Feeling more emotional
Numbness or tingling
Feeling like "in a fog"
Difficulty concentrating
Difficulty remembering/amnesia
Visual problems

Children's Concussion Clinic

Our physicians are trained to evaluate and treat brain injuries from concussions to more serious traumas in children.

Phone: 786-624-2778

Treatment for Concussions in Children

Evaluation and assessment of neuroimaging needs
Care plan development for resumption of school and activities
Guidance and supervision of return to physical activity
Clearance for return to competitive sport participation
Long term management of symptoms of post-concussive syndrome symptoms

Concussion Symptoms in Children

Loss of consciousness
Headache
Nausea
Vomiting
Balance problems
Dizziness
Lightheadedness
Fatigue
Drowsiness
Sensitivity to light or noise
Feeling more emotional
Numbness or tingling
Feeling like "in a fog"
Difficulty concentrating
Difficulty remembering/amnesia
Visual problems

Running Injury Prevention Program

Preventive screening and training for runners of all levels

Phone: 1-855-624-7778

he Nicklaus Children’s Hospital Running Injury Prevention Program is designed to identify and correct for biomechanical movement errors that increase the risk of a running related injury.

In the United States 79% of runners will sustain a running related injury annually. Of significant concern are adolescent female and male cross country runners who demonstrate higher injury rates. Additionally, running is a primary component to generalized sports participation which is on the rise in young athletes. Despite the high percentage of running related injuries, most are preventable.

Known Risk Factors for Running Related Injuries

Beginner Runners
Runners with low or high mileage
History of a running related injury
Sub-optimal running technique
Improper footwear
Muscular Imbalance

Running Injury Prevention Screening

Individual screening (60 minutes)

A comprehensive running analysis and physical screen designed for the individual runner to reduce the risk of running related injuries and maximize performance. This screening includes a video running analysis and a physical assessment. A summary of results will be provided to each runner upon completion.

Please contact 786-624-5110 for information on pricing.

running shoes

Running Injury Prevention Training

A training program designed to improve strength, power, flexibility and running mechanics to reduce the risk of running related injuries and maximize performance. Available in both individual and club/team format.

Single Sessions

30-min session
45-min session
60-min session

Please contact 786-624-5110 for information on pricing.

Team Training

Our team running injury prevention workshops are led by our Sports Health Running Specialists and will provide your team with a dynamic warm up to enhance mobility and flexibility. The workshop will then progress into a strength training and plyometric program that has been effective in enhancing running and preventing injuries. These workshops are designed for the team’s convenience and can be instructed off-site.

60-minute workshops (minimum of 6 runners):

Small group (up to 12 runners)
Large group (up to 30 runners)

90-minute workshops (minimum of 6 runners):

Small group (up to 12 runners)
Large group (up to 30 runners)

120-minute workshops (minimum of 6 runners):

Small group (up to 12 runners)
Large group (up to 30 runners)

Please contact 786-624-5110 for information on pricing.

Running Injury Prevention Program

Preventive screening and training for runners of all levels

Phone: 1-855-624-7778

he Nicklaus Children’s Hospital Running Injury Prevention Program is designed to identify and correct for biomechanical movement errors that increase the risk of a running related injury.

Known Risk Factors for Running Related Injuries

Beginner Runners
Runners with low or high mileage
History of a running related injury
Sub-optimal running technique
Improper footwear
Muscular Imbalance

Running Injury Prevention Screening

Individual screening (60 minutes)

A comprehensive running analysis and physical screen designed for the individual runner to reduce the risk of running related injuries and maximize performance. This screening includes a video running analysis and a physical assessment. A summary of results will be provided to each runner upon completion.

Please contact 786-624-5110 for information on pricing.

running shoes

Running Injury Prevention Training

Single Sessions

30-min session
45-min session
60-min session

Please contact 786-624-5110 for information on pricing.

Team Training

60-minute workshops (minimum of 6 runners):

Small group (up to 12 runners)
Large group (up to 30 runners)

90-minute workshops (minimum of 6 runners):

Small group (up to 12 runners)
Large group (up to 30 runners)

120-minute workshops (minimum of 6 runners):

Small group (up to 12 runners)
Large group (up to 30 runners)

Please contact 786-624-5110 for information on pricing.

Laboratory Services

Labcorp is the exclusive provider for outpatient phlebotomy and Nicklaus Children's on-site outpatient laboratory services.

Phone: 855-277-8669

A new Labcorp patient service center (PSC) is now open at Nicklaus Children's Hospital. This center is managed and staffed by Labcorp to expand lab testing capabilities, reduce wait times, and provide convenient access to Labcorp's network. Families can access advanced testing and diagnostics at the hospital campus instead of going to an offsite Labcorp location.

The PSC offers additional benefits like online access to test results through the Labcorp Patient portal, online bill pay, and appointment scheduling.

Hours

The patient service center is open Monday-Friday, 7 a.m. - 4 p.m.

Schedule an Appointment or Walk-in

Walk-ins are accepted, but families can schedule appointments online here. In order to find Nicklaus Children's Hospital, navigate to the scheduling site, select "pediatric collections" in the dropdown menu and enter the PSC address: 3100 S.W. 62 Ave, Suite 8-130, Miami, FL 33155.

Schedule an Appointment by Telephone

Live person appointment scheduling assistance
- Call 800-877-5227
- Bypass the prompts and stay on the line to speak with a Labcorp representative who can assist you
Automated appointment scheduling phone line
- Call 855-277-8669 and follow the prompts

What to Bring

Patient families will need to bring an order from the physician, along with their insurance information.

Location

3100 S.W. 62 Ave, Suite 8-130, Miami, FL 33155, next to the Publix Pharmacy

Services

Where to Park

For ease of access, we encourage patient families to park in the Green Garage.

Laboratory Services

Labcorp is the exclusive provider for outpatient phlebotomy and Nicklaus Children's on-site outpatient laboratory services.

Phone: 855-277-8669

The PSC offers additional benefits like online access to test results through the Labcorp Patient portal, online bill pay, and appointment scheduling.

Hours

The patient service center is open Monday-Friday, 7 a.m. - 4 p.m.

Schedule an Appointment or Walk-in

Schedule an Appointment by Telephone

Live person appointment scheduling assistance
- Call 800-877-5227
- Bypass the prompts and stay on the line to speak with a Labcorp representative who can assist you
Automated appointment scheduling phone line
- Call 855-277-8669 and follow the prompts

What to Bring

Patient families will need to bring an order from the physician, along with their insurance information.

Location

3100 S.W. 62 Ave, Suite 8-130, Miami, FL 33155, next to the Publix Pharmacy

Services

Where to Park

For ease of access, we encourage patient families to park in the Green Garage.

Project GE:NES

Genomics Education: Nurturing, Empowering, Sustainable

Phone:

Advancing medical technologies may exacerbate health disparities. In genomic science, Black scientists and research participants are underrepresented. This has dire consequences for physicians’ ability to treat and diagnose patients of color. Even though this issue is multifaceted, researchers and policymakers have identified health literacy as a means to reduce health disparities. After-school STEAM programs offer an outlet for youth to engage in the local community and provide exposure to topics such as health and genomics.

Nicklaus Children’s Hospital is currently addressing this gap by implementing Project GE:NES in our diverse South Florida community. Project GE:NES is an ongoing after-school program that focuses on increasing genomic literacy while simultaneously empowering Black youth to play an agentive role in their healthcare. With their interdisciplinary expertise, the Personalized Medicine and Health Outcomes Research team at Nicklaus Children’s Hospital is uniquely positioned to promote equity in genomic medicine while strengthening relationships with our communities.

Program Goals

With an after-school program for high school students in collaboration with Overtown Youth Center (OYC), we aim to empower Black youth to:

Take an agentive role in decisions regarding their healthcare and participation in research;
Share their knowledge with members of their families and communities; and;
Consider educational and career trajectories in the genomic sciences and other related STEAM career opportunities.

Program Highlights

8-week after-school program focused on Genomic Science
Complimenting existing after-school educational programming
20 students participate in each Project GE:NES after-school course per semester
Curriculum includes Project GE:NES “Career Day”, where students meet various guest speakers who work in a variety of STEAM careers
Virtual and in-person modalities

Topics to include

DNA: What is it and what does it do?
Human diversity and variation; ancestry, race, and ethnicity
What’s epigenetics? The role the environment may play in your genes
What are genetic diseases? Inherited versus non- Inherited diseases
Why medical family history matters
Genetic testing and direct-to-consumer products
The importance of participating in medical research
Understanding the science behind COVID-19 and vaccines

Research component: Nicklaus Children’s researchers will conduct interviews, observations, and questionnaires to measure program effectiveness and contribute to general knowledge.

Our Team

Dr. Paula Espinal,MD, MPH

Manager, Personalized Medicine Research, Principal Investigator for Project GE:NES
Expertise in genomics medicine, epidemiology, health disparities, community engagement, & population medicine.

Dr. Evelyn Dean-Olmsted, PhD

Manager, Health Outcomes Research, Sub-Investigator for Project GE:NES
PhD in anthropology with expertise in language and communication, and race and ethnicity.

Dr. Sandy Gonzalez, PhD

Senior Research Associate, Sub-Investigator for Project GE:NES
PhD in Psychology with expertise in child development, dual language learning, and assessment creation and validation.

Yolanda Perez, BHSA

Outreach Associate, Marketing and Logistics Coordinator for Project GE:NES
Expertise in community engagement.

Wanda Payton, BSBA/BM

Project Coordinator for Project GE:NES
Expertise in administrative operations, community engagement and programming.

This program is supported with funding from the Miami Dolphins Foundation.

Pediatric Advanced Care Team (PACT)

Providing comfort and support for children with serious illnesses

Phone: 877-261-7228

The Pediatric Advanced Care Team

The Pediatric Advanced Care Team (PACT) at Nicklaus Children’s specializes in providing comfort and support for children with life-limiting or life-threatening illnesses and their families.

The team’s goal is to work with the family and care providers to enhance quality of life by providing the child relief from symptoms of serious illness, while also promoting stress reduction for the entire family.

A Team Approach to Care

The Pediatric Advanced Care Team has expertise in providing comfort care to relieve symptoms of disease and side effects of treatments. In short, it helps the child and family gain strength to move forward with daily life.

The team works directly with each patient’s doctors and nurses to provide an added layer of support. The team can assist children of any age and at any stage of a serious illness to support the patient and family.

The team includes:

Critical care doctors
Nurses
Child life specialists
Music therapists
Social workers
Spiritual advisors

Supporting Families in Bereavement

When a family experiences the loss of a child, the surviving members benefit from supportive services that honor the memory of the child and help the grieving family find a path forward.

Nicklaus Children’s bereavement services strive to support the entire family through individual and family counseling, support groups, memorial programs and initiatives, and more.

Nico’s Promise - A Journey of Hope and Healing: Nicklaus Children’s Nico’s Promise bereavement program offers assistance to parents, siblings, grandparents and other family members who have experienced the loss of a loved one. These services, funded through generous donations, help families celebrate the life of their child and honor his or her memory by resuming productive and meaningful lives.

Preserving Memories through 3D Technology: To support families grieving the loss of a child, Nicklaus Children’s Hospital’s Pediatric Advanced Care Team (PACT), in collaboration with the Cardiovascular Surgery Advanced Projects Laboratory (APL), offers three-dimensional images and printed models that serve as memorial keepsakes to honor a beloved child.

This initiative brings together a compassionate team of palliative care professionals and skilled biomedical engineers to extend support to families during their most difficult time and offer a unique way to memorialize and honor their child’s legacy.

Support During Serious Illness

PACT supports families of children with a wide range of life-limiting and life-threatening conditions. These may include, but are not limited to, the following:

Brain disorders
Cancer and blood disorders
Genetic disorders
Heart conditions
Lung conditions
Orthopedic and neuromuscular disorders
Prematurity

A Family-Centered Approach

A family-centered care team is one that spends time listening to the patient and family, working to make sure all involved know and understand care and support options. With close communication, families are better able to choose options that are in line with their values, traditions and culture. This improves the well-being of the entire family. The team offers help with relief from symptoms, including pain, lack of energy, depression, loss of appetite and problems with sleep; as well as providing emotional, developmental and spiritual support.

Part of the Child’s Treatment Plan

The Pediatric Advanced Care Team can offer support along with other treatments for disease. This approach benefits both the child and the family by relieving the pain and other symptoms that can make facing a serious illness so difficult.

Getting Started

Ask your child’s doctor whether the Pediatric Advanced Care Team is right for your family.

Nicklaus Children's Pediatric Specialists

The Physician Group Practice of Nicklaus Children's Health System

Phone: 786-624-2033

Nicklaus Children's Pediatric Specialists (formerly Pediatric Specialists of America), is the health system’s medical group practice. Established in January 2015 as Pediatric Specialists of America and rebranded in 2020, Nicklaus Children's Pediatric Specialists is a physician-directed, multi-specialty pediatric group with a regional, national and international presence in providing pediatric-centric care through a collaborative team approach, excellence in clinical care, education and research.

Year after year, our pediatric specialty programs are ranked among the best in the nation, according to U.S. News & World Report. We employ more than 250 board-certified physicians specializing in all areas of pediatric care, many of whom consistently appear on the America’s Best Doctors list.

As Nicklaus Children’s Health System has grown, we have sought opportunities to optimize our structure to benefit the organization and our employees. The Nicklaus Children's Pediatric Specialists group offers significant operational advantages to our employed practitioners (including physicians, psychologists, nurse practitioners and physician assistants) and growth opportunities for the health system. These include:

Heightened opportunities for employed practitioners to have a voice in decisions related to medical and business matters.
Increased flexibility in marketing our subspecialty practitioners in regions where Nicklaus Children's does not have a presence.
Enhanced opportunities for service growth.
Options to see patients at locations throughout South Florida.

Child and Adolescent Specialized Assessments

A Journey to Discover How Your Child Learns Best

Phone: 786-624-2668

When a child or adolescent is struggling within the learning environment (reading, writing and math), parents are eager for answers to help their student maximize their ability to learn and succeed in school.

