Daniella Celebrates her Ninth Birthday by Advocating for Children’s Health


Senator Bill Nelson with Daniella and other children healthcare advocates.

Published on: 06/26/2018

Daniella’s story has inspired many on her journey, including the team of doctors and medical professionals that have cared for her along the way. And she continues to share her story to help others.  Daniella celebrated her eleventh birthday by joining 200 other pediatric patients from around the nation at Speak Now For Kids day to advocate for legislation that affect children’s health. Daniella was joined by her parents and two older sisters who met with legislators to share her inspiring story and demonstrate how decisions in Washington impact pediatric patients around the nation.
 
Daniella meeting with Senator Bill Nelson

Among the topics discussed are funding that supports continuing medical education programs physicians and legislation that takes into account the unique needs of pediatric patients, which make up 50 percent of total Medicaid enrollment.
 
Read more about Daniella on the Children’s Hospital Association’s Speak Now for Kids campaign here: http://www.speaknowforkids.org/meet_daniela_2018_family_advocacy_day_champion

Read Previous Read Next

Related News

Lily Shines a Light on the Importance of Early Detection of Neuromotor Delays

March 12, 2025 – Lily, age 2 ½, is walking independently and making remarkable progress, thanks to rehabilitative intervention at Nicklaus Children’s Hospital and an early diagnosis of cerebral palsy.

Patient of the Month: Carmella

February 28, 2025 – After Carmella developed bruising and red blood dots on her skin, she was rushed to the emergency room at her local hospital in Palm Beach. Initial tests showed a low platelet count, prompting further testing. At Nicklaus Children’s Helen & Jacob Shaham Cancer & Blood Disorders Institute, Carmella was diagnosed with Severe Aplastic Anemia (AA) and required a bone marrow transplant – her little brother Angelo was a perfect match and became her donor.

Leading Pediatric Epilepsy Care for 40 Years

February 26, 2025 – For 40 years, Nicklaus Children's Hospital has been a leader in pediatric epilepsy. Learn more about the comprehensive care we offer for the most complex chronic cases.

Gene Therapy Offers New Hope for Children with Duchenne MD

January 23, 2025 – At Nicklaus Children's Hospital, gene therapy offers a promising treatment that dramatically improves life for children with Duchenne muscular dystrophy. Recognizing the potential wielded by a new gene therapy, Nicklaus Children’s became one of the first in the nation to offer ELEVIDYS-dystrophin soon after the FDA's 2023 approval.