Inquire Here

Psychoeducational/psychological assessments provide information to help parents, teachers, and other professionals in the child’s life gain an understanding of their individual abilities, as well as other factors that may impede learning. The assessments will not only identify learning issues, but also social, behavioral, and emotional factors that can affect performance in the classroom.

What is a Psychoeducational Assessment?

Psychoeducational/psychological assessments are comprehensive evaluations of individual intellectual and academic abilities. Assessments are administered by a licensed psychologist, and usually take several hours to complete. The child’s developmental, medical, psychiatric, behavioral, emotional and social history are also an important part of the evaluation.

Child and Adolescent Specialized Assessment Program

The Child and Adolescent Specialized Assessment (CASA) Program, a service of Nicklaus Children’s Pediatric Specialists, offers psychoeducational assessments in a relaxed setting that puts the youngster at ease. Depending on individual needs, sessions take place over several days at times that work best for the family.

Our lead testing psychologist is renowned nationally and internationally in psychoeducational testing and helping families find a path forward to support their child’s educational development.

How the CASA Program Can Help Your Child

Following testing, families are provided a comprehensive written report, which includes findings and recommendations to support the well-being of the child. The comprehensive report can be shared with relevant physicians (primary care, neurologist, etc.), tutors, teachers and school leaders to identify ways to create the best possible learning environment to help students reach their potential. Often, specific accommodations and remediation are recommended.

Who is a Candidate for the Program?

Many schools and school systems offer this service without charge. Given lengthy waits associated with some school-based services, some parents prefer to have testing performed in a private, clinical setting.

Adolescents: Adolescents who are falling behind or struggling within the classroom are candidates for psychoeducational /psychological testing. Testing helps identify whether there are emotional, social and/or behavioral concerns that may be affecting a teenager’s learning.
School-age children: Children who are falling behind or struggling within the classroom are also candidates for psychoeducational/psychological testing. Testing will identify your child’s strengths and weaknesses, their learning style and if any areas are delayed when compared to peers of the same age.
Younger children: Comprehensive developmental evaluations are available to help assess children of preschool age or younger. Evaluations can assist in identifying therapies to support development.

Is Testing for Gifted Programs Available?

The CASA program also offers testing to assess eligibility for school-based programs for the academically gifted. This involves testing to determine the child’s aptitude and academic achievement around core skills. While schools typically offer gifted program eligibility testing for students referred by a teacher, some families prefer the more relaxed setting that a private testing program can offer.

Are Program Services Covered by Insurance?

Many private insurance plans do not cover psychoeducational/psychological assessments. Please check with your provider to learn more. The CASA program offers psychoeducational testing and assessment provided by highly trained and experienced clinicians. Fees are competitive or lower than many providers in the community.

Fees

The CASA program offers fee-based services to support the need for timely psychoeducational/psychological assessments of children within the South Florida community. Payments are due at the time of the visit. We can provide families with an itemized bill to present to their insurance company, if it covers the testing.

Inquire Here

Child's First Name*:

Child's Last Name*:

Parent/Legal Guardian Name *:

Email*:

Primary Phone*:

( ) -

Is there anything you'd like to share? Type your message here*:

How did you hear about this program?*:

Child and Adolescent Specialized Assessments

A Journey to Discover How Your Child Learns Best

Phone: 786-624-2668

Inquire Here

What is a Psychoeducational Assessment?

Child and Adolescent Specialized Assessment Program

Our lead testing psychologist is renowned nationally and internationally in psychoeducational testing and helping families find a path forward to support their child’s educational development.

How the CASA Program Can Help Your Child

Who is a Candidate for the Program?

Adolescents: Adolescents who are falling behind or struggling within the classroom are candidates for psychoeducational /psychological testing. Testing helps identify whether there are emotional, social and/or behavioral concerns that may be affecting a teenager’s learning.
School-age children: Children who are falling behind or struggling within the classroom are also candidates for psychoeducational/psychological testing. Testing will identify your child’s strengths and weaknesses, their learning style and if any areas are delayed when compared to peers of the same age.
Younger children: Comprehensive developmental evaluations are available to help assess children of preschool age or younger. Evaluations can assist in identifying therapies to support development.

Is Testing for Gifted Programs Available?

Are Program Services Covered by Insurance?

Fees

Inquire Here

Child's First Name*:

Child's Last Name*:

Parent/Legal Guardian Name *:

Email*:

Primary Phone*:

( ) -

Is there anything you'd like to share? Type your message here*:

How did you hear about this program?*:

Physician Outreach Services

Welcome to Physician Outreach Services!

Phone: 786-479-8125

Physician Outreach Services:

Our goal is to visit, engage, educate and effectively communicate with physicians, practice staff and other healthcare providers in order to develop and build lasting relationships as well as inspire loyalty.

Interacting with our leadership team at Nicklaus Children's Hospital allows us to gain valuable insight in strategizing future initiatives the hospital and health system.
Enhancing customer and medical services to increase physician and patient satisfaction.
Effective Physician/Hospital communication without boundaries.

What do physician outreach liaisons do?

Assist with referrals.
Educate health care providers about Nicklaus Children’s Hospital, services and programs offered.
Assist outside organizations with securing appropriate speakers for educational events.
Organize and host Continuing Medical Education (CME) and other outreach events.
Assist with Nicklaus Children’s Hospital Electronic Medical Records (EMR) access and Cerner access.
Serve as the point of contact for community physicians.
Build and maintain collaborative interactions and open communication between Nicklaus Children’s Hospital,our medical staff and community physicians.
Create a more consistent experience for community physicians and their staff.
Address, resolve questions, concerns and issues.
Identify and address barriers to access to care.
Facilitate physician introductions and communication between Nicklaus Children’s Pediatric Specialist and community health care providers.
Arrange requested in-services.

Request an Appointment with a Nicklaus Children's Specialist

Upcoming Educational Lectures

Dr. Padilla

Dr. Rosen

Wednesday, December 4, 2024 @ 12 PM EST

Topic: Antidepressant Management and Considerations

Speakers:
Americo Padilla, MD, Chief of Department of Psychiatry
Janet P Rosen, PsyD, Pediatric Psychologist

The physician liaisons are led by Olga Laurenti. She can be reached at:
olga.laurenti@nicklaushealth.org
786-479-8125

Better Experiences Through Augmented Reality: BEAR Program

Helping Reduce Anxiety and Pain through Virtual Distraction

Phone:

Artful distraction is an important part of anxiety and pain management for children in medical environments. Virtual reality – with its immersive qualities – has proven to be an important tool in helping reduce children’s anxiety and perceptions of pain.

Nicklaus Children’s is pleased to offer virtual reality games, relaxation tools and educational resources to children in a variety of settings where they experience anxiety and pain, including pre-operative and post-operative settings.

The Immersive Experience

Virtual reality and immersive technologies are currently being offered in several hospital areas. In the Minor Procedures Suite and Same Day Procedures unit, families of children scheduled to undergo surgical procedures will be offered the opportunity to use virtual reality headsets while waiting in the preoperative area. Virtual reality tools and software have been carefully selected for use by children of varying ages and abilities. Offerings include games featuring animated sledding penguins, flying space puppies, soothing undersea-themed programming, and much more.

Children will be able to continue to engage with the technology while being wheeled into the operating room, up until it’s time for the surgical team to administer anesthesia. Once the child’s procedure is over and he or she awakens in the post-operative care setting, he or she is offered the opportunity to continue using the technology, with the goal of reducing post-operative pain.

In other areas of the hospital, we offer fully immersive patient procedure rooms. During outpatient procedures, the immersive room experience will capture the attention of children of all ages through state-of-the-art audiovisual technologies. Patients will be distracted and put at ease by engaging scenes of their own choosing (e.g., underwater, jungle, or space themes).

Assessing the Impact of VR Distraction

Nicklaus Children’s is seeking to evaluate the impact of the VR technology on children’s anxiety and post-operative pain. Those accepting the use of the equipment will be offered the opportunity to get involved in the research portion of this work. If interested, they will sign a consent form and participate in several short assessments of anxiety and pain during the care experience. If you’d like to know more about the VR Program research, please contact Dr. Christina Potter at Christina.Potter@nicklaushealth.org.

Driving Improvements Through Virtual Reality Experience: DRIVE Program

Helping Neurodiverse Individuals Prepare for the Driving Exam

Phone:

Driving can be an anxiety-inducing event for many people. Neurodiverse individuals, particularly those with autism, tend to experience heightened levels of anxiety when driving, especially when it’s time to take their driving exam. As a result, many capable adults with autism avoid pursuing their driver’s license due to overriding anxiety. The DRIVE Program – a blend of virtual and hands-on driving experience -- helps prepare atypical learners for a successful driving exam.

The Immersive Virtual Driving Experience

The program uses fully immersive virtual reality technology to provide students with an experience that simulates a driving exam. Students receive immediate feedback related to various driving scenarios in which they participate through a computer-simulated instructor. In addition, a trained behavioral analyst who is present for the session will help guide students through each scenario while paying careful attention to their levels of stress and anxiety. Alongside the VR experience, students will work with a behavioral analyst to learn the rules of the road through a tailored course curriculum.

After completion of the DRIVE Program, both participants and their parents have reduced anxiety around the overall driving experience.

Virtual reality reduced driving-related anxiety by 36% on average across all participants
Parent anxiety is reduced an average of 68% from baseline to the end of the program trials
Participant behind-the-wheel anxiety is reduced by 41% across all participants

Learn more about the DRIVE Program's pilot year.

Interested in Finding Out More?

The DRIVE Program is now a Vocational Rehabilitation vendor and enrolling new participants. If you already have your driving Learner’s Permit, please take our Expression of Interest survey to help us get to know more about you. Once completed, we can determine whether you will be eligible for the program.

To find out more about the DRIVE program, please contact the program's lead instructor Blanca Diaz at DriveProgram@nicklaushealth.org.

Pharmacogenomics Program

We help deliver the most appropriate medication tailored to a child's unique genetic makeup.

Phone: 305-666-6511

Pharmacogenomics (PGx) is part of the emerging field of precision medicine. It combines the sciences of pharmacology and genetics to study inherited variables in drug responses. Because a single medication is not always best for all individuals, pharmacogenomics is invaluable in helping identify the best product for each patient.

Nicklaus Children’s Pharmacogenomics Program, the first of its kind in South Florida, is dedicated to identifying and delivering the most appropriate medication tailored to each child’s unique genetic makeup and at the optimal dose to meet individual needs.

Who Can Benefit from the Pharmacogenomics Program?

Your child’s clinical team may refer you to the Pharmacogenomics Program if your child is taking multiple medications or is on complex drug treatments. The program can also benefit children who:

Are taking medications that are not working
Have had adverse drug reactions or significant side effects
Are taking medications with PGx information on the package insert
Have specific ethnic backgrounds

PGx testing is particularly useful in helping mange medications for children receiving care in the following pediatric specialties:

What are Benefits of PGx Testing?

Pharmacogenomics can benefit the patient by:

Minimizing adverse drug reactions
Reducing treatment failures
Reducing drug switches and dose adjustments
Reducing time to achieve desired treatment outcome
Improving patient safety
Reducing disease burden and related costs for patient families and health system
Enabling clinicians to prescribe with more confidence

How is Testing Conducted?

The PGx consultation and testing are done across various clinical departments throughout the enitre health system. Testing is performed by collecting saliva or a blood sample in a medical office and then sent to a reference laboratory. Results can be available within 2 weeks and are discussed by Geneticist and Pharmacist expert in pharmacogenomics.

How are Test Results Used?

Testing results become part of the child’s medical record and are available for use by clinicians to determine the best medications and doses for the child. The results can be made available to clinicians throughout the child’s lifetime to support care.

Fees

Pharmacogenomic testing is covered by some insurance plans depending on circumstances. Reasonable self-pay pricing is available for those who are not able to secure coverage through their insurance provider.

Developmental-Behavioral Pediatrics

Phone: 786-624-5108

Developmental-behavioral pediatricians work with parents and primary care physicians to better understand and address the needs of children who have developmental delays and/or learning or behavioral issues.

Physicians in this growing specialty provide assessment and guidance for children with a wide range of developmental or behavioral challenges. They work with the family, pediatrician, teachers and other medical professionals to develop a care plan to help children with specialized needs reach their potential.

Specialized Training

Physicians in this specialty are board certified in pediatrics and also attain a second board certification in developmental-behavioral pediatrics. Much like other specialists, the developmental-behavioral pediatrician works as needed with the family and other clinicians to support the individual needs of children in their care.

Conditions We Assess and Treat

Developmental-behavioral pediatricians participate in the assessment and treatment of:

Delays with speech, language, motor skills or thinking ability.
Disorders related to self-regulation, including sleep issues, bedwetting, feeding difficulties and challenges related to toilet training.
School-related learning issues, including difficulty with writing and/or math.
Behavioral disorders including attention-deficit/hyperactivity disorder and related conditions, including conduct issues, depression and anxiety.
Habit disorders including obsessive compulsive traits, and behavioral tics.
Developmental disabilities, vision or hearing impairments, autism spectrum disorder, cerebral palsy, spina bifida.

What to Expect

During initial visits, the developmental-behavioral pediatrician will engage the family in interviews to assess psychosocial factors and may request or perform developmental and physical/neurological exams, if indicated. Additional testing may be recommended, including genetic screening, imaging studies and neuropsychological/educational testing. Once all information is obtained, the doctor will meet with the family to discuss findings and next steps.

Bioethics Program

Bioethics offers a plan for navigating difficult medical cases

Phone: 786-624-2088

When a child is hospitalized, decisions must be made regarding approaches to care. These decisions are made by a group of people, including the patient, his or her family, physicians, and other healthcare providers. However, making a collective decision about what is best for the child can sometimes be difficult.

The Bioethics Program at Nicklaus Children's Hospital has a committee that serves as a resource and an advisory group to help with difficult care-related decisions.

Services Offered

Ethics Consultations
Policy Development and Revisions
Ethics Education

What is Bioethics?

Bioethics is the study of ethics within medicine, science, and research. We strive to provide the best bioethics services needed for complex medical cases, providing clarity and support. Bioethics provides a framework for navigating difficult and morally distressing cases.

This framework is based on four central principles:

Respect for Autonomy: The patient retains the right to make their own decisions regarding their care when they have been provided with all relevant information.
Beneficence: That the treatment and care is in the best interests of the patient, taking the overall needs of the individual into account,
Non-Maleficence: “Do no harm.” Minimize any possible risk to the patient. Do not provide treatment where there is risk of harm or no benefit.
Justice: Fairness. Spreading benefits and risks equally and without bias or discrimination.

Any violation of the above principles results in an ethical issue that must be addressed. Nicklaus’ Bioethics Program serves to maintain these principles and provide resources for employees and families to help navigate complex cases where ethical issues may arise.

Graphic showing the four key principles of Bioethics

Bioethics Committee

Nicklaus Children's Hospital acting as the child’s advocate, has a Bioethics Committee that serves as a resource and as an advisory group to help with difficult care-related decisions. Any parent, family member, or healthcare provider may request a meeting with the Bioethics Committee to receive advice or counsel.

The Bioethics Committee membership may represent and include:

Parents
Residents of the surrounding community
Community- and hospital-based physicians
Social workers
Clergy
Biomedical ethicists
Nurses
Hospital employees
Hospital administrators

EKG Community Screenings

Phone: (786) 624-2527

Interested in hosting a community EKG screening event?

To host a free EKG screening event with Nicklaus Children’s Hospital at your school, park, or sport facility, please contact:

Jennifer Ayala, SCDP Program Coordinator
(786) 624-2527
scdpprogram@nicklaushealth.org

Schedule an EKG Test

For your convenience, free EKG screenings are also offered by appointment at various Nicklaus Children’s locations.

Schedule an appointment today at one of our centers.

Hand and Upper Extremity Program

Giving children with hand deformities and hand injuries the best possible outcomes.

Phone: 1-888-624-2778

Hands are a special human feature. When a child has a hand malformation or injury, the entire family is keenly focused on finding medical resources to maximize the child’s future hand-use potential.

The Hand and Extremity Program at Nicklaus Children's is dedicated to giving children with hand deformities and hand injuries the best possible outcome. It is the only program in Florida specializing exclusively in the treatment of pediatric hand and extremity surgical and therapeutic needs.

The Hand and Extremity Surgery Team

The team includes pediatric plastic and reconstructive surgeons who specialize in the treatment of congenital limb differences – often referred to as dysmelia – and hand and limb injuries. The team utilizes the latest microsurgical reconstruction techniques to enhance outcomes.

The surgical team is supported by a network of pediatric occupational therapists who work in concert with the physician to support the child in developing and restoring function of hands and extremities after surgical repair.

Post oncology treatment anomalies
Post surgical treatment

Traumatic Hand Injuries

The physicians of the Hand and Extremity Program are skilled in restoring the appearance and function of hands and extremities injured during a traumatic event.

The team can help restore damaged bones, tendons and nerves following traumatic injury and can often successfully reattach, hands, fingers or toes separated due to traumatic injury.

Post-Surgical treatment

Occupational therapy is an essential component of the Nicklaus Children's Hospital Hand and Extremity Program. As part of its commitment to optimizing service, the hospital offers families the convenience of pediatric occupational therapy close to home. The hospital’s network of eight outpatient centers – situated in communities extending from southern Miami-Dade to Palm Beach County – feature pediatric occupational therapy services to support children following reconstructive surgery or injury.

Thyroid and Endocrine Surgery Center

We provide care for children with wide-ranging thyroid and surgical endocrine conditions.

Phone: 305-662-8368

The Thyroid and Endocrine Surgery Center at Nicklaus Children’s offers comprehensive care management for children and adolescents with a full range of thyroid disorders and endocrine conditions requiring surgical management. While it occurs more frequently in adults, thyroid disease is among the most common endocrine disorders of childhood, occurring in approximately 37 of 1,000 children under the age of 20. Conditions affecting the adrenal and parathyroid glands, such as pheochromocytomas and parathyroid adenomas, are uncommon in the pediatric population but require surgical management due to the serious complications if left untreated.

The thyroid is a small gland located in the base of the neck and is part of the body’s endocrine system. This hard-working gland produces hormones that contribute to growth, organ development, and bone health. In addition, it helps the body utilize energy effectively. Thyroid hormones support a wide range of core bodily activities, including breathing, heartbeats, muscle strength, menstrual cycles, body temperature maintenance and more. When the thyroid does not function properly, a variety of health challenges may occur if not appropriately managed.

The adrenal gland produces important hormones to control body electrolytes, glucose, and stress hormones. Neoplasms of the adrenal gland can produce conditions affecting weight, glucose levels, electrolytes, blood pressure, and others. The parathyroid gland controls the body calcium levels. Excessive calcium can produce kidney stones and may affect kidney function and heart rhythm.

A Team Approach to Care

The Thyroid and Endocrine Surgery Center brings together a comprehensive care team to consult in the care of children with thyroid and endocrine disorders that require medical and surgical management. Patients and families benefit from a collaborative approach that brings together multidisciplinary experts to assess and provide care for children with wide-ranging thyroid and surgical endocrine conditions.

The team has pediatric specialists in:

Pancreatic Surgery

Thyroid and Endocrine Surgery Center

We provide care for children with wide-ranging thyroid and surgical endocrine conditions.

Phone: 305-662-8368

A Team Approach to Care

Pancreatic Surgery

Same-day pediatric cardiology appointments in Weston

Phone: 954-217-6300

Nationally ranked pediatric cardiology care is in your neighborhood.

Reserve your same-day* appointment with our cardiologist, Dr. Nancy Dobrolet, at the Nicklaus Children’s Dan Marino Outpatient Center in Weston.

Services offered include:

EKG screenings
Management of congenital heart disease
Murmur evaluations
Rhythm abnormalities
Sports physicals
Syncope evaluations

*Subject to insurance approval and authorization.

Dr. Nancy Dobrolet is a board-certified pediatric cardiologist with more than 22 years of experience.

Global Health Initiative

For the early detection and treatment of congenital heart disease in newborns

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Supporting Universal Newborn Screening for Congenital Heart Disease in Colombia

The Global Health Initiative was established in 2019 with the aim of improving pediatric cardiovascular outcomes in Colombia by facilitating the early diagnosis of congenital heart disease (CHD) conditions in newborns and enhancing access to quality cardiac care. In collaboration with Nicklaus Children’s Hospital, this initiative is fully supported through the generous funding by the Larry De George (LDG) Foundation and the Lorena Perozo-Rocha (LPR) Charitable Foundation, based in Barranquilla, Colombia.

This initiative currently works closely with 19 strategically located hospitals, maternity centers, and universities throughout seven regions of northern Colombia to implement universal newborn screening for the early detection and treatment of CHD. The program supports participating sites by training nurses and physicians in the use of donated pulse oximeters and echocardiography equipment and by providing the most up-to-date clinical protocols for CHD screening and echo evaluations.

The program also provides ongoing clinical data and metric reports to all participating sites to ensure they meet optimal levels of screening adoption. As of December 2023, the Global Health Initiative has screened over 100,000 newborns for congenital heart disease. In addition, we have trained 500 physicians and nurses in up-to-date CHD screening techniques.

map of colombia with location pins for the sites.

Improving Access to Tertiary Cardiac Treatment for Colombian Children

The Global Health Initiative is also focused on enhancing tertiary cardiac care services for any diagnosed CHD cases by supporting a ‘hub and spoke’ model of care with key hospital partners in Cartagena and Medellin.

In Cartagena, the program is generously donating a state-of-the-art cardiac interventional lab to the main tertiary children’s hospital in the region, Casa del Nino, to help provide immediate regional access to higher levels of surgical complexity. A ground ambulance will also be donated to help improve regional patient transport for the most critical cases, thereby improving patient outcomes.

ECMO Equipment Donation and ELSO Certification

At Hospital San Vicente Fundación in Medellin, the Foundation has donated lifesaving Extra Corporeal Life Support (ECMO) equipment and provided for the international ELSO certification of the cardiac surgery and clinical team. This program has already measurably raised the hospital’s surgical complexity and helped improve patient outcomes.

Pictured: The ECMO team at Hospital San Vicente Fundación led by Dra. Sonia Morales Echevarria (second from the left).

Interventional Lab Equipment

In Cartagena, the LPR Foundation is generously donating a state-of-the-art cardiac interventional lab equipment to the main tertiary children’s hospital in the region, Casa del Niño, to help provide immediate regional access to higher levels of surgical complexity.

Ground Transportation

A pediatric ground ambulance is also being donated and equipped to help improve regional patient transport for the most critical cases, thereby improving patient outcomes.

Recognition of the Global Health Initiative's Impact in Colombia

The efforts by the Global Health Initiative in improving cardiac screening in newborns were recently recognized by the Colombian Senate, the national pediatric society and press outlets throughout Colombia.

Colombian Senate Recognition of Global Health Initiative.

Colombian Senate Recognition of Global Health Initiative - October 5, 2023

Left to Right: Mr. Climaco Molina, Co-Founder, LPR Foundation; Mr. Lawrence De George, Director, LDG & LPR Foundation; Senator Sandra Jaime; Ms. Lorena Perozo, CEO, LPR Foundation; Dr. Andrea Maggioni, Director, Global Health at Nicklaus Children’s Hospital; Dr. Marcos Mestre, Vice-President and CMO, Nicklaus Children’s Hospital.

Colombian Pediatric Society (Sociedad Colombia de Pediatría)
Event to Honor GHI Efforts in Colombia – July 6-8, 2023

Advocating for Universal Detection of Newborn Coronary Artery Disease in Colombia

The Global Health Initiative continues to seek and build support from city and departmental governments to help drive universal screening for newborn congenital heart disease at the local level. GHI recently obtained the commitment from the City of Cartagena and the Bolívar department Secretary of Health to implement universal newborn screening throughout the region’s hospitals and maternity centers. Weekly clinical roundtables have been implemented to ensure its implementation. In the Department of Quindío, we are also working closely with our partners at the Hospital Departamental San Juan de Dios and municipal and regional leadership to help quickly expand the CHD screening program through a “Train the Trainer” program. In the Department of Caldas, we recently met with the president and management team of the Caldas University Hospital in Manizales to look for ways to expand the detection of congenital heart diseases throughout the region.

Global Health Initiative

For the early detection and treatment of congenital heart disease in newborns

Phone:

Supporting Universal Newborn Screening for Congenital Heart Disease in Colombia

map of colombia with location pins for the sites.

Improving Access to Tertiary Cardiac Treatment for Colombian Children

ECMO Equipment Donation and ELSO Certification

Pictured: The ECMO team at Hospital San Vicente Fundación led by Dra. Sonia Morales Echevarria (second from the left).

Interventional Lab Equipment

Ground Transportation

A pediatric ground ambulance is also being donated and equipped to help improve regional patient transport for the most critical cases, thereby improving patient outcomes.

Recognition of the Global Health Initiative's Impact in Colombia

Colombian Senate Recognition of Global Health Initiative.

Colombian Senate Recognition of Global Health Initiative - October 5, 2023

Colombian Pediatric Society (Sociedad Colombia de Pediatría)
Event to Honor GHI Efforts in Colombia – July 6-8, 2023

Advocating for Universal Detection of Newborn Coronary Artery Disease in Colombia

Adaptive Care Program

Phone: 786-624-5289

For some children with behavioral or communication vulnerabilities, including many on the autism spectrum, a hospital stay can be challenging. At Nicklaus Children's Hospital, our inpatient Adaptive Care Program supports the needs of our neurodivergent population and other eligible children.

What is ‘Neurodivergent’?

“Neurodivergent” is used to describe children and adults with brain differences that influence how their brains work and process information. These individuals have strengths and challenges that are distinct from people whose brains do not have those differences. These differences may include medical disorders, learning disabilities, sensory processing sensitivities, and other conditions.

What is Adaptive Care?

The Adaptive Care Program seeks to create a safe and comfortable environment for children on the autism spectrum and those who have other behavioral or developmental needs during inpatient hospitalization. The program's behavioral experts work with families to understand the individual preferences of children and provide tools and support for clinical teams to ensure that the needs of the child are understood.

Why is a Hospital Environment Difficult for Children with ASD and Other Specialized Developmental Needs?

A hospital can create a perfect storm of challenges for children with autism spectrum disorder (ASD) and other communication and behavioral vulnerabilities. A hospitalization separates children from the routines and predictability they typically find soothing. Unfamiliar people, places, and equipment add to the discomfort. The Adaptive Care Program team works with the child and family to find ways to balance the child's needs within the care setting to create a better experience for all.

Who is Eligible for the Program?

This inpatient program is offered to families of children over the age of 3 who have difficulty coping during hospitalization, or have sensory, behavioral, or communicative needs. Typically, these children have a current diagnosis or are being evaluated for a development disability or behavioral condition.

How the Program Makes an Impact

Behavioral resource staff at Nicklaus Children's work with families to provide resources and support to help their child have a better experience in the hospital. The staff also works with clinical team members to help them understand the needs of each child referred to the program. The program staff creates individual care plans for each child to provide hospital care teams with:

An understanding of patient preferences/needs
Environmental modifications that can support the child
Activity plans
Supportive tools
Response plans to use if behaviors escalate
Training to support management of children with communication or behavioral needs

Supportive Devices and Tools

The staff utilizes a range of tools to support children with communicative and behavioral needs. These can include:

Sensory tools that offering soothing distraction and may calm children in challenging situations
Visual aids and communications tools to help children express their needs and preferences
VECTAs, mobile sensory stations, which can turn a patient room into a relaxing, distracting multi-sensory room.

How to Get Started

If your child would benefit from the Adaptive Care Program, please contact AdaptiveCareTeam@nicklaushealth.org prior to an inpatient hospitalization. The team will work with you to plan the best possible support for your child.

About the Team

The program is led by a board-certified behavior analyst and staff trained in applied behavior analysis (ABA).

Autism Friendly Partner

The Center for Autism & Related Disabilities (CARD) at the University of Miami and Nova Southeastern University, South Florida’s leading resource for autism support, recognizes Nicklaus Children’s Hospital as an Autism Friendly Partner. CARD’s Autism Friendly Initiative's goal is to create more inclusive places within the community for individuals with Autism Spectrum Disorder (ASD) and their families by providing training and programmatic support to create sensory friendly places and spaces.

Rare Diseases in Children

Nicklaus Children’s Hospital is a regional leader in providing diagnosis and care for children with rare diseases.

Phone:

Treatment of Rare Diseases in Children

Nicklaus Children’s Hospital is a regional leader in providing diagnosis and care for children with rare diseases. Families come to us from throughout Florida, the nation and around the world in search of our specialty care excellence.

The hospital offers a wide array of specialized programs and clinics to support the care of children with uncommon medical conditions, providing hope and advanced care for those we serve. Many of our specialty clinics bring together a multidisciplinary medical team to collaborate in the care of each individual child. To learn more about individual programs please follow the links below.

Brain Institute

Cancer and Blood Disorders Institute

Orthopedics, Sports Medicine and Spine Institute

Heart Institute

The International Vascular Birthmarks Institute

Craniofacial Center

NCPS Services

Gastroenterology and Inflammatory Bowel Disease Center

Anorectal Malformation

Brachial Plexus Program

Family Advisory Council

A vital link between Nicklaus Children's Hospital and the families it serves.

Phone:

What is the Family Advisory Council?

The Family Advisory Council (FAC) was formed in 1998 and serves as an advisory committee to the Board of Directors, administration, and hospital staff. The council's mission is to work in partnership with hospital staff to promote the delivery of Patient and Family Centered Care. FAC members identify the needs and priorities of patients and families and work on annual goals that will benefit families coming to Nicklaus Children's Hospital.

The Family Advisory Council is made up of parents in the community who are actively engaged and communicating with the hospital. The Council’s role is to provide experience-based feedback to promote positive changes in the hospital. It also encourage parents to become their child’s #1 advocate through education and a fluid relationship with their care team. This empowers parents to ask questions and grow as they learn about their child’s medical needs.

Membership

Membership consists of individuals who subscribe to the purpose and responsibilities of Nicklaus Children's Hospital Family Advisory Council. Family members are parents, grandparents, or guardians of children who have been patients.

To be eligible for membership FAC applicants need to attend three consecutive meetings as a prospective member, complete an application, meet with the Membership Liaison and be selected for membership. The council meets the third Tuesday of every month from 6:30 PM to 8:30 PM with the exception of the months of July and August.

In order to maintain membership, members are asked to attend a minimum of seven meetings yearly plus the January meeting where the annual Goals are discussed. If a member is unable to satisfy the minimum attendance requirements, FAC member will need to re-apply for membership in the future.

Apply for Membership

FAC Events

Monthly Meeting
2^nd Tuesday of the month (10 times a year)
6:30 pm - 8:00 pm
via Teams and some in person

Responsibilities of the members of the FAC

Provide a vital link between Nicklaus Children's Hospital and the families it serves.
Provide feedback on delivery of services for all children and their families.
Review issues and concerns referred to the Family Advisory Council and provide recommendations to the hospital.
Participate in the development of guidelines and policies.
Assist in the planning of new facilities and services.
Volunteer to be on hospital committees and/or FAC projects.

two siblings looking at a tablet with their special needs brother.

Family Advisory Council Accomplishments

Promoted family engagement in their child's medical care
Developed Q.U.E.S.T (tool that encourages families to ask questions regarding care)
Created list of services available for patients and families while staying at Nicklaus
Have led activities for National Patient Safety Awareness Week
Led the design of the Michael Fux Family Center
Implemented a family awareness video/brochure on patient falls
Implemented family awareness brochures on pain management
Participated in the design of the Advanced Pediatric Care Pavilion
Participated in lean processes to improve communication among care providers
Serve as members of the Patient Safety Committee
Implemented of Scrappin' Moments program
Host the Santa video conference call event
Assisted in the development of the Ambulatory Surgery Information Card
Reviewed Nicklaus Childrens Hospital policies and procedures
Family Advisory Council rounding
Participated in the Customer Service Excellence Program
Speak at national conferences representing our FAC at Nicklaus Children's Hospital

Testimonials from FAC Members

Andrea hugging her daughter. “We spend a lot of time at Nicklaus Children's Hospital, both inpatient and outpatient, to work with numerous specialists. I chose to get involved with the Family Advisory Council for three main reasons. First and foremost, I want this hospital to be the best that it can be, so I'm excited to offer my insight. Second, I enjoy being able to participate in the development of new programs – it's empowering to be able to listen to staff from various departments make presentations and they greatly value our feedback. Last but not least, my family and I enjoy the camaraderie of the other families at the monthly meetings and special events. I encourage other families to join the FAC for these reasons, and many more!”

– Andrea Abramowitz

Undiagnosed Disease Clinic

Offering the latest genetic testing technologies to help families find medical answers for children with undiagnosed diseases.

Phone: 786-624-2381

Hope for Families of Children with Undiagnosed Diseases

For some families of children with rare diseases, the search for a diagnosis can be a prolonged and often frustrating experience. These families may have already visited multiple specialists and undergone a variety of tests in hopes of finding answers. The Undiagnosed Disease Clinic at Nicklaus Children’s is dedicated to helping such families identify the genetic condition affecting their child in hopes it may lead to diagnosis and treatment.

The clinic has access to new genetic testing technologies that are not commonly available. These new technologies make possible the detection of genetic alterations not typically found by commonly used clinical genetic tests.

Who is a Candidate for the Clinic?

Candidates for the clinic usually have two or more of the following characteristics or circumstances:

Inborn anomalies (differences) of the heart, kidneys, brain, hands feet or any other parts of the body.
A lab test that suggests a genetic disease, such as an abnormal newborn screen or abnormal tests suggesting the body is having trouble processing certain substances.
Abnormal response to standard therapy, or unusual presentations of certain medical conditions.
Low muscle tone (hypotonia).
Seizure disorders that do not respond to medication or require multiple medications.
Undiagnosed neurodevelopmental conditions, including difficulties with language and speech, motor skills, behavior, memory, learning or other neurological functions.
Abnormal growth parameters, including height, weight or head size (too big, too small for their age and gender).
Have visited a genetic specialist and undergone standard clinical genetic tests, without a diagnosis.

How to Get Started

To apply for participation in the clinic please schedule an appointment with a NCPS genetics provider by contacting 786-624-4741. We will request that you or your doctor provide copies of the patient’s medical records and results of any tests previously performed that relate to the current symptoms. It is important that those records include the clinical notes from the genetics specialist who manages the child and all results of genetic tests performed.

Once we have all your clinical information, a team of genetics specialists will meet to discuss the case and determine which, if any, of the new testing offerings is the most likely to reveal a diagnosis. Once the team has determined this, the family is contacted to schedule an appointment with the clinic.

Patients who might benefit from the clinic but have not yet met the criteria (such as completed clinical testing) will be referred to the Nicklaus Children’s Genetics Clinic for an appropriate clinical workup. Once this step is completed, the patient may be reconsidered for the Undiagnosed Disease Clinic.

About the Undiagnosed Disease Clinic

The clinic takes place monthly. Here’s what participants can expect:

You and your child will be seen by a genetics specialist who will collect all the medical information, including current symptoms, past medical conditions, and medical history of other family members. A complete medical exam will be performed.
The clinical team will discuss with you the diagnostic strategies and refer to other specialist if needed. They will explain what to expect, how new tests compare with previous tests and potential risks, benefits and limitations of genetic testing, and what’s involved with the testing process.
In some cases, the team will recommend other family members to come to the clinic and receive genetic testing. This recommendation will be made if the team believes this may support finding a diagnosis for your child.

The Testing Process and Results

Testing: Most patients will need to provide a blood/ buccal or saliva sample for use in diagnostic testing. For most patients, the sample will be collected on the same day as the clinic visit. However, for some situations, the collection may be scheduled for another day, depending on insurance approval for the test.

Results: Testing results will be shared at a follow-up appointment at the Undiagnosed Disease Clinic. The clinician will discuss the clinical significance of the results, available treatments, clinical trials, and provide genetic counseling about the meaning of the child’s test results, what to expect in the future, inheritance patterns, and risk for other family members to have the same condition. Some patients may need to undergo additional testing.

Next Steps: For some patients, psychological and pharmacogenomics evaluation (testing for specific genes to determine how the child’s body will react to certain medications) and counseling will be provided. Based on the recommendations, future doctor visits can be coordinated. With family consent, a summary letter may be sent to the child’s primary physician.

Pediatric Neurovascular Program

Providing Care for a Full Spectrum of Neurovascular Disorders in Children

Phone: 786-624-2381

Part of the hospital's world-renowned Brain Institute, which is consistently ranked among the top programs in the nation for pediatric neurology and neurosurgery, the Nicklaus Children's Hospital's Neurovascular Program is one of only a few programs of its kind in the nation and is the only center in South Florida specializing in treatment of children with vascular malformations and stroke.

Pediatric neurovascular disorders include a range of conditions associated with the malfunction or injury of blood vessels of the brain, spinal cord, head and neck. The program offers comprehensive evaluation and treatment – including minimally invasive catheter-based treatment. The program also performs tumor embolization and direct chemotherapy.

Comprehensive Care Team

The Pediatric Neurovascular Program care team includes:

Pediatric Emergency Department physicians
Hospitalists (pediatricians)
Neurologists specializing in stroke and other neurovascular events in children
Neurointensivists/neurocritical care experts
Fellowship-trained endovascular neurosurgeons
Pediatric neurosurgeons
Geneticists
Hematologists
Neuroradiologists
Pediatric brain injury recovery specialists

Technology to Support Optimal Care

The team is backed by a the latest technology to enhance care, including a hybrid angiography suite and operating room that enables diagnostic testing and surgical therapy to take place in a single room with a single application of anesthetic, eliminating the need for separate imaging and surgical procedures. Nicklaus Children's is one of only a few children’s hospitals in the nation to feature a hybrid angiography suite.

Continuum of Care

The Pediatric Neurovascular Program offers a comprehensive continuum of care to that provides optimal support for children with neurovascular disorders and their families. Nicklaus Children's Hospital is home to the region’s only freestanding pediatric Emergency Department, which is staffed around-the-clock by pediatric specialists, with experts in virtually every pediatric subspecialty on call.

The hospital also features a Pediatric Intensive Care Unit, and a 30-bed pediatric inpatient neuroscience unit staffed by RNs who are trained and highly experienced in the care of children with neurological conditions.

Outpatient Therapy to Support Recovery

Nicklaus Children's Hospital offers pediatric rehabilitation services at outpatient center locations situated throughout South Florida, from West Palm Beach to Palmetto Bay in southern Miami Dade.

Pediatric Neurovascular Program

Providing Care for a Full Spectrum of Neurovascular Disorders in Children

Phone: 786-624-2381

Comprehensive Care Team

The Pediatric Neurovascular Program care team includes:

Pediatric Emergency Department physicians
Hospitalists (pediatricians)
Neurologists specializing in stroke and other neurovascular events in children
Neurointensivists/neurocritical care experts
Fellowship-trained endovascular neurosurgeons
Pediatric neurosurgeons
Geneticists
Hematologists
Neuroradiologists
Pediatric brain injury recovery specialists

Technology to Support Optimal Care

Continuum of Care

Outpatient Therapy to Support Recovery

Nicklaus Children's Hospital offers pediatric rehabilitation services at outpatient center locations situated throughout South Florida, from West Palm Beach to Palmetto Bay in southern Miami Dade.

Pediatric Neurovascular Program

Providing Care for a Full Spectrum of Neurovascular Disorders in Children

Phone: 786-624-2381

Comprehensive Care Team

The Pediatric Neurovascular Program care team includes:

Pediatric Emergency Department physicians
Hospitalists (pediatricians)
Neurologists specializing in stroke and other neurovascular events in children
Neurointensivists/neurocritical care experts
Fellowship-trained endovascular neurosurgeons
Pediatric neurosurgeons
Geneticists
Hematologists
Neuroradiologists
Pediatric brain injury recovery specialists

Technology to Support Optimal Care

Continuum of Care

Outpatient Therapy to Support Recovery

Nicklaus Children's Hospital offers pediatric rehabilitation services at outpatient center locations situated throughout South Florida, from West Palm Beach to Palmetto Bay in southern Miami Dade.

Pediatric Neurovascular Program

Providing Care for a Full Spectrum of Neurovascular Disorders in Children

Phone: 786-624-2381

Comprehensive Care Team

The Pediatric Neurovascular Program care team includes:

Pediatric Emergency Department physicians
Hospitalists (pediatricians)
Neurologists specializing in stroke and other neurovascular events in children
Neurointensivists/neurocritical care experts
Fellowship-trained endovascular neurosurgeons
Pediatric neurosurgeons
Geneticists
Hematologists
Neuroradiologists
Pediatric brain injury recovery specialists

Technology to Support Optimal Care

Continuum of Care

Outpatient Therapy to Support Recovery

Nicklaus Children's Hospital offers pediatric rehabilitation services at outpatient center locations situated throughout South Florida, from West Palm Beach to Palmetto Bay in southern Miami Dade.

Nicklaus Children's Hospital Transfer Center

A centralized resource for transferring children to Nicklaus Children’s from referring healthcare facilities

Phone: 1-833-NICK4KIDS

For the many children who are transferred to Nicklaus Children’s Hospital – from throughout the region or simply from across town – the care journey now begins with Nicklaus Children’s Transfer Center.

The Transfer Center is a patient-focused, single-point-of-contact resource to ensure the safe and timely transfer of children from:

Hospitals
Healthcare systems
Emergency departments
Urgent care centers
Physician offices (direct admissions). Call the Transfer Center and choose option 3.

The center serves as an extension of the Nicklaus Children’s clinical team with the goal of providing optimal support and service to referring organizations and the children and families in their care.

About the Transfer Care Team

The Transfer Center team is comprised of nurses and care coordinators who are responsible for ensuring safe, efficient and well-coordinated transfers of pediatric patients from referring facilities. The center’s goal is to partner with transferring hospitals and organizations to create a seamless process to support continuity of care.

How to Reach the Transfer Team

The Transfer Center is staffed 24 hours a day by clinical team specialized in facilitating transfers.

1-833-NICK4KIDS (833-642-5454)
Internally, call ext. 3399

Collaborating With LifeFlight and Other Transport Services

The Transfer Center team works in collaboration with expert transport services, including Nicklaus Children’s own LifeFlight^® Critical Care Transport team, a regional leader in the transport of children and infants with critical care needs. LifeFlight features both air and ground ambulances and conducts about 4,000 transports annually. The service is staffed by nurses and emergency medical technicians (EMTs) who are equipped and trained to transport critically ill neonates and children of all ages, up to age 21.

Nicklaus Children’s Hospital is not a direct air carrier. Aircraft, both helicopter and fixed wing, are operated pursuant to contract with Nicklaus Children’s by companies that are FAA certified.

Why Transfer to Nicklaus Children’s

Nicklaus Children’s is the hospital where children matter most. The 307-bed pediatric specialty hospital offers more than just healthcare services. We offer patient-focused, personalized treatment. delivered by world-renowned clinicians to address the needs of children from throughout the region and across the globe.

The hospital’s 850-member medical staff features care providers in virtually every pediatric subspecialty, with a full spectrum of experts available to consult in complex cases. The hospital is home to three intensive care units (pediatric, neonatal and cardiac) and four medical institutes that are national and regional leaders in caring for children with complex care needs. The institutes include the Nicklaus Children’s Brain Institute, Cancer and Blood Disorders Institute, Heart Institute, and Orthopedic, Sports Medicine and Spine Institute.

Developmental Disorders and Autism Program

A comprehensive care program for autism and other developmental/cognitive disorders in children.

Phone: 786-624-4381

The Developmental Disorders and Autism Program at the Nicklaus Children's Hospital is internationally recognized and offers a comprehensive care program for autism and other developmental/cognitive disorders in children referred from all over the world. In the United States, approximately 1 in 6 children aged 3 to 17 years in diagnosed with a developmental disorder including but not limited to autism, attention deficit/hyperactivity disorder, and intellectual disability.

The program at Nicklaus Children's also coordinates with specialized medical and allied healthcare professionals, behavioral, physical, occupational and speech-and-language therapists, educational organizations, volunteer programs and parent support organizations to support each child.

What is Autism?

Autism spectrum disorder (ASD) is a neurodevelopmental disorder characterized by social and communication deficits for age, and excessive restrictive-repetitive behaviors and/or interests. People with ASD may also have differences in learning, moving and behavioral regulation. It is important to note that some people without ASD may also exhibit some of these symptoms, but for people with ASD these characteristics can make daily life very challenging.

Autism Facts

Autism impacts the expected development of the brain in the areas of social interaction, communication skills, and cognitive function.
Individuals with autism typically have difficulties in verbal and non-verbal communication, social interactions, and leisure or play activities.
In the United States, 1 out of 36 children will be diagnosed with ASD by 8 years of age.
Males are four times more likely to have an ASD than females.
Autism greatly varies from person to person: No two people with autism are alike, and functional impact ranges from very mild to severe.
Children with autism do progress – early identification and intervention is key.

Does my child have ASD?

Who should be evaluated for ASD or related disorders? Children who exhibit all of the following developmental and behavioral characteristics:

Delayed communication skills and/or difficulty with social communication and understanding
Difficulty understanding social cues and/or lack of interest in socially engaging with others, particularly age-matched peers
Excessive restrictive interests and/or engagement in ritualized or repetitive activities

ASD Evaluations

The first step for parents seeking care and assistance for their children is a full evaluation by a physician – either a pediatric neurologist, developmental-behavioral pediatrician or psychiatrist specializing in ADHD. The physician will obtain a detailed medical history and perform a thorough physical and neurological examination.
Further medical work up such EEG, brain imaging and/or genetic and metabolic testing may be recommended.
A consultation with a psychologist specializing in ASD is occasionally recommended. This may include an expanded assessment including a standardized behavioral assessment, IQ test and other evaluations for symptoms of ASD and other conditions that can be associated or mistaken for ASD.
Once the evaluation is complete, the physician will meet with the family to discuss and explain results.

Treatment options for ASD

For children identified as having ASD or associated disorders, ongoing management and support may include:

Psychological intervention including behavioral therapy or modification
Speech and language, occupational and/or physical therapy
Treatment with medication
Educational recommendations to meet the child’s needs
Referral to support groups and extracurricular activities

What is ADHD?

Attention deficit disorder with or without hyperactivity (ADHD) is the most common behavioral disorder of childhood. The three main ADHD symptoms in children include inattention, hyperactivity and impulsive behaviors. These traits can lead to difficulties in school, challenging social interactions with other children and adults, and low self-esteem. Associated disorders can include anxiety, depression, difficult behaviors (oppositional defiant disorder), tics and learning disabilities.

Does my child have ADHD?

Children who exhibit any of the following behavioral characteristics may be a candidate for evaluation by a team of professionals. Expand each section for more information.

Inattention

Fails to pay close attention to details or makes careless mistakes
Has difficulty maintaining attention in tasks or play activities
Does not seem to listen when spoken to directly
Does not follow directions and fails to complete schoolwork, chores or, in adolescents, on-the-job duties
Has difficulty organizing tasks or activities
Avoids or dislikes tasks that require sustained mental effort (such as schoolwork or homework)
Is easily distracted
Is often forgetful in daily activities

Hyperactivity

Excessively fidgets with hands or feet or squirms in seat
Leaves seat in classroom or in other situations in which remaining seated is expected
Runs or climbs excessively when inappropriate
Has difficulty playing or engaging in leisure activities quietly
Is always on the go or acts is if “driven by motor”
Often talks excessively
In adolescents, may be exhibited by feelings of restlessness

Impulsivity

Blurts out answers before questions have been completed
Has difficulty waiting his/her turn
Interrupts or intrudes on others (for example, butts into conversations or games)
Is easily angered and can have aggressive or disruptive behavioral outbursts

ADHD Evaluations

The first step for parents seeking care and assistance for their children is a full evaluation by a physician – either a pediatric neurologist, developmental-behavioral pediatrician or psychiatrist specializing in ADHD. The physician will obtain a detailed medical history and perform a thorough physical and neurological examination.

A consultation with a psychologist specializing in ADHD is occasionally recommended. This may include an IQ test and evaluation for symptoms of ADHD and other conditions that can be associated or mistaken for ADHD.

Once the evaluation is complete, the physician will meet with the family to discuss and explain results.

Treatment options for ADHD

For children identified as having ADHD or associated disorders, ongoing management and support, may include:

Psychological intervention including behavioral therapy or modification
Treatment with medication
Educational recommendations to meet the child’s needs
Referral to support groups and extracurricular activities

Autism Friendly Partner

The Center for Autism & Related Disabilities (CARD) at the University of Miami and Nova Southeastern University, South Florida’s leading resource for autism support, designates Nicklaus Children’s Hospital as an Autism Friendly Partner. CARD’s Autism Friendly Initiative's goal is to create more inclusive places within the community for individuals with Autism Spectrum Disorder (ASD) and their families.

Developmental Disorders and Autism Program

A comprehensive care program for autism and other developmental/cognitive disorders in children.

Phone: 786-624-4381

What is Autism?

Autism Facts

Autism impacts the expected development of the brain in the areas of social interaction, communication skills, and cognitive function.
Individuals with autism typically have difficulties in verbal and non-verbal communication, social interactions, and leisure or play activities.
In the United States, 1 out of 36 children will be diagnosed with ASD by 8 years of age.
Males are four times more likely to have an ASD than females.
Autism greatly varies from person to person: No two people with autism are alike, and functional impact ranges from very mild to severe.
Children with autism do progress – early identification and intervention is key.

Does my child have ASD?

Who should be evaluated for ASD or related disorders? Children who exhibit all of the following developmental and behavioral characteristics:

Delayed communication skills and/or difficulty with social communication and understanding
Difficulty understanding social cues and/or lack of interest in socially engaging with others, particularly age-matched peers
Excessive restrictive interests and/or engagement in ritualized or repetitive activities

ASD Evaluations

The first step for parents seeking care and assistance for their children is a full evaluation by a physician – either a pediatric neurologist, developmental-behavioral pediatrician or psychiatrist specializing in ADHD. The physician will obtain a detailed medical history and perform a thorough physical and neurological examination.
Further medical work up such EEG, brain imaging and/or genetic and metabolic testing may be recommended.
A consultation with a psychologist specializing in ASD is occasionally recommended. This may include an expanded assessment including a standardized behavioral assessment, IQ test and other evaluations for symptoms of ASD and other conditions that can be associated or mistaken for ASD.
Once the evaluation is complete, the physician will meet with the family to discuss and explain results.

Treatment options for ASD

For children identified as having ASD or associated disorders, ongoing management and support may include:

Psychological intervention including behavioral therapy or modification
Speech and language, occupational and/or physical therapy
Treatment with medication
Educational recommendations to meet the child’s needs
Referral to support groups and extracurricular activities

What is ADHD?

Does my child have ADHD?

Children who exhibit any of the following behavioral characteristics may be a candidate for evaluation by a team of professionals. Expand each section for more information.

Inattention

Fails to pay close attention to details or makes careless mistakes
Has difficulty maintaining attention in tasks or play activities
Does not seem to listen when spoken to directly
Does not follow directions and fails to complete schoolwork, chores or, in adolescents, on-the-job duties
Has difficulty organizing tasks or activities
Avoids or dislikes tasks that require sustained mental effort (such as schoolwork or homework)
Is easily distracted
Is often forgetful in daily activities

Hyperactivity

Excessively fidgets with hands or feet or squirms in seat
Leaves seat in classroom or in other situations in which remaining seated is expected
Runs or climbs excessively when inappropriate
Has difficulty playing or engaging in leisure activities quietly
Is always on the go or acts is if “driven by motor”
Often talks excessively
In adolescents, may be exhibited by feelings of restlessness

Impulsivity

Blurts out answers before questions have been completed
Has difficulty waiting his/her turn
Interrupts or intrudes on others (for example, butts into conversations or games)
Is easily angered and can have aggressive or disruptive behavioral outbursts

ADHD Evaluations

Once the evaluation is complete, the physician will meet with the family to discuss and explain results.

Treatment options for ADHD

For children identified as having ADHD or associated disorders, ongoing management and support, may include:

Psychological intervention including behavioral therapy or modification
Treatment with medication
Educational recommendations to meet the child’s needs
Referral to support groups and extracurricular activities

Autism Friendly Partner

Movement Disorders Program

Compassionate and multidisciplinary care for children with genetic and acquired movement disorders.

Phone:

The Movement Disorders Program at Nicklaus Children’s Hospital offers multidisciplinary evaluation, treatment and support for children with movement disorders including chorea, cerebral palsy, dystonia, spasticity, tremor, tics and ballismus/hemiballismus.

What Are Movement Disorders?

Pediatric movement disorders can come in many forms and with a variety of symptoms. It can sometimes be difficult for parents to determine if their child has a movement disorder or is just moving in a way that is natural for children.

Common symptoms of movement disorders can affect many different parts of the body, including the arms and legs, hands and fingers, feet and toes, head and neck or even the face and voice. They can include symptoms such as:

Twitches, spasms, shaking or other repetitive or uncontrolled movements
Stiffness in the limbs or waist
Trouble walking or a noticeable change in gait
Coordination and balance problems
Trouble speaking, writing or swallowing

If any of these symptoms seem to be unusual or persistent in your child, then it might be a sign of a movement disorder. It’s worth a visit with your primary care provider to see if a referral to a specialist in the Movement Disorders Program might be warranted.

Types of Movement Disorders

A wide variety of movement disorders can impact children. That’s why it’s important to meet with a specialist for proper diagnosis and treatment. In most cases, the source of movement disorders is related to damage or malfunction in the parts of the brain that control movement, such as the primary motor cortex or basal ganglia. These disorders can take many different forms, however, and cause different symptoms as a result.

Some of the most common types of movement disorders include the following:

Ataxia. This type of movement disorder is often characterized by limb movements, problems with speech and balance problems. Ataxia impacts the part of the brain that controls coordinated movement.
Dystonia. This movement disorder typically includes repetitive muscle contractions that appear as twisting or other sustained involuntary movements. This may affect one body part of multiple areas of the body.
Chorea. Chorea is characterized by rapid, irregular and involuntary movements. It may impact the limbs, face or trunk. Chorea is frequently a symptom of other movement disorders.

These are just a handful of the many different types of movement disorders that can impact children.

The Importance of Early Detection

With movement disorders, early diagnosis and treatment is critical. Movement disorders can often be complex and appear similarly to other conditions, so diagnosis can sometimes take time. Starting that process as early as possible is key to success.

What’s more, many movement disorders can lead to developmental delays or complications for the child over time. Getting an accurate diagnosis and starting treatment early on is important for producing the best outcomes possible for your child. Many forms of movement disorders are treatable with things like medication, physical therapy, occupational therapy and other methods. Even for the movement disorders that cannot be cured, the child can have better outcomes when their symptoms are managed by our specialists in the Movement Disorders Program.

A Multidisciplinary Team of Specialists

The program brings together an entire team of pediatric specialists to consult in the diagnosis and management of each child during monthly collaborative clinics. This team approach simplifies the care journey for families, enabling them to consult with all needed specialists during a single clinic visit and benefit from the collective assessment of the entire team. The specialty team includes physicians in the following pediatric specialties:

Neurology
Neurosurgery
Othopedics
Psychology
Physiatry
Rehabilitation

Evaluation

Imaging with MRI
Genetic Testing
Gait Analysis

Oral Medications
Palliative Rhizotomy

Movement Disorders Program

Compassionate and multidisciplinary care for children with genetic and acquired movement disorders.

Phone:

What Are Movement Disorders?

Twitches, spasms, shaking or other repetitive or uncontrolled movements
Stiffness in the limbs or waist
Trouble walking or a noticeable change in gait
Coordination and balance problems
Trouble speaking, writing or swallowing

Types of Movement Disorders

Some of the most common types of movement disorders include the following:

Ataxia. This type of movement disorder is often characterized by limb movements, problems with speech and balance problems. Ataxia impacts the part of the brain that controls coordinated movement.
Dystonia. This movement disorder typically includes repetitive muscle contractions that appear as twisting or other sustained involuntary movements. This may affect one body part of multiple areas of the body.
Chorea. Chorea is characterized by rapid, irregular and involuntary movements. It may impact the limbs, face or trunk. Chorea is frequently a symptom of other movement disorders.

These are just a handful of the many different types of movement disorders that can impact children.

The Importance of Early Detection

A Multidisciplinary Team of Specialists

Neurology
Neurosurgery
Othopedics
Psychology
Physiatry
Rehabilitation

Evaluation

Imaging with MRI
Genetic Testing
Gait Analysis

Oral Medications
Palliative Rhizotomy

Baby Steps Program

A nurse-led model to help transition NICU babies to the home.

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The Baby Steps program provides assistance with the transition of care, from hospital to home, for infants who received NICU services and their caregivers. The overarching goal of the Baby Steps model is to provide holistic, nurse-led telehealth support to caregivers and infants during the difficult period of transition. The program aims to close the gap in providing neonatal intensive care during the transition from hospital to at-home care.

Nurses are instrumental in preparing individuals to make a smooth transition from the NICU to the home or a community setting. Baby Steps model uses telehealth as a method of support between NICU nurses, caregivers and the infant once the family is discharged from the hospital. Through telehealth, NICU nurses are able to assess the home environment, follow-up on health recommendations, act as liaisons to ensure access to specialized care, and provide information on evidence-based safety and Baby Steps services. This includes guidance on everything from human milk and lactation support, to safe sleeping environments and reduction of risks associated with sudden infant death syndrome.

The program serves all patients, including those who face cultural as well as socioeconomic barriers in receiving equitable, quality, and stable access to medical health services. Our telehealth app is available in multiple languages, with a bilingual NICU nurse and virtual interpreter. All Baby Steps services are provided free of charge to limit financial barriers.

Eligibility

Baby Steps is available to all infants and their adult caregivers who: 1) receive care in the NICU; 2) are discharged to a home setting in the community; and 3) reside within the state of Florida.

Program Impact

In the first three years of the program, close to 700 infants and caregivers have been enrolled in Baby Steps, spanning the state of Florida. Significant reductions in readmission and unplanned emergency care use in the first month after discharge were noted for patients who received services.

More Information

For more information about Baby Steps, please contact Danielle Sarik, PhD, APRN, CPNP-PC, Nicklaus Children’s Director of Nursing Research and Evidence-Based Practice. Email: danielle.sarik@nicklaushealth.org

Special thanks to our supporters for making this program possible!

Broward
Community Resources

Nicklaus Children’s understands many factors impact your child’s health. There are resources available throughout the Broward community, and this list can serve as one starting point to find help.

Phone:

For Food

Feeding South Florida
WIC - for children 0-5 and breastfeeding mothers
SNAP - simplified application through mRelief

For Housing

For Utilities

For Transportation

For Community Resource Centers

Community Services

For Prescription Delivery

Many insurance companies provide prescription delivery, please reach out to your company to check.

For Cell Phone/Internet Benefits

Affordable Connectivity Program - Pulsewrx

For Medicaid

Florida Department of Children and Families

Palm Beach
Community Resources

Nicklaus Children’s understands many factors impact your child’s health. There are resources available throughout the Palm Beach community, and this list can serve as one starting point to find help.

Phone: /patient-resources/community-outreach/community-resources#MDC_resources

For Food

Feeding South Florida
WIC - for children 0-5 and breastfeeding mothers
SNAP - simplified application through mRelief

For Housing

For Utilities

Utility Assistance

For Transportation

For Community Resource Centers

Community Services

For Prescription Delivery

Many insurance companies provide prescription delivery, please reach out to your company to check.

For Cell Phone/Internet Benefits

Affordable Connectivity Program - Pulsewrx

For Medicaid

Florida Department of Children and Families

Patient Care Coordinator

Improving access and making patient referral a seamless experience.

Phone: 786-624-2066

Nicklaus Children's Hospital and Nicklaus Children's Pediatric Specialists, the multispecialty medical group practice of Nicklaus Children's Health System, is pleased to announce it now has a patient care coordinator dedicated to clinicians. With the introduction of this new role, our goal is to improve access and make referring patients to Nicklaus Children's a seamless experience.

Nicklaus Children's Pediatric Specialists is proud to offer appointments for the following pediatric specialties in locations from southern Miami-Dade to Martin counties:

Adolescent Medicine
Allergy and Immunology
Cardiology (Fetal and Pediatric)
Cardiovascular Surgery
Endocrinology and Diabetes
Gastroenterology
Genetics and Metabolic Disorders
Infectious Diseases
Neonatology
Nephrology
Neurology
Neuropsychology
Neurosurgery
Ophthalmology
Otolaryngology (ENT)
Orthopedic Surgery
Plastic Surgery
Psychiatry
Psychology
Rheumatology
Spine & Scolosis
Sports Health

Please don't hesitate to contact our team if you have questions or we can be of service. We look forward to increased collaboration with your office to deliver enhanced access and world-class care to your patients.

Contact Us

PhysicianReferrals@nicklaushealth.org

Patient Navigator Program

Guiding families through their child's healthcare journey.

Phone: 786-NCH-NAVI

At Nicklaus Children’s, we well understand that a child’s medical diagnosis can be overwhelming for the family. Nicklaus Children’s patient navigators help guide families through the child’s healthcare journey, from diagnosis to treatment and recovery. Navigators serve as points-of-contact for families and advocate for their child’s care, overcome barriers and answer questions the child and/or caregivers may have.

Our navigators are comprised of nurses and healthcare experts who serve as resources for families to help guide them through the care experience. They help access services and resources, taking into consideration specialized needs and complex cases. They assist with communicating the plan of care and provide education on next steps in the child’s treatment.

Nicklaus Children’s Patient Navigators are available in the following specialties:

Many of our patient navigators are bilingual. Nicklaus Children’s also offers translation services in multiple languages.

Frequently Asked Questions about Patient Navigators

When should I contact a patient navigator?

Patient navigators help guide families through the child’s healthcare journey, serving as points of contact for families to help answer questions, overcome any barriers to appointments, and offer guidance on the steps ahead. Nicklaus Children’s Hospital has several patient navigators across many pediatric specialties for both inpatient and outpatient services.

What can a patient navigator help me with?

Patient navigators can assist with access to appointments and answer questions regarding the child’s course of treatment and next steps. They can also provide education on a new diagnosis, complex care, treatments, and much more. They work alongside the patient family, as well as other members of the healthcare team, to serve as a point of contact. Navigators advocate for the patient family and help eliminate any barriers to ensure a seamless transition to care across multiple stages in the child’s care and/or pediatric specialties.

How do I get in contact with a navigator?

To reach any patient navigator within Nicklaus Children’s call 786-624-NAVI (6284).

Will they be able to help me when my child has been discharged from the hospital?

Yes. Patient navigators assist and coordinate care for patients during the transition home after hospitalization, with follow-up care and with re-admission, if needed.

What is the difference between a case manager and a patient navigator?

Patient navigators are trained personnel who aid patients in accessing healthcare. They may be nurses, social workers, or healthcare professionals.

What is the role of a patient navigator in an inpatient hospital setting?

Patient navigators are committed to enhancing access to care for families through advocacy, education, and communication.

How can I communicate with my desired patient navigator?

Your patient navigator will work with you to establish the best form of communication that meets your needs, which can be via phone, email, or text messages.

advanced nurse coddling a baby during examination.

Call Your Care Navigator at
786-NCH-NAVI

Metabolic Clinic

Clinic for the treatment of inborn errors of metabolism and center for enzyme replacement therapies for lysosomal diseases.

Phone:

Inborn errors of metabolism are types of complex genetic disorders that can present with a variety of symptoms and require specialized treatments. Nicklaus Children’s has established a specialized clinic through the Division of Genetics and Metabolism devoted to addressing these conditions. Our multidisciplinary team includes multiple board-certified biochemical and clinical geneticists experienced with inborn errors of metabolism, a metabolic dietitian and a group of medical assistants knowledgeable in working with insurance and obtaining authorizations.

Metabolic Conditions Include:

Abnormal Newborn Screenings
Amino Acid Metabolism Disorders
Carbohydrate Disorders (such as Galactosemia and Glycogen Storage Disorders)
Fatty Acid Oxidation Disorders
Lysosomal Storage Disorders
Mitochondrial Disorders
Organic Acidemias
Urea Cycle Disorders

Who is a Candidate for the Clinic?

Candidates for the clinic have one of the following characteristics or circumstances:

Confirmed diagnosis of an inborn error of metabolism
High clinical concern for an inborn error of metabolism
Abnormal newborn screen
Multisystemic involvement and abnormal neuroimaging suspicious for a metabolic/mitochondrial condition
Requiring test coordination after a close relative has been diagnosed with an inborn error of metabolism

How to Get Started

If you want to make an appointment for a child, or if you are a physician seeking to refer a patient to the Metabolic Clinic, please call 786-624-4741.

To reach Genetics and Metabolism in the case of an emergency after normal business hours, patients and healthcare practitioners should call 305-666-6511 (available 24/7) and ask to be connected to Nicklaus Children's Pediatric Specialist Genetics on-call doctor. Metabolic emergencies may include high ammonia, metabolic acidosis, abnormal newborn screening and pregnancy in patients with phenylketonuria or other inborn metabolic disorders.

To request to transfer a patient who is an inpatient at another hospital, please contact Nicklaus Children’s Division of Genetics & Metabolism 786-624-4717.

About the Metabolic Clinic

This clinic takes place two Thursdays per month. As part of the clinic, specialists will perform an initial evaluation including a detailed history, physical exam and discuss diagnostic biochemical and genetic testing. Based on the evaluation, or the patient's diagnosis, management and treatment recommendations will then be discussed and implemented.

Food for Salud

Food for Salud is a multi-faceted initiative launched in 2022 at Nicklaus Children’s Hospital that uses the power of food and nutrition to promote the wellbeing of South Florida children and families. 

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Multicultural family sitting down for a holiday meal

Keeping Healthy Habits During the Holidays

The holiday season is almost upon us, and with that comes lots of festivities with family, friends, and of course, delicious food. A question that comes up a lot with my patients and families is how to maintain healthy eating habits for kids amidst holiday tables filled with treats and indulgences. Our nutrition experts at Food for Salud share a few tips.

Healthy Food for Healthy Kids

There are many benefits to eating well, from disease prevention to overall health and wellness. Lack of access to fresh foods is a barrier to nutritious eating. Food for Salud supports access to nutritious food and brings healthy eating tips and recipes to patient families, kids in local schools, and various community events throughout the year.

Screening for Social Needs

In Miami-Dade County, 18.2% of children live in households experiencing food insecurity, which can impact physical and mental health. As the region’s only free-standing children’s hospital that sees nearly a million children each year, it is our duty to identify food insecurity and provide resources to families.

Therefore, patients and families at Nicklaus Children’s are screened for food and nutrition insecurity as part of our system-wide Social Driver of Health screening and referral initiative, which also addresses housing, utilities, and transportation. Families who identify as having social needs receive support and ongoing resources from community organizations.

Find Help Now

Nicklaus Children’s understands many factors impact your child’s health. There are resources available to help provide access to nutritious food. This list provides a place to begin.

Community Resources

Featured Recipe

Follow along with Executive Chef Jessica Simon and her young helpers as they make watermelon and tomato gazpacho. You’ll learn how to make your own, as well as why it’s such a healthy snack!

Show Your Support

Join us in supporting the effort to move families from food insecurity to nutrition security. Show children and families that we’re all in.

Support

Join Food for Salud

Subscribe to the newsletter to receive monthly resources.

Beckwith-Wiedemann Syndrome (BWS) Patient & Family Conference

Join us Friday June 28th and Saturday 29th at Nicklaus Children's Hospital

Phone: 305-278-5923

The Nicklaus Children’s BWS Patient and Family Conference is back for 2024!
Families will have the opportunity to ask questions during the conference.

The panel of experts will include:

Craniofacial Plastic Surgeon
Oncology
Speech Therapist
Audiology
Orthodontist
Endocrinology
Orthopedics
Cardiology
General Surgery
Genetics
BWS Teen/Adult Panel

BWS patients during the conference clinics

Cost

$75.00

Agenda

Friday, June 28, 2024: in-person clinics with Craniofacial Plastic Surgery, Orthopedic, Speech, Orthodontics, and Genetics.
Saturday, June 29, 2024: in-person lectures, childcare, lunch and dinner provided.

Registration

Registration is open now open through June 6, 2024. Please REGISTER ONLINE.

Location

The BWS Patient and Family Conference will be held at:
Nicklaus Children's Hospital
3100 SW 62nd Avenue
Miami, FL 33155

Questions? Please contact
Kristen.Burr@nicklaushealth.org
305-278-5923

About the Speaker:

Dr. Chad A. Perlyn is president of Nicklaus Children’s Pediatric Specialists (NCPS), the physician-led group practice of Nicklaus Children’s Health System. In this role, Dr. Perlyn provides leadership related to the development of the vision and strategic growth of the health system’s more than 250 employed physicians, 24 pediatric specialty practices and outpatient care centers.

As a pediatric plastic and reconstructive surgeon, Dr. Perlyn’s practice is dedicated solely to caring for children and young adults with congenital or acquired anomalies and injuries. His clinical interests are in craniofacial surgery, vascular anomalies and pigmented lesions of the skin.

6th South Florida Pediatric Nutrition Symposium

"Fueling Young Lives: Optimizing Nutrition Across the Pediatric Spectrum"

Phone:

Registration for this event is CLOSED.

Registration & Pricing

Regular registration: $100
NCH employees and SFAND members: $70
Groups of 5 or more: $85
Students: $55

*Breakfast and lunch included. Complimentary parking.

Hotel Accommodations

Pullman Miami Airport
5800 Waterford District Dr.
Miami FL, 33126

Special Room Rate $149 +tax. Group name for special pricing: NicklausHealth

Continuing Education Credits

6 CEUs approved for Dietitians, Nurses, Social Worker, Pharmacy, PT/OT, and SLP.

Presenters

Dr. Luis Caicedo

Dr. Luis Caicedo is a pediatric gastroenterologist and serves as director of the Pediatric Gastroenterology, Hepatology and Nutrition Fellowship Program and medical director of the Fecal Care Program at Nicklaus Children's Hospital. After completing his medicine degree in Ecuador, he came to Nicklaus Children's Hospital to pursue his residency in pediatrics and then a fellowship in Gastroenterology, Hepatology and Nutrition at John Hopkins School of Medicine. His clinical interests include the gut microbiome.

Velma Mercado, RD/LDN

Velma Mercado is a registered/licensed dietitian nutritionist at Nicklaus Children’s Hospital. She earned her bachelor’s degree in dietetics from Michigan State University in East Lansing. She then completed the Clinical Dietetics Internship Program at Wayne State University in Detroit, Michigan. Velma has 40 years of experience in the pediatric nutrition field. Through the years she has worked with different specialty teams including diabetes, cystic fibrosis, ketogenic diets, and metabolic disorders. While working at Nicklaus Children’s Hospital she served as clinical nutrition manager and

Arantza Barroso, RD/LDN

Arantza Barroso, RDN/LDN, completed her undergraduate studies at the University of Florida and went on to complete her dietetic internship at Oregon Health and Science University. With two years of experience as a pediatric dietitian, including one year specializing in neonatology, Arantza has a strong commitment to ensuring infants receive the proper nutrition they need to grow and thrive. She is also passionate about maternal health and aspires to specialize in maternal pre- and post-pregnancy nutrition, aiming to support mothers and their infants during these critical phases of life.

Melia Menendez-Aponte, RDN/LDN

Melia Menendez-Aponte is a Registered Dietitian/Nutritionist located in Miami, Florida. She is the owner of Thrive Nutrition Therapy and works with a virtual nutrition counseling company. Melia has dedicated the majority of her dietetic years to supporting individuals in their recovery from disordered eating, working in a multitude of eating disorder centers and children's hospitals, including Nicklaus Children’s Hospital. In addition, she has expertise in nutrition therapy for various needs including but not limited to pre- and post-natal nutrition, breastfeeding nutrition and support, pediatric nutrition, weight management, and women's health. She finds joy in helping those seeking to optimize their nutrition and their relationship with food and their body. Melia utilizes an evidenced based approach to nutrition therapy integrated with counseling modalities to empower clients to set personalized and thoughtful goals to heal the body and mind.

Erin Corrigan, MS, RDN, CNSC

Erin Corrigan, MS, RDN, LDN, CNSC has been a nutrition support dietitian with Option Care Health for the past 4 years, with an emphasis on home parenteral nutrition management. Prior to working in home infusion, she spent the bulk of her career in clinical Pediatrics and will always be a pediatric registered dietitian at heart. Highlights included 10 years with the Cystic Fibrosis team and 8 years as the Clinical Nutrition Manager at Nicklaus Children’s Hospital.

Nicole Dulzaides, MS, RDN, LD/N

Nicole Dulzaides is a registered/licensed dietitian nutritionist at Nicklaus Children's Hospital. She earned her bachelor’s degree in Food and Nutrition from Florida State University and her master’s degree in Dietetics with a special focus on health promotion in restaurants from Florida International University in Miami. Nicole has over 10 years of experience in the nutrition field with specialties in neurology and general pediatric nutrition. Her passion is to help children and families in the community live a healthy lifestyle.

Event Agenda

7:00 am – 7:55 am Breakfast, Registration & Vendor Exhibits Open
7:55 am – 8:00 am Welcome Message Jennifer Caceres, MS, RD/LDN, Director & Carla Araya MPH, RD/LDN, Clinical Nutrition Manager
8:00 am – 9:00 am Gutsy Kids: Exploring the Microbiome and its Impact on Pediatric Health Speaker: Dr. Luis Caicedo
9:00am – 10:00am Nourishing the Preemie Baby: A Guide to Optimal Growth and Development Speakers: Velma Mercado, RD/LDN and Arantza Barroso, RD/LDN
10:00am – 10:15am Break, Snack & Vendor Exhibits
10:15am – 11:15am The Ins and Outs of Nutrition Therapy for Eating Disorders Speaker: Melia Menendez-Aponte, RDN/LDN
11:15am – 12:15pm From Hospital to Home: Ensuring Smooth Coordination of Care for Home Enteral and Parenteral Patients Speaker: Erin Corrigan, MS, RDN, CNSC
12:15pm – 1:15pm Lunch, Diamond Sponsors Announcements & Vendor Exhibits
1:15pm – 2:15pm Growing the Future: From the Hospital to the Community Speaker: Nicole Dulzaides, MS, RDN, LD/N
2:15pm – 2:35pm Break, Snack & Vendor Exhibits
2:35pm – 3:35pm ROUND TABLES (2 per participant) Being a Cystic Fibrosis RD: Yesterday, Today and the Promising Future - Cristina Visona, MS, CSP, RD/LDN Uncovering the Potential of the REAL Ketogenic Diet - Laura Garcia, MS, RD/LDN Nutrition Therapies for Inflammatory Bowel Disease - Mirta Rios, CSP, RD/LDN Plant-Based Nutrition for Pediatric Renal Patients - Megan Wakai, MPH, RD/LDN A Review of Pediatric Commercial Formulas and Home-made Blenderized - Julia Leone, MS, RD/LDN Advancements in Individualized Nutrition Strategies for Critically Ill Pediatric Patients - Pierina Picasso, MS, RD/LDN, CNSC, CSPCC Updates in Nutrition and Type I DM - Maria Paula Criado, RD/LDN Counseling the Child and Adolescent Athlete - Maria Parra, MS, RD/LDN Improving Outcomes in Treatment of Childhood/Adolescence Overweight/Obesity - Tania Koerber, CSP, RD/LDN

Cardio-Oncology Clinic

Phone: 786-624-4629

The pediatric Cardio-Oncology Clinic is led by the Nicklaus Children’s Heart Institute in collaboration with the Helen & Jacob Shaham Cancer & Blood Disorders Institute's Survivorship Program, and focuses on high quality cardiac care to children who are or have received cancer treatments.

The advancements in cancer treatments have dramatically improved the survival rate. However, the lifesaving methods used as part of the various treatment plans can increase heart and blood vessel problems, which are leading non-cancer threat among long-term childhood cancer survivors. As a result there is an increased need for comprehensive care before, during, and after the management of cancer.

Nicklaus Children's Hospital offers one of the only comprehensive pediatric Cardio-Oncology program in South Florida, providing our patients with specialized care close to home. Our multidisciplinary team works together to meet the needs of the child and their family throughout the treatment of cancer and the follow-up process to prevent, treat, and reverse heart-related complications. Our specialized treatment plans are a collaboration between the programs and specialists at Nicklaus Children’s, who work together to monitor the patient’s health and minimize long-term cardiovascular problems.

Our cancer survivorship team includes:

Cardiologists
Endocrinologists
Hematologists
Oncologists
Nurses
Support Workers

Who is a Candidate for the Clinic?

The Cardio-Oncology Clinic treats children and adolescent who have or had cancer and:

Received certain high risk chemotherapy agent or had radiation to the chest
Have an abnormal electrocardiogram (EKG/ECG) or echocardiogram (ECHO)
Have a below normal or change in heart function
A history of heart damage from chemotherapy exposure
A history of congenital heart disease
A history or new arrythmia
Are overweight or obese
Have high blood pressure or high cholesterol

About the Cardio-Oncology Clinic

Patients participating in the clinic will meet with our cardiologist and be followed by the other multidisciplinary specialists during their visit to streamline their patient care. We treat each child based on their specific heart risk factors and will include the following:

Electrocardiogram (EKG/ECG)
An echocardiogram (ECHO)
Consultation with a cardiologist
Healthy lifestyle guidance

Additional evaluations can be scheduled based on the patient's needs, such as lab work, exercise testing, and advanced imaging studies.

Cancer survivorship, especially for children, is a life-long journey. Our goal is to ensure every child we treat has the best possible cardiovascular care throughout their life. Our pediatric Cancer Survivorship Program provides compassionate and specialized follow-up care to support the health of survivors long after treatment is complete. To make an appointment, contact the Cancer Survivorship Program for more information.

Cardio-Oncology Clinic

Phone: 786-624-4629

Our cancer survivorship team includes:

Cardiologists
Endocrinologists
Hematologists
Oncologists
Nurses
Support Workers

Who is a Candidate for the Clinic?

The Cardio-Oncology Clinic treats children and adolescent who have or had cancer and:

Received certain high risk chemotherapy agent or had radiation to the chest
Have an abnormal electrocardiogram (EKG/ECG) or echocardiogram (ECHO)
Have a below normal or change in heart function
A history of heart damage from chemotherapy exposure
A history of congenital heart disease
A history or new arrythmia
Are overweight or obese
Have high blood pressure or high cholesterol

About the Cardio-Oncology Clinic

Electrocardiogram (EKG/ECG)
An echocardiogram (ECHO)
Consultation with a cardiologist
Healthy lifestyle guidance

Additional evaluations can be scheduled based on the patient's needs, such as lab work, exercise testing, and advanced imaging studies.

Cardio-Oncology Clinic

Phone: 786-624-4629

Our cancer survivorship team includes:

Cardiologists
Endocrinologists
Hematologists
Oncologists
Nurses
Support Workers

Who is a Candidate for the Clinic?

The Cardio-Oncology Clinic treats children and adolescent who have or had cancer and:

Received certain high risk chemotherapy agent or had radiation to the chest
Have an abnormal electrocardiogram (EKG/ECG) or echocardiogram (ECHO)
Have a below normal or change in heart function
A history of heart damage from chemotherapy exposure
A history of congenital heart disease
A history or new arrythmia
Are overweight or obese
Have high blood pressure or high cholesterol

About the Cardio-Oncology Clinic

Electrocardiogram (EKG/ECG)
An echocardiogram (ECHO)
Consultation with a cardiologist
Healthy lifestyle guidance

Additional evaluations can be scheduled based on the patient's needs, such as lab work, exercise testing, and advanced imaging studies.

Cardio-Oncology Clinic

Phone: 786-624-4629

Our cancer survivorship team includes:

Cardiologists
Endocrinologists
Hematologists
Oncologists
Nurses
Support Workers

Who is a Candidate for the Clinic?

The Cardio-Oncology Clinic treats children and adolescent who have or had cancer and:

Received certain high risk chemotherapy agent or had radiation to the chest
Have an abnormal electrocardiogram (EKG/ECG) or echocardiogram (ECHO)
Have a below normal or change in heart function
A history of heart damage from chemotherapy exposure
A history of congenital heart disease
A history or new arrythmia
Are overweight or obese
Have high blood pressure or high cholesterol

About the Cardio-Oncology Clinic

Electrocardiogram (EKG/ECG)
An echocardiogram (ECHO)
Consultation with a cardiologist
Healthy lifestyle guidance

Additional evaluations can be scheduled based on the patient's needs, such as lab work, exercise testing, and advanced imaging studies.

Pulmonary Vein Stenosis Program

Florida's only dedicated pediatric Pulmonary Vein Stenosis Program.

Phone: 305-662-8301

Understanding Pulmonary Vein Stenosis

Your heart pumps blood to your lungs to pick up oxygen. This oxygen-rich blood then travels back to your heart through the pulmonary veins. Pulmonary vein stenosis (PVS) occurs when one or more of these veins becomes narrowed or blocked, making it harder for blood to return to your heart. This in turn increases pressure in your lungs leading to long-term complications. PVS is a rare serious disease that sometimes goes unrecognized. It often affects babies born prematurely or with other cardiac conditions. However, it can also affect healthy individuals.

Comprenhensive and Personalized Treatment of PVS

Due to the complexity of PVS and the need for specialized care, the Pulmonary Vein Stenosis Program was created as part of the Heart Institute at Nicklaus Children's Hospital. This is the only program in Florida offering a team of experts focused on treating PVS.

Since every case of PVS is unique, our team carefully evaluates each patient's condition and symptoms to create a personalized treatment plan. Treatment plans can include medications, minimally invasive procedures like cardiac catheterization, or surgery.

Multidisciplinary Team of Specialists

The Pulmonary Vein Stenosis Program team is comprised of multidisciplinary specialists, including cardiologists, cardiac imaging experts, pulmonary hypertension specialists, neonatologists, hematologist-oncologists, interventional cardiologists, and cardiothoracic surgeons. Every patient receives specialized care from a team dedicated to the treatment and management of their PVS.

How to Get Started

To make an appointment with the Pulmonary Vein Stenosis Program, please contact the Heart Institute nurse navigator, Jessica Quinones.

As a patient navigator for the Heart Institute, Jessica Quinones serves as the primary point of contact for families and referring physicians whose infants have been diagnosed with a heart defect. She aids in securing appointments with specialists, scheduling and explaining diagnostic tests, and procedures.

Pediatric Cardiometabolic & Preventive Program

Designed for children and families with metabolic syndrome, obesity, hyperlipidemia, and hypertension.

Phone: 561-514-7390

The Cardiometabolic & Preventive Program offers personalized consultation and education for families and pediatricians.

The program is led by a multidisciplinary team of board-certified specialists:

The Cardiometabolic & Preventive Program is designed for children and families with metabolic syndrome, obesity, hyperlipidemia, and hypertension.

Participants will receive a comprehensive cardiometabolic and lifestyle analysis to help identify concerning risk factors. A personalized action plan will also be provided with an emphasis on lifestyle and nutritional modifications.

Grant opportunities available for Palm Beach County residents. Physician referral required.

Intestinal Ultrasound Program

Nicklaus Children’s is only 1 of 4 children's hospitals in the U.S. offering intestinal ultrasounds

Phone:

Nicklaus Children's Hospital is the only pediatric hospital in Florida to offer intestinal ultrasounds (IUS) to children and teens, who have been diagnosed with, or are suspected of having, inflammatory bowel disease (IBD). Providing this non-invasive procedure to our patient families means no family ever needs to leave the state to receive the highest quality pediatric care and personalized treatment they need. Our IUS team accepts patient referrals from other gastroenterologists and providers to offer this new imaging service to pediatric IBD patients across Florida.

Inquire Here

What is an Intestinal Ultrasound?

An intestinal ultrasound (IUS) is a noninvasive ultrasound of the lower gastrointestinal tract that provides highly detailed images of the small intestine and colon. An IUS can show inflammation and other bowel complications associated with inflammatory bowel disease (IBD). The procedure is painless and doesn't require any bowel preparation or sedation like more invasive procedures such as colonoscopies and endoscopies. An IUS cannot replace endoscopy for diagnosing IBD, but it can replace endoscopic exams that are used to check for the presence of inflammation and monitoring the patient’s disease over time.

What happens during the procedure?

During the IUS, gel is applied to the abdomen and a special wand is rolled over the area resulting in a detailed image on a screen. A gastroenterologist who is specially trained in performing IUS procedures will be able to examine the small intestine and colon in real time to see if there is any inflammation, disease or other complications. If the patient is already being treated for IBD, the procedure will also be able to show if treatment is working. Ultrasounds may take anywhere from 15 to 40 minutes, depending on how well the child cooperates.

How do I prepare for an Intestinal Ultrasound?

An IUS does not require any special preparation, fasting or bowel preparation. Some patients may be asked to drink a small amount of liquid before the ultrasound, but this is not usually the case.

Who is a candidate for an Intestinal Ultrasound?

Patients who have been diagnosed with or are suspected to have inflammatory bowel disease (IBD) would benefit from an intestinal ultrasound. While IUS cannot replace endoscopic procedures or biopsies for diagnosing IBD, it may reduce the number of colonoscopies or other assessments needed to monitor inflammation and the disease activity over time.

Inquire Here

Child's First Name*:

Child's Last Name*:

Parent/Legal Guardian Name *:

Email*:

Primary Phone*:

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Is there anything you'd like to share? Type your message here*:

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Interstage Clinic

Support for our patients and families during the interstage period.

Phone:

A baby born with a single-ventricle heart, such as hypoplastic left heart syndrome (HLHS), undergoes two to three important palliative heart surgeries, often within the first few months of life. The time between the first two surgeries is a high-risk period and is also known as the interstage period. During the interstage period, our program facilitates you to safely take your baby home to grow and await the second surgery.

At Nicklaus Children’s, we understand that caring for an infant during the interstage period can often be a stressful experience. The Heart Institute’s Interstage Clinic consists of a multidisciplinary team to provide specialized care and support. We also facilitate communication with families that have gone through this journey to guide you through yours.

We are also part of the National Pediatric Cardiology - Quality Improvement Collaborative (NPC-QIC) which constantly works to improve care and outcomes in our single ventricle infants.

In addition to HLHS, single ventricle hearts may have other diagnoses such as hypoplastic right heart syndrome (HRHS), double outlet right ventricle (DORV), double inlet left ventricle (DILV), double inlet right ventricle (DIRV), pulmonary atresia, or tricuspid atresia.

How It Works

Parents and caregivers play an important role in their baby’s care journey and are key members of the team. With the help of an Advanced Practice Provider, they receive education and home training to develop the skills needed to care for their baby. This training begins during the postoperative period, well before leaving the hospital. We ensure parents feel comfortable with monitoring and communicating back with the clinicians by documenting their baby’s feeding intake, weight, heart rate and oxygen saturations daily. Parents are provided with essential home equipment such as a digital infant scale, oxygen saturation monitor, and a home-care binder.

Parents and caregivers are asked to download the CHAMP^® application on their smartphones or tablets. This application allows our care team to monitor the baby’s vital signs remotely, in real time, and make necessary decisions for the child’s care. More information about the home monitoring technology can be found below.

Most importantly, parents are trained to recognize “red flags” or early warning signs to promote prompt attention and intervention with the main goal of keeping these infants safe.

Red Flags: When to Call Us

Oxygen saturations are less than 75%
Appears blue or pale in the face, lips or hands while at rest
Poor feeding
Weight loss or failure to gain weight
Breathing fast or hard
Diarrhea, vomiting or increased sweating
Bloody stools
Less than 4 wet diapers a day
Irritable, fussy or any change in behavior
Temperature > 100.4 F
If you are on your way to any emergency room

Home Monitoring Technology

CHAMP (Cardiac High Acuity Monitoring Program) is an application that makes it possible for the care team to provide support to families through communication as well as the ability to monitor the infant, while at home during the interstage period.

The CHAMP application was developed by the Ward Family Heart Center team at Children's Mercy Kansas City. Nicklaus Children’s is a research study site and one of nine hospital organizations that joined this technology collaborative to extend care to infants during the interstage period.

Contact Us

For more information about the Interstage Clinic, please contact: Stefania.Sarno@nicklaushealth.org.

Additional Family Resources

Ortho-Oncology Program

Florida's Top-Ranked Hospital for Pediatric Orthopedic Care

Phone:

The Ortho-Oncology Program, part of Nicklaus Children’s Orthopedics, Sports Medicine and Spine Institute, is a unique and highly specialized orthopedics program that treats children with sarcomas and other forms of bone tumors. Our orthopedic oncologists work closely with clinicians from Nicklaus Children’s Shaham Cancer & Blood Disorders Institute and a variety of other specialists in multiple disciplines to provide children with these disorders with comprehensive care.

What Is Orthopedic Oncology?

Our renowned pediatric orthopedic oncologists specialize in the treatment of complex bone cancers such as sarcomas, as well as benign bone tumors. They are dedicated to the preservation of limbs after bone cancer treatment whenever possible, as well as reconstruction options when necessary. Orthopedic oncologists are also integral in helping children rehabilitate after bone cancer or bone tumor treatment.

Why Choose Us?

A Regional Leader in Limb Salvage Techniques

For tumors involving the musculoskeletal system, orthopedic oncologists provide evaluation and treatment, including prescribing and interpreting imaging and testing, as well as performing biopsies and definitive cancer surgery treatment.

When surgery is necessary, the orthopedic oncology team will remove pediatric tumors and reconstruct extremities utilizing the most advanced limb salvage techniques available. The team is one of a few in the region to utilize oncological prostheses for limb salvage that make it possible for a child’s leg to grow through a series of nonsurgical adjustments, eliminating the need for future leg-lengthening surgeries. The department also coordinates rehabilitative care of the patient following cancer surgery.

About the Program

At Nicklaus Children’s Hospital, our team understands the complexities involved in caring for children with rare and complex cancers, including sarcomas and solid tumors. Highlights of our program include:

Advanced imaging
Behavioral health and psychological support throughout the care journey
Clinical trials for children and adolescents with new diagnosis and relapsed sarcoma conditions
Surgical and nonsurgical techniques for limb salvage
Survivorship program to provide support post-treatment

The Ortho-Oncology Program works closely with Nicklaus Children’s Hospital’s vast network of pediatric multidisciplinary specialists with expertise in treating sarcomas and other bone tumors. Together, they provide coordinated, compassionate care to children faced with a diagnosis. These include experts in:

Nutrition
Oncology
Orthopedic Surgery
Pediatric Surgery
Physical and Occupational Therapy
Plastic Surgery
Psychology
Radiation Oncology
Radiology
Social Work

Limb Salvage Surgery
Mass Resection Surgery

Ortho-Oncology Program

Florida's Top-Ranked Hospital for Pediatric Orthopedic Care

Phone:

What Is Orthopedic Oncology?

Why Choose Us?

A Regional Leader in Limb Salvage Techniques

About the Program

Advanced imaging
Behavioral health and psychological support throughout the care journey
Clinical trials for children and adolescents with new diagnosis and relapsed sarcoma conditions
Surgical and nonsurgical techniques for limb salvage
Survivorship program to provide support post-treatment

Nutrition
Oncology
Orthopedic Surgery
Pediatric Surgery
Physical and Occupational Therapy
Plastic Surgery
Psychology
Radiation Oncology
Radiology
Social Work

Limb Salvage Surgery
Mass Resection Surgery

Genetics and Metabolism Program

Part of Florida's Top-Ranked Hospital for Pediatric Neurology and Neurosurgery

Phone: 786-624-2381

Part of the nationally recognized Nicklaus Children's Brain Institute, the Genetics & Metabolism Program is the only program in the state with dedicated multidisciplinary team providing comprehensive care for children with complex neurogenetic/metabolic disorders referred from throughout Florida as well as the Caribbean and South and Central America. The program provides screening, early intervention and quaternary treatments including critical care and clinical trials.

The Genetics & Metabolism Program evaluates and treats all the children and young adults with suspected neuro-genetic and neuro-metabolic disorders, including inborn errors of metabolism, intractable epilepsies, intellectual disabilities, autism, abnormal newborn screen and progressive neurodegenerative conditions and storage disorders. It focuses on diagnosis and treatment of these types of conditions. The program is staffed by board-certified physicians and licensed ARNP and nutritionists along with a dedicated clinic coordinator.

Causes of Neurometabolic Disorders

Autism
Chromosome abnormalities
Epilepsy
Inborn Errors of Metabolism
Maple Syrup Urine Disease (MSUD)
Microcephaly
Neurogenetic–Neurometabolic Abnormalities
Phenylketonuria
Progressive Neurodegenerative Disorders
Seizures
Urea Cycle defects

Signs and Symptoms of Neurometabolic Disorders

Neuro regression
Failure to achieve milestones
Autism
Developmental delay- unspecified
Seizures
Failure to thrive
Microcephaly

Treatment Options

Specific neurometabolic disorders are treated with:

Special diets
Medications
Mitochondrial medications and supplements
Antiepileptics
Enzyme replacement therapy

The treatment depends on the etiology of the condition.

A Team Approach to Care

The Metabolic team comprises of a neurogeneticist, neurologist, neuro-radiologist, neuro-ophthalmologist, and metabolic nutritionist. Through a team approach, the Neurometabolic Program provides comprehensive services that enhance the delivery of tertiary care for metabolic disorders in children and infants.

Inpatient care includes extensive diagnostic capability backed up by treatment modalities tailored to the child's needs that are not available elsewhere in South Florida. During the clinics, held twice monthly, the patient and family meets with the team to ensure that the child's collective care needs are being met thus eliminating the need for multiple appointments with various specialists.

Patient Education

The team is also working towards educating physicians and allied health professionals in the tri-county area to better recognize early signs of metabolic disorders in children, thus enabling them to access the expertise available through The Brain Institute. With early detection, children and families can be spared most of the severe complications and morbidity associated with metabolic disorders.

Palliative Care

Phone:

Center of Precision Medicine

Who We Are

What is Precision Medicine?

Research Projects Open for Enrollment

Goals

Cultural Competency

Integrated into every Service Line

Pediatric EKG's for Kids and Teens

Why is an EKG screening important?

How do I schedule an EKG screening for my young athlete?

What to expect during an EKG screening?

How will I receive results?

What if my child’s screening is abnormal?

Interested in hosting a community EKG screening event?

Some Facts about the Free EKG Program

Adolescent Medicine

Why Choose Nicklaus Children's Hospital?

Pediatric Allergy & Immunology

Allergy Tests and Treatments

Pediatric Anesthesiology

Why is Nicklaus Children's the best hospital for my child?

Why choose Nicklaus Children's Hospital?

Pediatric Craniofacial Center & Clinic

Children's Dental Services

Pediatric Dental Programs and Clinical Services Offered

Craniofacial Center

Providing Support Across Specialties

The Latest in Dental 3D Imaging Technology

Pediatric Emergency Room

Our Collaboration with Baptist Health

Valet Parking Services for the ER

Pediatric Endocrinology and Diabetes

Evaluation and treatment for the following pediatric conditions:

Diagnostics and Treatments

Fetal Care Services

Initial Consultation and Scheduling

Clinical Genetics

Genetic Testing and Screenings

Genetic Counseling Programs

The Heart Institute: Pediatric Cardiology and Cardiovascular Surgery

Offering Same and Next-Day Appointments And Second Opinion Consultations

The Heart Institute:

A Team Approach to Care Makes a Difference

Recognition and Outcomes Tell the Story

A Distinguished History of Saving Little Hearts

Infectious Diseases

NICU: Neonatal Intensive Care Unit

Care for Premature and Critically Ill Children

A Team Approach

LifeFlight®: Neonatal Transport Services

Gold-Level Patient Care

Advanced Neonatal Care

Premature Baby Development

Total Family Care

Pediatric Gastroenterology

Gastroenterology Tests and Procedures

Baby Formula Recall

​New Main Campus Office!

Nephrology

Pediatric Neurology

Offering Same and Next-Day Appointments
And
Second Opinion Consultations

LifeFlight^®: Neonatal Transport Services

New Main Campus Office!